Still NED!!!!

Please feel free to read, share your thoughts, your stories and connect with others!
mariane
Posts: 649
Joined: Sun Sep 13, 2015 6:16 pm

Re: Still NED!!!!

Postby mariane » Sat Dec 22, 2018 12:50 am

Congratulations!!! Wonderful news!!!
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

DarknessEmbraced
Posts: 3256
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Sat Dec 22, 2018 10:48 am

Thank you Ipas, Hope and mariane! Happy Holidays! I hope they do too!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Caat55
Posts: 590
Joined: Sat Dec 23, 2017 6:01 pm

Re: Still NED!!!!

Postby Caat55 » Tue Dec 25, 2018 3:50 pm

Wonderful news!
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

User avatar
CRguy
Posts: 9789
Joined: Sun Feb 10, 2008 6:00 pm

Re: Still NED!!!!

Postby CRguy » Wed Dec 26, 2018 1:54 am

Great news DE
kick ASS
kick colorectal ASS and take names homie

Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3256
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Sat Dec 29, 2018 11:13 am

Thank you Caat55 and CRguy! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Still NED!!!!

Postby Steph20021 » Tue Jan 01, 2019 1:13 am

I’m so happy for you DE! Now up next, fixing this pain issue for you! Onwards and upwards!
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

User avatar
LPL
Posts: 565
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Still NED!!!!

Postby LPL » Sun Jan 06, 2019 3:54 am

Wonderful to hear normal CT-scan :)
Big congratulations DE !
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

DarknessEmbraced
Posts: 3256
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Sat Jan 12, 2019 1:52 pm

Thank you Steph and LPL! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

peanut_8
Posts: 2296
Joined: Sun May 25, 2014 1:31 pm

Re: Still NED!!!!

Postby peanut_8 » Sat Jan 12, 2019 4:51 pm

How have you been feeling lately, DE? Has the painful cramping etc. gotten better with your new meds? Hope so.
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

User avatar
CRguy
Posts: 9789
Joined: Sun Feb 10, 2008 6:00 pm

Re: Still NED!!!!

Postby CRguy » Sat Jan 19, 2019 12:15 pm

Sending you best wishes DE
hoping things are improving for you in 2019 !

Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3256
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Still NED!!!!

Postby DarknessEmbraced » Sun Jan 20, 2019 11:11 am

The anti-spasmodic at higher dosage hasn't really helped with the cramping. I haven't had another episode of horrible cramping and bleeding.(ischemic colitis) I don't know if the aspirin is helping or not. I have calcium deposits in my kidneys and have been having lots of kidney pain. I have tylenol with codeine as needed. I see my family doctor at the end of January to get her to send an urgent referral to the endocrinologist.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 37 guests