CEA Levels

Please feel free to read, share your thoughts, your stories and connect with others!
Rikimaroo
Posts: 184
Joined: Tue Dec 20, 2016 8:48 pm

Re: CEA Levels

Postby Rikimaroo » Sat Mar 16, 2019 1:04 pm

Yeah I got constipated when I was on FOLFOX had to take stool softener but I think the damage was already done to by booty hole. The 2nd time I did FOLFOX I had ileostomy it was not a problem, just the side affects of oxi (which sucked). I read FOLFIRI is not as hard as FOLFOX, but I might have some trouble if I either have diarrhea or constipation with the ileostomy reversal, dealing with that is already annoying, things have got a lot better, but not there just yet. I guess Imodium will be my best friend. I already take two at night before going to bed, might take a stop on the Metamucil.

Will ask the nurses/doc. I really hope I can beat this thing and the tumor becomes resectable at the local spot.
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

Beckster
Posts: 342
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: CEA Levels

Postby Beckster » Mon Mar 18, 2019 4:34 pm

NHMike wrote:
Beckster wrote:Mike...reference range is the same...the type of testing assay changed.


I think that it would concern me then. The same thing happened to me and it eventually went above the normal range and the oncologist ordered a CT scan which found nothing. It later went down. I'm pretty sure that the rise in CEA was due to a big increase in exercise. But it bothered me until it went back down to normal (after ending the big increase in exercise). I wish that we had a list of things that caused it to rise.

It's really low now, about 9 months out.


I just got back from the onc...he was not concerned about the .6 increase in my cea. He said that if I took the test 3 times in one day, it would be different each time. He thinks that it increased from the antibiotic for my sinus/tooth problem. Apparently the antibiotic that my dentist put me on plays havoc on the intestines.
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Grade: G3 (surgical) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/17, 12/17, 6/18, 12/18 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5
Clear Colonoscopy 10/17 :D

NHMike
Posts: 1909
Joined: Fri Jul 21, 2017 3:43 am

Re: CEA Levels

Postby NHMike » Mon Mar 18, 2019 5:14 pm

Beckster wrote:I just got back from the onc...he was not concerned about the .6 increase in my cea. He said that if I took the test 3 times in one day, it would be different each time. He thinks that it increased from the antibiotic for my sinus/tooth problem. Apparently the antibiotic that my dentist put me on plays havoc on the intestines.


That sounds plausible. I think that all antibiotics that aren't topical mess with the GI system. The listed symptoms are usually GI things.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Rikimaroo
Posts: 184
Joined: Tue Dec 20, 2016 8:48 pm

Re: CEA Levels

Postby Rikimaroo » Tue Mar 19, 2019 7:23 am

At the office to begin folfiri here we go folks
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

stu
Posts: 1046
Joined: Sat Aug 17, 2013 5:46 pm

Re: CEA Levels

Postby stu » Tue Mar 19, 2019 8:15 am

Hope it all goes smoothly .
Thinking of you ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Koreysue
Posts: 93
Joined: Mon Apr 30, 2018 2:36 pm

Re: CEA Levels

Postby Koreysue » Tue Mar 19, 2019 9:36 am

Rikimaroo wrote:At the office to begin folfiri here we go folks

Thinking of you!
Korey
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2

Rikimaroo
Posts: 184
Joined: Tue Dec 20, 2016 8:48 pm

Re: CEA Levels

Postby Rikimaroo » Tue Mar 19, 2019 10:55 am

Thank you ❤️
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

Punky44
Posts: 269
Joined: Mon Oct 01, 2018 4:29 pm

Re: CEA Levels

Postby Punky44 » Tue Mar 19, 2019 12:41 pm

You got this!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19; CEA dropped to 6.2
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

stu
Posts: 1046
Joined: Sat Aug 17, 2013 5:46 pm

Re: CEA Levels

Postby stu » Tue Apr 02, 2019 3:36 am

Hi Rikiramoo,

How are you getting on with your treatment ? Hope you are tolerating it ok .

After not too long a wait mum phoned yesterday . Despite her CEA remaining high her scan was clear . Given it went up when her blood clot arrived I think it’s connected . But only guessing really . Once we see her oncologist we can chat it through .

I know people search when they are concerned and given she is ten years into a stage 4 diagnosis I think it might be of interest to future readers .

We are learning all the time about the implications of so much treatment . However she still is looking good given the amount she has endured .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Claudine
Posts: 9
Joined: Tue Mar 12, 2019 2:41 pm
Facebook Username: Claudine Tobalske

Re: CEA Levels

Postby Claudine » Tue Apr 02, 2019 12:21 pm

Good luck with Folfiri Rikiramoo! My husband had his second treatment last Friday. So far side effects seem to be mostly tiredness the day after the chemo pump is removed (he keeps it for 46 hours), and acid reflux; he's starting to lose his beard... Big clump came off in the shower this morning. But his CEA levels dropped from 58 to 17 after only one cycle, so we don't care about hair loss!
Wife of Dx 04/18 (51 yrs old then)
No primary found, lytic tumor L4 vertebrae, CEA 10
Radiation 04/18
Resection small intestine 05/18 (activity on PET scan, but no cancer found)
Xelox * 6, 05/17 to 10/18
5.3 cm hypermetabolic left adrenal mass 01/19
SBRT L4 02/19
Folfiri + Avastin
CEA 58 03/15
CEA 17 03/29

Rikimaroo
Posts: 184
Joined: Tue Dec 20, 2016 8:48 pm

Re: CEA Levels

Postby Rikimaroo » Sat Apr 06, 2019 5:21 pm

Hi Guys,

Things have been moving along. CEA went from 22.9 to 16 after first treatment. I just did 2nd one Wednesday. yeah I am mostly tired and nauseous. I actually vomited for the first time since being on this cancer journey. I hate the feeling.

I tried some marijuana which I never touched in my life and it seemed to have calm me down and helped with the nausea and sleeping. I really hope and pray I can beat this thing, it is rather frustrating seeing it come back.

Stu - hope mom bloodclot clears, I had one of those and it was while I was on avastin. I am taking avastin again and didn't get it this time. We stopped it last time. Maybe Avastin is the trump card I missed out on last treatment and it will do it.

Plan is to 4 rounds for Folfir then PET Scan, and possibly SBRT to lungs and pelvic. and then maybe more chemo after for mop up as I suggested. I hate chemo so much!!! It is so unsettling. Also My hair is starting to fall out, so yay again, I think it will thin out like on Folfox.
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

Pyro
Posts: 152
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: CEA Levels

Postby Pyro » Sat Apr 06, 2019 6:45 pm

Go Avastin! Watch your blood pressure though. I had never done the weed before either, I was scared of the devils lettuce, but it helps tremendously. Nobody in my career field (now retired) would believe what a stoner I’ve become.
Aug 2015- Diag Stage 4 CC with mets to liver (38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not a surgery candidate for liver
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery, Dr. Vauthey
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda, CEA @30, shit still here

Buxton
Posts: 6
Joined: Fri Feb 28, 2014 4:34 am

Re: CEA Levels

Postby Buxton » Sun Apr 07, 2019 1:07 am

Koreysue wrote:CEA checks make me incredibly nervous. My number is up, but has stayed basically the same for 4 months. My CT and PET in august 2018 were clear. My onc says that great that there was no big change in 4 months.
My dr. doesnt offer much about the cause of elevation. I’ve looked up a lot of stuff about it, and it does seem that there are reasons it can be elevated that are not cancer related. Stomach ulcers, gastritis, tooth decay, thyroid issues, etc.
I know it’s hard not to worry.
Korey


Yes, these blood tests are very stressful! I went through 5 years of regular CEA tests etc and they were all ok. But every time, the nerves surfaced, even up to the last one in November. Now it's starting again, as I have to have PSA tests for prostate cancer after radiotherapy. If there are any ways to deal with this anxiety, I would love to know. Apart from alcohol and tranquillisers that is! (I don't drink and the Lorazopan is for dentist appointments.) I try to keep busy, breathe deeply etc and have even seen a councellor. She said to live in the 'now,' but of course sometimes 'now' is waiting for the nurse to ring with the results.

User avatar
O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: CEA Levels

Postby O Stoma Mia » Sun Apr 07, 2019 1:21 am

Buxton wrote:... If there are any ways to deal with this anxiety, I would love to know. Apart from alcohol and tranquillisers that is! ...

Stress Reduction Programs (old post)
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59711&p=474430#p474430

stu
Posts: 1046
Joined: Sat Aug 17, 2013 5:46 pm

Re: CEA Levels

Postby stu » Sun Apr 07, 2019 1:38 pm

Glad to see that CEA trending downwards . Always nice to know it’s doing its job . Hope it continues in the same way .
You sound as though you have a good plan drawn up .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: AmyG, natelaugh and 39 guests