Mets disappeared

Please feel free to read, share your thoughts, your stories and connect with others!
Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Mets disappeared

Postby Trying » Wed Dec 19, 2018 4:19 pm

Hello all. My dr informed me 8 of my liver mets are shown to completely disapeared. Sorry if i posted this already..chemo brain. Unfortunately the mets that are remaining are keeping me from surgery due to being on arteries for now
..but staying hopeful.
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

Jannine
Posts: 189
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Mets disappeared

Postby Jannine » Wed Dec 19, 2018 4:45 pm

That is excellent news! I hope the rest of them shrink and disappear as well. I'm hoping for the best for you!
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

Punky44
Posts: 440
Joined: Mon Oct 01, 2018 4:29 pm

Re: Mets disappeared

Postby Punky44 » Wed Dec 19, 2018 5:13 pm

Awesome news! Hoping you will get to a spot where surgery is an option soon!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3
Latest update: 6/20–Clear CT, normal CEA

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

stu
Posts: 1355
Joined: Sat Aug 17, 2013 5:46 pm

Re: Mets disappeared

Postby stu » Wed Dec 19, 2018 5:26 pm

Excellent news . Keep going . You are heading in a good direction . Disappearing acts are always welcome around here !! :D
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

dliu
Posts: 66
Joined: Sun Jun 03, 2018 7:16 am

Re: Mets disappeared

Postby dliu » Wed Dec 19, 2018 6:16 pm

This is wonderful news, you are not just Trying, you are Succeeding!
Caring for my mum, 65
Sigmoid resection, multiple liver mets
09/05/2018 Dx Stage IV, 6/11 LN - KRAS G12V
28/05/2018 First round of FOLFOX + Avastin

CEA down from 6000+ (05/2018) to 843 (08/2018) to 377 (11/2018)
9/10 rounds with Oxaliplatin
8/10 rounds with Bevacizumab

Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Re: Mets disappeared

Postby Trying » Wed Dec 19, 2018 10:57 pm

Thank you!
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

Detox
Posts: 56
Joined: Fri Apr 28, 2017 5:27 pm

Re: Mets disappeared

Postby Detox » Wed Dec 19, 2018 11:08 pm

Great to hear and keep pushing for surgery and ask about doing HIPEC for your peritoneal met.

This can actually be done simultaneously with liver surgery if I'm not mistaken. So definitely look into this.

Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Re: Mets disappeared

Postby Trying » Thu Dec 20, 2018 12:41 am

Thank you. I have an appt with a surgeon soon
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

SGNYC
Posts: 35
Joined: Mon Sep 03, 2018 9:20 pm

Re: Mets disappeared

Postby SGNYC » Thu Dec 20, 2018 1:21 am

This is great news!
Wife to DH, 44
DX July 18 - RC at Rectosigmoid
Adenocarcinoma, Mod diff
T3N1M1
Stage IV (but MSK said not a true Stage IV at Dx)
Pos nodes: 1/18
1 Liver Met and 1 Lung Met - liver Met dead tissue at surgery, hence MSK M1 status
Baseline CEA value of 25, now 3.4
LAR (Robotic)/Liver resect(dead tissue), VATS lung - clear margins
Temp Ileo- Reversal Feb 19
Folfox - 5 Rounds Neoadj, 3 rounds Adj, then discontinued Oxali and 4 rounds just 5FU
NED and Reversal Feb 2019 - clear contrast CT, clear contrast MRI

Koreysue
Posts: 153
Joined: Mon Apr 30, 2018 2:36 pm

Re: Mets disappeared

Postby Koreysue » Thu Dec 20, 2018 2:20 am

Awesome news!
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8

DarknessEmbraced
Posts: 3466
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Mets disappeared

Postby DarknessEmbraced » Thu Dec 20, 2018 12:30 pm

Congratulations! That's wonderful! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 4 guests