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Re: Stage II but puzzle with the chemo.. : (

Posted: Mon Jan 07, 2019 3:17 pm
by peanut_8
That's a good point about friction on the foot. If that happened, you'd probably need to cut down on walking, or possibly get really cushy socks and comfy. shoes. I must admit that the last 1/3 of my treatment I had to cut back on the walking and finally eliminate it, but that was mostly due to fatigue. I only had mild/moderate hand/foot syndrome.

Best Wishes,
peanut

Re: Stage II but puzzle with the chemo.. : (

Posted: Mon Jan 07, 2019 4:58 pm
by weisssoccermom
You mentioned something which I would like to address. We read stories about patients who have chemo for other kinds of cancers or we see things on television that portray cancer patients as super ill, very thin and overall they look awful. There ARE some types of cancer treatments that can and do cause patients to have those side effects BUT....something most people don't recognize is that different cancers have different chemo drugs and other treatments and that the drugs for colorectal cancer don't generally have those awful side effects.

When I was first diagnosed, I assumed that I would somehow turn into this stick figure person....super thin and be sitting next to the toilet all the time because I would be throwing up everyday. That was the FURTHEST thing from the truth. Just remember that and don't let those scary portrayals overtake your mind and overwhelm you.

Re: Stage II but puzzle with the chemo.. : (

Posted: Mon Jan 07, 2019 5:51 pm
by Beckster
esuperbaby wrote:Dear all,

I have seen 2 Oncologist and both suggested to go for the 8 cycles Xelonda .. they explained the side effect as you guys and reassurance that most people can tolerate this period ..

So, probably I would make up my mind and go for the chemo “journey”

Thanks again for all your support and pls recommend further tips if any.. so far, I marked down the below:

- drink more water
- apply more cream on hand and foot
- avoid too much folic acid

Thank you again and you all really too kind !

Best Regards,
Esupeebaby


I am glad you found the information you needed to make a desicion. I did Xeloda only for 6 months. People did not know that I was on chemo..I did not lose my hair and did not lose weight. In fact, I gained 10 pounds! I never had nausea and would have a couple martinis on my days off of chemo. I did suffer from hand and foot that affected me walking long distances after the 3rd round, but my onc adjusted my treatment plan and it worked. I went out, cleaned the house, worked part time (I am retired) and took a nap when I got tired. All in all, it was quite doable. I would advise you to drink plenty of water, by some "Utterly Smooth" for your hands and feet and eat before taking the pills. You will be ready to go for summer! If you have any questions while on Xeloda, message me and I can give you additional tips if needed. YOU CAN DO THIS!!!!

Re: Stage II but puzzle with the chemo.. : (

Posted: Mon Jan 07, 2019 6:46 pm
by peanut_8
Think I gained some weight on xeloda also. I attribute that to all the macaroni and cheese that I ate. :roll:
Sometimes you just need some good old comfort food. I could keep up with normal day to day activities until the last couple of weeks, when I was very tired.
I did have my dosage lowered once.

Re: Stage II but puzzle with the chemo.. : (

Posted: Mon Jan 07, 2019 8:33 pm
by Lee
weisssoccermom wrote: . . . We read stories about patients who have chemo for other kinds of cancers or we see things on television that portray cancer patients as super ill, very thin and overall they look awful.

When I was first diagnosed, I assumed that I would somehow turn into this stick figure person....super thin and be sitting next to the toilet all the time because I would be throwing up everyday. That was the FURTHEST thing from the truth . . .


I was one of those people who actually PUT ON weight while on chemo and I only threw up once during the whole course (we finally determined OJ and chemo were NOT a good combo for me). This was getting a full dose, 12 cycle of FOLFOX. I got chemo every other week. Those weeks when I had to get chemo, yes I had to take it easy. Butt the week off from chemo, I lead a normal life.

There are ways to deal with the side effects of chemo.

Lee

Re: Stage II but puzzle with the chemo.. : (

Posted: Tue Jan 08, 2019 5:32 am
by esuperbaby
peanut_8 wrote:That's a good point about friction on the foot. If that happened, you'd probably need to cut down on walking, or possibly get really cushy socks and comfy. shoes. I must admit that the last 1/3 of my treatment I had to cut back on the walking and finally eliminate it, but that was mostly due to fatigue. I only had mild/moderate hand/foot syndrome.

Best Wishes,
peanut


Thanks!

Would the fatigue make your normal life affected?

Re: Stage II but puzzle with the chemo.. : (

Posted: Tue Jan 08, 2019 5:34 am
by esuperbaby
weisssoccermom wrote:You mentioned something which I would like to address. We read stories about patients who have chemo for other kinds of cancers or we see things on television that portray cancer patients as super ill, very thin and overall they look awful. There ARE some types of cancer treatments that can and do cause patients to have those side effects BUT....something most people don't recognize is that different cancers have different chemo drugs and other treatments and that the drugs for colorectal cancer don't generally have those awful side effects.

When I was first diagnosed, I assumed that I would somehow turn into this stick figure person....super thin and be sitting next to the toilet all the time because I would be throwing up everyday. That was the FURTHEST thing from the truth. Just remember that and don't let those scary portrayals overtake your mind and overwhelm you.


Yes, thanks a lot for the comfort! After hearing from you, though I expect there would be some uncomfortable but it should be manageable for most people.. hope I will be one of those ..!

Re: Stage II but puzzle with the chemo.. : (

Posted: Tue Jan 08, 2019 5:38 am
by esuperbaby
Beckster wrote:
esuperbaby wrote:Dear all,

I have seen 2 Oncologist and both suggested to go for the 8 cycles Xelonda .. they explained the side effect as you guys and reassurance that most people can tolerate this period ..

So, probably I would make up my mind and go for the chemo “journey”

Thanks again for all your support and pls recommend further tips if any.. so far, I marked down the below:

- drink more water
- apply more cream on hand and foot
- avoid too much folic acid

Thank you again and you all really too kind !

Best Regards,
Esupeebaby


I am glad you found the information you needed to make a desicion. I did Xeloda only for 6 months. People did not know that I was on chemo..I did not lose my hair and did not lose weight. In fact, I gained 10 pounds! I never had nausea and would have a couple martinis on my days off of chemo. I did suffer from hand and foot that affected me walking long distances after the 3rd round, but my onc adjusted my treatment plan and it worked. I went out, cleaned the house, worked part time (I am retired) and took a nap when I got tired. All in all, it was quite doable. I would advise you to drink plenty of water, by some "Utterly Smooth" for your hands and feet and eat before taking the pills. You will be ready to go for summer! If you have any questions while on Xeloda, message me and I can give you additional tips if needed. YOU CAN DO THIS!!!!


Thanks Beckster!

Will sure approach you for additional tips once I start the Xelonda, it’s expected to start from mid-Jan!

May I also ask if you control the red meat volume after the surgery? The Dr suggested more white meat than red and it’s mentioned about 1lb red meat per week.

Thanks !

Re: Stage II but puzzle with the chemo.. : (

Posted: Tue Jan 08, 2019 7:42 am
by Beckster
esuperbaby wrote:
Beckster wrote:
esuperbaby wrote:Dear all,

I have seen 2 Oncologist and both suggested to go for the 8 cycles Xelonda .. they explained the side effect as you guys and reassurance that most people can tolerate this period ..

So, probably I would make up my mind and go for the chemo “journey”

Thanks again for all your support and pls recommend further tips if any.. so far, I marked down the below:

- drink more water
- apply more cream on hand and foot
- avoid too much folic acid

Thank you again and you all really too kind !

Best Regards,
Esupeebaby


I am glad you found the information you needed to make a desicion. I did Xeloda only for 6 months. People did not know that I was on chemo..I did not lose my hair and did not lose weight. In fact, I gained 10 pounds! I never had nausea and would have a couple martinis on my days off of chemo. I did suffer from hand and foot that affected me walking long distances after the 3rd round, but my onc adjusted my treatment plan and it worked. I went out, cleaned the house, worked part time (I am retired) and took a nap when I got tired. All in all, it was quite doable. I would advise you to drink plenty of water, by some "Utterly Smooth" for your hands and feet and eat before taking the pills. You will be ready to go for summer! If you have any questions while on Xeloda, message me and I can give you additional tips if needed. YOU CAN DO THIS!!!!


Thanks Beckster!

Will sure approach you for additional tips once I start the Xelonda, it’s expected to start from mid-Jan!

May I also ask if you control the red meat volume after the surgery? The Dr suggested more white meat than red and it’s mentioned about 1lb red meat per week.

Thanks !


I was never put on a "restricted" red meat volume, but I am not much of a red meat eater. However, diet wise, everyone should limit their red meat and process food consumption. I mostly eat salmon 2 times a week, chicken and turkey. I have my pasta one day a week and eat a salad with protein every day. However,during chemo, my onc told me to eat anthing and everything I wanted...apparently chemo works better with weight...so I ate and ate and ate! Started chemo at 148 and finished at 161!

Re: Stage II but puzzle with the chemo.. : (

Posted: Wed Jan 09, 2019 5:51 am
by esuperbaby
Thanks!

Also want to ask one thing, now after surgery for 3 weeks , the wounds were ok on the superficial ...

But sometimes I still feel the inside is a bit pain... is that normal? How long this painful will be gone?

Thank you !

Re: Stage II but puzzle with the chemo.. : (

Posted: Wed Jan 09, 2019 2:27 pm
by Beckster
esuperbaby wrote:Thanks!

Also want to ask one thing, now after surgery for 3 weeks , the wounds were ok on the superficial ...

But sometimes I still feel the inside is a bit pain... is that normal? How long this painful will be gone?

Thank you !


Yes it is normal. I had pains now and then for 6 months and a lot of rumbling and gas. You have to give it time. I was not allowed to lift anything over 5 pds for 6 weeks, but you had major surgery and it takes time. On the outside it looked minor, but the inside is still major.

Re: Stage II but puzzle with the chemo.. : (

Posted: Sat Jan 19, 2019 7:06 pm
by esuperbaby
Dear all,

Finally, I have made up my mind to take the Xelonda ..!
Thanks for all of your comments earlier !

My private Oncologist said it’s better to start the Xelonda within 6 weeks from Surgery.. however, the govt hospital Oncologist is going to arrange the Xelonda only from week 8 .. is it still okay?

Would you please also give additional tips of preventing or how to deal with the side effect from Xelonda..thank you soooo much !

So far I mark down:
- drink more water
- apply more cream on hand and foot
- avoid cycling (to reduce friction on foot)

Brgds,
Esuperbaby

Re: Stage II but puzzle with the chemo.. : (

Posted: Sat Jan 19, 2019 11:18 pm
by esuperbaby
Beckster wrote:
esuperbaby wrote:Dear all,

I have seen 2 Oncologist and both suggested to go for the 8 cycles Xelonda .. they explained the side effect as you guys and reassurance that most people can tolerate this period ..

So, probably I would make up my mind and go for the chemo “journey”

Thanks again for all your support and pls recommend further tips if any.. so far, I marked down the below:

- drink more water
- apply more cream on hand and foot
- avoid too much folic acid

Thank you again and you all really too kind !

Best Regards,
Esupeebaby


I am glad you found the information you needed to make a desicion. I did Xeloda only for 6 months. People did not know that I was on chemo..I did not lose my hair and did not lose weight. In fact, I gained 10 pounds! I never had nausea and would have a couple martinis on my days off of chemo. I did suffer from hand and foot that affected me walking long distances after the 3rd round, but my onc adjusted my treatment plan and it worked. I went out, cleaned the house, worked part time (I am retired) and took a nap when I got tired. All in all, it was quite doable. I would advise you to drink plenty of water, by some "Utterly Smooth" for your hands and feet and eat before taking the pills. You will be ready to go for summer! If you have any questions while on Xeloda, message me and I can give you additional tips if needed. YOU CAN DO THIS!!!!


Dear Beckster,

I finally decided to go for Xelonda, thanks a lot for all of your valuable info and comments before !

Please kindly advise the additinal tips for me to pass through the period of having Xelonda .. thank you so much !

Brgds.
Esuperbaby