Delaying treatment?

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MCK
Posts: 4
Joined: Thu Dec 27, 2018 9:17 am

Re: Delaying treatment?

Postby MCK » Wed Jan 09, 2019 10:05 pm

AmyG, glad you and your doctor have have a plan on the baby being induced. It sounds like you are comfortable with 34 weeks and your doctor is on board. Congrats for that! Question: how did the spot on your liver originally get diagnosed? Was it during the resection? My doctor wants to do follow up flexoid sig tests, but I've ready some liver spots are only detected by sonogram. Just trying to gather information to ask my doctor about. Thank you.
51yo mom of 4
DX 11-30-18
18mm poorly differentiated adenocarcinoma
MRI 12-5-18 NED outside colon
12/18 lower anterior resection
12/24 pathology: 0/6 lymph nodes
Margins clear
T1N0M0G3

AmyG
Posts: 18
Joined: Tue Dec 25, 2018 8:08 pm

Re: Delaying treatment?

Postby AmyG » Wed Jan 09, 2019 11:43 pm

The day I had my surgical consult for my bowel resection, they did an ultrasound of my liver to check for any spots. One was found and noted, was set for biopsy during my surgery.

However, once they were in there they couldn't get to it, meaning it wasn't on the surface of the liver. I had 18 lymphnodes examined and all were cancer free so the liver issue was thought to be something benign, but was always going to be looked at to rule out metastatic issues.

MRI deemed it suspicious, biopsy confirmed it.

It was super easy to see via ultrasound the first time in the surgeon's office, the MRI and during the biopsy.
42 dx @ 9wks pregnant w/baby #8 8/18
Originally thought to be stage 2, no lymphnodes involved 9/18
Spot on liver found prior to bowel resection 9/18
Liver biopsy, it's malignant 12/18
Stage IV, 1 liver met 4.7cm
2019 plan is to deliver baby early and start FOLFOX w/Avastin

MCK
Posts: 4
Joined: Thu Dec 27, 2018 9:17 am

Re: Delaying treatment?

Postby MCK » Thu Jan 10, 2019 8:40 pm

AmyG, thanks so much for the info. I am going to request/demand a ultrasound for my liver. This whole time I thought the MRI looked at my liver, and after reading the MRI report for the 100th time I learned it didn't.

Best wishes on your marathon and your baby; keep us posted!
51yo mom of 4
DX 11-30-18
18mm poorly differentiated adenocarcinoma
MRI 12-5-18 NED outside colon
12/18 lower anterior resection
12/24 pathology: 0/6 lymph nodes
Margins clear
T1N0M0G3

AmyG
Posts: 18
Joined: Tue Dec 25, 2018 8:08 pm

Re: Delaying treatment?

Postby AmyG » Thu Jan 10, 2019 9:20 pm

Oh you are so welcome!!

I'm waiting on an appointment for another ultrasound to check the status of my spot, so it's a totally appropriate way to find something and measure it. MRI can rule out lots of things but as far as I know, a biopsy is the only way to be sure if something is or isn't malignant.

Hope it all works out for you!
42 dx @ 9wks pregnant w/baby #8 8/18
Originally thought to be stage 2, no lymphnodes involved 9/18
Spot on liver found prior to bowel resection 9/18
Liver biopsy, it's malignant 12/18
Stage IV, 1 liver met 4.7cm
2019 plan is to deliver baby early and start FOLFOX w/Avastin

stu
Posts: 950
Joined: Sat Aug 17, 2013 5:46 pm

Re: Delaying treatment?

Postby stu » Fri Jan 11, 2019 2:53 am

Amy I could see as one of the models for the colon club Calendar in the future !!
Stu
Last edited by stu on Fri Jan 11, 2019 6:34 pm, edited 1 time in total.
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

AmyG
Posts: 18
Joined: Tue Dec 25, 2018 8:08 pm

Re: Delaying treatment?

Postby AmyG » Fri Jan 11, 2019 6:09 pm

I'm not sure what all is involved with that!! :lol: That could be totally out of my league.
42 dx @ 9wks pregnant w/baby #8 8/18
Originally thought to be stage 2, no lymphnodes involved 9/18
Spot on liver found prior to bowel resection 9/18
Liver biopsy, it's malignant 12/18
Stage IV, 1 liver met 4.7cm
2019 plan is to deliver baby early and start FOLFOX w/Avastin

stu
Posts: 950
Joined: Sat Aug 17, 2013 5:46 pm

Re: Delaying treatment?

Postby stu » Fri Jan 11, 2019 6:39 pm

Sorry for the spelling . That version is actually a place in Scotland!

You sound perfect for it . :lol:

Run a marathon ... pose for a photo ! You would have it done and dusted by lunchtime.

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


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