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CEA and hope

Posted: Sat Jan 05, 2019 6:15 pm
by Mohrfamily
So my journey with DH has been hard. We fight for everything in this life together and his cancer battle is no different. So I just want to put this out there according to the nurse practitioner working with our oncologist his CEA was the highest she'd ever seen being over 10,000. After 6 months of chemo and 5 and a half of those months with oxaliplatin in December his CEA was down to 69!

I know CEA isn't exactly reliable but given our situation I feel deep down those numbers mean something good something hopeful.

I'm constantly battling my head so many of you have given me hope some with lots of mets and one person who had said dozens of mets is surviving because of MSK. Why can't it feel this way from our doctors ALL OF THEM. Why should anyone feel the despair of am I watching them die? I don'tt ask it often because my faith/hope/strength comes from that question he is not going anywhere if we have to file bankruptcy in the process. Sometimes the despair I feel is so many patients go straight to surgery, some have many extra mets and favorable out comes what makes any of us different in the same situations? In that my husband could die while others very similar to his state go on?

Re: CEA and hope

Posted: Sun Jan 06, 2019 1:58 pm
by LPL
WOW - to see CEA go down like that must be a good sign!
As I understand it for some people CEA is very good at predicting respons to treatment. I really hope/think that is true in your husbands case. Whishing you well !

Re: CEA and hope

Posted: Sun Jan 06, 2019 2:23 pm
by Punky44
From my understanding, it definitely sounds like your husband’s CEA is the kind that is a good predictor! My mom’s is as well, although on a smaller scale (went from an 18 to a 10 with 4 rounds of Folfox and scans show tumor shrinkage of 40%!).

For your husband’s to go from 100000 to 69 is surely a great sign!

Re: CEA and hope

Posted: Sun Jan 06, 2019 4:53 pm
by stu
Fantastic update . So good of you to think of others .
You have both endured incredibly well.

Re: CEA and hope

Posted: Mon Jan 07, 2019 12:24 am
by ginabeewell
That's amazing and has to be a great sign. I went from 931 to 49 to 4.6 and my doctors were calling the drops amazing and unbelievable response. The response you are citing is even better than that! I will say that CEA aside, I am still not resectable; but the figures are giving me faith that things are moving in the right direction.

I read the book Radical Remission and ended it feeling like, "why not me?" It was super uplifting and I would recommend it if you're feeling up against the odds.