3C Recently Diagnosed - need support

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marshmallowjones
Posts: 9
Joined: Thu Jan 03, 2019 9:23 am
Facebook Username: Regina Kennedy

Re: 3C Recently Diagnosed - need support

Postby marshmallowjones » Tue Jan 08, 2019 10:21 am

Ron50 wrote:Hi Marshmallowjones,
Welcome aboard. I was dxed with stage 3c colon cancer into 6 of 13 nodes when I was 48. It was very aggressive and my surgeon told me not to expect more than three years. I told him don't worry I don't die of cancer. I have no idea what will get me but it won't be cancer. I had 48 sessions of a very old chemo regime which is no longer used because of sometimes fatal side effects. On the 22nd of this month I reach 21 years ,still cancer free. Wishing you good health and a cancer free future. Ron.


Wow - encouraging and yours was indeed a rough battle. My good friend who was there for a colonscopy and serious bad news news delivery from the Gastro screamed "this aint the way you die!" on the way home for the hours long visit. I agreed, it has to be something more interesting that this.

marshmallowjones
Posts: 9
Joined: Thu Jan 03, 2019 9:23 am
Facebook Username: Regina Kennedy

Re: 3C Recently Diagnosed - need support

Postby marshmallowjones » Tue Jan 08, 2019 10:34 am

LPL wrote:Marchmellojones,
You wrote:
My ONC is saying that we don't look/scan until 1 year which I'll ask about.

Yes ! Do ask about that because it doesn’t sound ‘normal’. My DH has had scans evey 3 month, then every 4 and then 5. Now is the first time it has gone 6 month. My husband was diagonosed in March 2016.
All the best to you!


We met yesterday and the 1st scan will be done at the conclusion of the last chemo session #8. The only that could be happening is that micro metastases are still floating around (fingers crossed - NOT!) The CEA comes into play - whatever that is. I'm feeling better since I wrote this post. I just didn't want to be glossing over the seriousness of my situation.

Excited about dropping Neulasta this treatment and going for 3 shots of Neupegen instead. I'm sure the spelling is wrong. Neulasta is way too tough on me - Claritin and all.

Koreysue
Posts: 68
Joined: Mon Apr 30, 2018 2:36 pm

Re: 3C Recently Diagnosed - need support

Postby Koreysue » Tue Jan 08, 2019 1:06 pm

Hello,
Sorry to hear you have a reason to be on this forum, but it is a good spot for support.
For me the effects did get worse with each treatment cycle, but I tried to walk each day and stay on top of the nausea with meds. Rest when you need to. Sleep sleep sleep.
Lee is such a ray of hope with how well he has done. I know it is hard, but being positive like you are will help more than worrying will. I have to tell myself this daily- over and over, so I know it is easier said than done.
Take care,
Korey
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8


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