marshmallowjones wrote:Hi all
Hoping to hear back from those with more wisdom and experience. I'm seeing the therapist from the Oncology Center today as I know i'm feeling defeated and down today.
Hi and welcome, sorry for the reason you are here.
For what it's worth, I'm coming up on 15 yrs as a stage IIIC survivor. Know there are many of us out there. So do not give up the hope. It's the end of the holidays, your gearing up for more chemo, you have a right to feel down.
For me, yes chemo side effects was accumulative. Please understand, FOLFOX was an experimental drug when I got it, and it was a game changer for a lot of folks. When I was diagnosed, I had about a 30% chance of being alive in 5 years, believe me a lot of advancement have been made since then. FOLFOX is one the drugs that has put many people into NEDville. Please avoid Dr. Google, it tends to be out of date and sometimes wrong. I believe your chances of beating this cancer today is probably closer to 70%.
Some things that helped me while on chemo. I always got a breakfast (BurgerKing) egg and cheese sandwich on way to chemo. I found keeping food in my stomach kept nausea on bay. Thus I ate many small meals vs 3 meals through out the day. And junk food is better than an empty stomach. Thus don't worry about eating healthy while on chemo. FOLFOX tend to mess with your taste buds, butt they will come back. And ginger is always good for nausea. Ginger snap cookies, ginger ale or ginger root.
Sometimes, some people have found exercise to be helpful when doing chemo. Something light like just plain walking can really help you recover faster. When you are finished with chemo all together, you really want to find a form of exercise you enjoy and stick with it. Research has shown exercise can reduce the chance of a recurrence by up to 50%. Me I power walk 4-5 time a week. Exercise can also help in making you just feel better emotionally.
Yes, they are finding out 8 cycles of FOLFOX is good. 12 cycles (which I had) tends to promote bigger side effects). And I've got em. Butt don't assume your next cycle is going to be worst than your last. Take each one at a time. One time, I got very sick, ie throwing up, never happened again. Another time, I swear I did not get the full dose, as I had a lot of energy when I should have been wiped out. Butt do notice when you see issues becoming a problem and do talk to your Onc about any issues or concerns.
Please know, we know what you are going through. You are never along here. Please feel free to vent anytime you need. Also know there is a wealth of information here.