Hello please help.

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del
Posts: 109
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: Hello please help.

Postby del » Sun Jan 13, 2019 6:47 am

DVT is a type of blood clot, usually in your legs. Walking as much as possible reduces your risk.

I don't recall getting much swelling anywhere after my operation. Have you spoken to your surgeon about it?
Male, 33 @ dx, stage 1 RC (T1N0M0 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE

RaiderGuy27
Posts: 13
Joined: Fri Dec 14, 2018 11:40 am

Re: Hello please help.

Postby RaiderGuy27 » Sun Jan 13, 2019 10:11 pm

del wrote:DVT is a type of blood clot, usually in your legs. Walking as much as possible reduces your risk.

I don't recall getting much swelling anywhere after my operation. Have you spoken to your surgeon about it?

Yes supposedly its normal but i dont believe it ...

del
Posts: 109
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: Hello please help.

Postby del » Mon Jan 14, 2019 6:00 am

Your body has been through a lot. I know it's hard but try not to worry too much, give it some time to heal.
Male, 33 @ dx, stage 1 RC (T1N0M0 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE

RaiderGuy27
Posts: 13
Joined: Fri Dec 14, 2018 11:40 am

Re: Hello please help.

Postby RaiderGuy27 » Tue Jan 15, 2019 1:18 pm

del wrote:Your body has been through a lot. I know it's hard but try not to worry too much, give it some time to heal.


Well another setback. Had ulcers and I lost an insane amount of blood. Had a massive blood transfusion now in ICU ... surgery was on the 4th so im on day #11 ... this is insane

RaiderGuy27
Posts: 13
Joined: Fri Dec 14, 2018 11:40 am

Re: Hello please help.

Postby RaiderGuy27 » Tue Jan 15, 2019 9:46 pm

Bump ...

del
Posts: 109
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: Hello please help.

Postby del » Wed Jan 16, 2019 3:51 am

Geez, you don't get a break, do you? I'm so sorry you are having so many complications. Where are the ulcers? I don't have any experience with ulcers so unfortunately I don't have any advice for you. Hang in there and I really hope things turn around for you and you can go home soon!
Male, 33 @ dx, stage 1 RC (T1N0M0 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE

teacher2017
Posts: 245
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: Hello please help.

Postby teacher2017 » Thu Jan 17, 2019 5:58 am

I’m sorry I must be missing something. You regret getting the surgery? What? You are so lucky to be stage 1!!!! Some of us ran to surgery and had it in our lymph’s and later spread! Stop complaining. You have no idea how fortunate you are. I WISH to all that’s holy I had stage 1 and ulcers. Good luck to you and please learn to count those blessings. Life is too precious.
48 yo female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection 9/22/17
6.1cm tumor
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18
Cea level- 1.5 10/1/18
Cea level- 1.2 12/1/18
Clear scan- 12/5/18
Cea level- 1.1 3/2/19
Clear scan- 3/1/19
Cea level- 1.2 6/2/19
Clear scan- 6/2/19
Colonoscopy - 7/8/19 CLEAR
Still here!!!!!

RaiderGuy27
Posts: 13
Joined: Fri Dec 14, 2018 11:40 am

Re: Hello please help.

Postby RaiderGuy27 » Thu Jan 17, 2019 9:49 am

Well they clipped the ulcer 3 days ago. And it happend again yesterday just not as bad luckily i was still in ICU. same ulcer plus another. My blood level dropped and i needed another massive transfusion and a scope surgery to clip the ulcers ... fml

RaiderGuy27
Posts: 13
Joined: Fri Dec 14, 2018 11:40 am

Re: Hello please help.

Postby RaiderGuy27 » Thu Jan 17, 2019 9:52 am

Also forgot to mention the 1st time i went to ICU a few days after surgery I was officially diagnosed with CML Leukemia :\
I believe i got it from the chemo I did in 2016 but who knows...

del
Posts: 109
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: Hello please help.

Postby del » Thu Jan 17, 2019 7:09 pm

RaiderGuy27 wrote:Also forgot to mention the 1st time i went to ICU a few days after surgery I was officially diagnosed with CML Leukemia :\
I believe i got it from the chemo I did in 2016 but who knows...


I don't know much about leukemia but I believe it is highly treatable these days. What is the plan for treating that?

If you have a chance, it would be helpful if you created a signature for your account:
https://coloncancersupport.colonclub.co ... 97#p421597
Male, 33 @ dx, stage 1 RC (T1N0M0 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE

RaiderGuy27
Posts: 13
Joined: Fri Dec 14, 2018 11:40 am

Re: Hello please help.

Postby RaiderGuy27 » Fri Jan 18, 2019 7:36 am

They were giving me a chemo pill (hydroxyurea) but they think thats what may have caused the ulcers so they took me off. After i recover from this surgery theyre thinking dasatinib.

Does anyone know when my testicle swelling will go back down? :\

Jannine
Posts: 161
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Hello please help.

Postby Jannine » Fri Jan 18, 2019 7:51 am

Ugh, it sounds like you are having a really rough time. I don't have any advice since I haven't been in your shoes, but I just wanted to say I'm rooting for you. I hope things improve very soon. Keep us posted.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

del
Posts: 109
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: Hello please help.

Postby del » Fri Jan 18, 2019 7:26 pm

Did you ask your surgeon about the testicle swelling? And where was your tumour located?
Male, 33 @ dx, stage 1 RC (T1N0M0 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE

RaiderGuy27
Posts: 13
Joined: Fri Dec 14, 2018 11:40 am

Re: Hello please help.

Postby RaiderGuy27 » Sat Jan 19, 2019 12:31 pm

del wrote:Did you ask your surgeon about the testicle swelling? And where was your tumour located?


Yes they said the more i walk and urinate it should go back to normal. 4 to 6 weeks post surgery. My tumor was in my lower rectum on the muscle thats why i needed a ostomy. Its the reason i put of surgery for over 2 years i didnt want a bag the rest of my life. And I do already hate it :\
Its really loud will it always be like this?

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Hello please help.

Postby LPL » Sat Jan 19, 2019 1:21 pm

RaiderGuy27 wrote:
del wrote:Did you ask your surgeon about the testicle swelling? And where was your tumour located?


Yes they said the more i walk and urinate it should go back to normal. 4 to 6 weeks post surgery. My tumor was in my lower rectum on the muscle thats why i needed a ostomy. Its the reason i put of surgery for over 2 years i didnt want a bag the rest of my life. And I do already hate it :\
Its really loud will it always be like this?

Please take Miss Molly’s advice and join the ostomy group she mentioned in her reply to you. As I understand it there are much knowledge and tips there.
Miss Molly’s post viewtopic.php?f=1&t=61403&start=15#p485818
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met


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