Re: 3C Recently Diagnosed - need support
Posted: Tue Jan 08, 2019 10:21 am
by marshmallowjones
Ron50 wrote:Hi Marshmallowjones,
Welcome aboard. I was dxed with stage 3c colon cancer into 6 of 13 nodes when I was 48. It was very aggressive and my surgeon told me not to expect more than three years. I told him don't worry I don't die of cancer. I have no idea what will get me but it won't be cancer. I had 48 sessions of a very old chemo regime which is no longer used because of sometimes fatal side effects. On the 22nd of this month I reach 21 years ,still cancer free. Wishing you good health and a cancer free future. Ron.
Wow - encouraging and yours was indeed a rough battle. My good friend who was there for a colonscopy and serious bad news news delivery from the Gastro screamed "this aint the way you die!" on the way home for the hours long visit. I agreed, it has to be something more interesting that this.
Re: 3C Recently Diagnosed - need support
Posted: Tue Jan 08, 2019 10:34 am
by marshmallowjones
LPL wrote:Marchmellojones,
You wrote:
My ONC is saying that we don't look/scan until 1 year which I'll ask about.
Yes ! Do ask about that because it doesn’t sound ‘normal’. My DH has had scans evey 3 month, then every 4 and then 5. Now is the first time it has gone 6 month. My husband was diagonosed in March 2016.
All the best to you!
We met yesterday and the 1st scan will be done at the conclusion of the last chemo session #8. The only that could be happening is that micro metastases are still floating around (fingers crossed - NOT!) The CEA comes into play - whatever that is. I'm feeling better since I wrote this post. I just didn't want to be glossing over the seriousness of my situation.
Excited about dropping Neulasta this treatment and going for 3 shots of Neupegen instead. I'm sure the spelling is wrong. Neulasta is way too tough on me - Claritin and all.
Re: 3C Recently Diagnosed - need support
Posted: Tue Jan 08, 2019 1:06 pm
by Koreysue
Hello,
Sorry to hear you have a reason to be on this forum, but it is a good spot for support.
For me the effects did get worse with each treatment cycle, but I tried to walk each day and stay on top of the nausea with meds. Rest when you need to. Sleep sleep sleep.
Lee is such a ray of hope with how well he has done. I know it is hard, but being positive like you are will help more than worrying will. I have to tell myself this daily- over and over, so I know it is easier said than done.
Take care,
Korey
Re: 3C Recently Diagnosed - need support
Posted: Sun Feb 10, 2019 8:24 am
by Nordy1
Patty17 wrote:Congratulations on four down, MJ! Way to go!
I would equate FOLFOX doses 4 - 8 like a series of blind dates: each one a little different, some good qualities, some bad. Don’t be surprised if some side effects show up for one cycle and disappear for another. There is a cumulative effect for tiredness and some of the bloodwork numbers continue to take a hit. Accept the help knowing it’s going to get you on your feet faster once #8 is in the history books.
You’re doing everything you can to beat this. Control what you control, let the rest go. So, so hard to let go and not over-analyze what’s on the internet. I am guilty of it myself — it just robs the present of happiness.
You got this!
Love this bit of wisdom and humor! particularly "I would equate FOLFOX doses 4 - 8 like a series of blind dates: each one a little different, some good qualities, some bad"
take care of yourselves
Nordy