I had to give up driving my car....

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I had to give up driving my car....

Postby mobrouser » Sun Dec 16, 2018 11:21 pm

.....this weekend. Thank you neuropathy.
I have mentioned this before in other threads how I would hate if it happened and this week it did.
On Wednesday I went to a company Christmas lunch. I could have taken the subway but I chose to do the 20 minute walk to get there and then back again because I was told I should aim for 10,000 steps per day. I don't know if it was the cause but that night I couldn't feel the clutch pedal properly while I was driving home and had more than a few episodes that made me uncomfortable. I stayed home on Thursday, drove on Friday again with some episodes and decided on Saturday that I can't drive my beloved blue tank.
I have driven a standard for 40 years. And I absolutely hate that cancer has taken this away from me. For now I can drive an automatic, but now wonder if the neuropathy is going to progress to the point that I can't drive at all.
It's been 3 months since I finished chemo and 10 of 12 were at 75%, why me? My feet still feel like they are in wet sand. All the time.

(Rant over)
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

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Location: Portland, Ore

Re: I had to give up driving my car....

Postby MissMolly » Mon Dec 17, 2018 6:08 am

You have my genuine empathy and understanding.

I am genuinely sorry that the effects of neuropathy are significant enough to cause you to make the decision to curtail driving your standard transmission car - at least, for now.

I had to make a similar decision to forfeit driving a little over a year ago. Unpredictable hypotension of Addison’s made me a risk to be behind a wheel. I came to the decision on my own. It was not just for my safety that I parted ways with the keys. Honestly, it was more my concern for the high possibility that I would injury/harm others, assigned liability risk, and legal peril.

My strong opinion: Driving is a privilege. Driving is not a right.

I applaud you for having the inner wisdom to make the right decision, based on the effects of your neuropathy today.

It is a decision you can review and adjust if/as sensation returns and allows for safe driving.

My brother has intractable epilepsy. He has never driven a car. My brother gets out-and-about using walking as his primary means; he also uses Portland’s light rail system and keeps an account with a local cab company. He knows Portland, Oregon like the back of his hand because he has witnessed the city as a pedestrian and taken the time to really experience it. There can be unexpected benefits in not being in a car and dashing about.

I share my brother’s story to let you know that other people also have health situations that do not allow for driving.

The unvarnished reality of loss of health is that it brings additional losses and collateral damage. For me, many of these co-existing losses have been more painful to me to adjust to than the actual health conditions that I deal with.

Take solace and comfort in knowing that you have made the right decision in not getting behind the wheel of your standard transmission car. You have shown strength of character in putting the safety of others above your own love of driving and its feelings of independence.

For me, the decision to not drive is a forever decision. And I am OK with that. It’s amazing what all we can adjust to.
Dear friend to Bella Piazza, former Colon Club member (NWGirl).
I have a permanent ileostomy and offer advice on living with an ostomy - in loving remembrance of Bella
I am on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression. I live a simple life due to frail health.

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Location: Maryland, USA

Re: I had to give up driving my car....

Postby Jannine » Mon Dec 17, 2018 8:04 am

Mobrouser, that truly sucks. I don't have any words of wisdom, but just wanted to let you know that I feel for you.

It's been 3 weeks since my last oxali dose and my neuropathy is not done progressing yet, I can tell.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

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Joined: Tue Jul 21, 2015 7:00 pm

Re: I had to give up driving my car....

Postby macpudd » Mon Dec 17, 2018 9:24 am

I have not being able to drive since January last. Because of GBM4 legally I cant drive. 3 years ago while on Folox I stopped for a while because of neuropathy. I really miss my motorcycle. Its such a loss of independence. Hopefully your neuropatyh will clear and can get back to your car. From what I've seen neuropathy ccertainly reduces for the majority of people when they have a few months after chemo.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor
Mri Jan 2019 tumour growth Feb Pet scan tumour 6cm, no surgery, starting Avastin also Lomustine

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Joined: Mon Apr 30, 2018 2:36 pm

Re: I had to give up driving my car....

Postby Koreysue » Mon Dec 17, 2018 2:08 pm

Sorry to hear this- I’m sure it’s frustrating. I wanted to offer my story- It’s been almost a year since I finished chemo. I noticed that my neuropathy got a bit worse before it got better. It was my whole foot, but now it’s just the toes. I did have acupuncture- not sure if that helped, or just time.
Hope it improves for you!
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6.1
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5 (happy to see a lower number)

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Re: I had to give up driving my car....

Postby ginabeewell » Mon Dec 17, 2018 11:57 pm

I'm sorry you're at this point, but wanted to ask if you tried acupuncture? My acupuncturist has been doing laser treatments on my fingers and that has kept the nueropathy at bay for my first five cycles of chemo. I have it, but it resolving about five days after each treatment. Might be worth a shot if you haven't yet pursued? Considered experimental but seems to be working for me.
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

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Joined: Sun May 25, 2014 1:31 pm

Re: I had to give up driving my car....

Postby peanut_8 » Tue Dec 18, 2018 10:53 am

Sorry to hear about your neuropathy, mob.

Here''s a link to an old thread where a topical cream was formulated which helped someone with pretty severe neuropathy.


Best Wishes,
female, diagnosed Jan 14, RC stage 2a, age 56
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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