A year ago

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Capri
Posts: 80
Joined: Thu Apr 19, 2018 5:59 pm

A year ago

Postby Capri » Thu Dec 20, 2018 3:02 pm

It was on Dec. 28, 2017 that my son informed me that he had colon cancer. Now, nearly a year later, after surgery and 12 rounds of chemo, he is doing very well. A year ago I was terrified. I know he is not out of the woods yet, but it is so good to see him without the chemo side effects, and with his good appetite, color and energy back. I pray this continues for him. I hope one day that I can write here that he is CURED.

I know that many of you are just starting on your journey. Some of you are watching your loved ones slip away. Many of you are NED and have been for years--that is fantastic! It's never easy fighting this battle, not for the patient nor their loved ones. I hope it gives you some small encouragement to know that I pray twice daily for my son and include all of you here on this forum and will continue to do so. Many others are praying too. Hold onto hope, keep fighting, keep the faith! I wish you all love, peace and happiness during this holy season.
Mom to son 46 yo at Dx (2017)
1/18 Robotic resection, sigmoid adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 - 7/30/18 Port placed; completed 12 cycles of FOLFOX
6/18 Put on Early surveillance CT,PET scan-normal. Neuropathy has started.
11/18 Clean colonoscopy; 11/20 CT normal.
2019 to 7/22 colonoscopies, CTs neck to groin have been normal.

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: A year ago

Postby Punky44 » Thu Dec 20, 2018 5:48 pm

So happy for the good news with your son!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Capri
Posts: 80
Joined: Thu Apr 19, 2018 5:59 pm

Re: A year ago

Postby Capri » Thu Dec 20, 2018 9:03 pm

Thank you Punky; I hope & pray that your mother does well. Happy holidays to you both.
Mom to son 46 yo at Dx (2017)
1/18 Robotic resection, sigmoid adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 - 7/30/18 Port placed; completed 12 cycles of FOLFOX
6/18 Put on Early surveillance CT,PET scan-normal. Neuropathy has started.
11/18 Clean colonoscopy; 11/20 CT normal.
2019 to 7/22 colonoscopies, CTs neck to groin have been normal.

zephyr
Posts: 363
Joined: Thu Aug 18, 2016 7:31 am

Re: A year ago

Postby zephyr » Fri Dec 21, 2018 9:41 am

Thank you for the update and for including all of us in your prayers.
Nov-2009 Early stage CRC, routine colonoscopy
2010-2014 F/U colonoscopies, all clear
Jun-2016 CRC during F/U colonoscopy, surgery, Stage 4, KRAS, MSS
Aug-2016-May-2018 Folfox, 5FU, Folfiri & Avastin
Aug/Sep-2018 YAG laser surgeries (Germany), 11 nodules removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 Dec-2020 Xeloda/Avastin, SBRT, cont. Xeloda/Avastin
Mar-2021 Forfiri/Avastin
Mar-2022 Ablation & Thoracotomy
Feb-2023 Folfiri & Avastin
Nov-2023 Xeloda & Avastin

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: A year ago

Postby DarknessEmbraced » Fri Dec 21, 2018 10:17 am

I'm so glad your son is doing well! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Capri
Posts: 80
Joined: Thu Apr 19, 2018 5:59 pm

Re: A year ago

Postby Capri » Fri Dec 21, 2018 10:26 am

Thank you Darkness, and I pray that you continue to be NED!!
Mom to son 46 yo at Dx (2017)
1/18 Robotic resection, sigmoid adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 - 7/30/18 Port placed; completed 12 cycles of FOLFOX
6/18 Put on Early surveillance CT,PET scan-normal. Neuropathy has started.
11/18 Clean colonoscopy; 11/20 CT normal.
2019 to 7/22 colonoscopies, CTs neck to groin have been normal.

Capri
Posts: 80
Joined: Thu Apr 19, 2018 5:59 pm

Re: A year ago

Postby Capri » Fri Dec 21, 2018 10:27 am

zephyr wrote:Thank you for the update and for including all of us in your prayers.


You're most welcome; I definitely will continue my prayers for everyone here.
Mom to son 46 yo at Dx (2017)
1/18 Robotic resection, sigmoid adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 - 7/30/18 Port placed; completed 12 cycles of FOLFOX
6/18 Put on Early surveillance CT,PET scan-normal. Neuropathy has started.
11/18 Clean colonoscopy; 11/20 CT normal.
2019 to 7/22 colonoscopies, CTs neck to groin have been normal.


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