CEA Levels

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Rikimaroo
Posts: 174
Joined: Tue Dec 20, 2016 8:48 pm

Re: CEA Levels

Postby Rikimaroo » Wed Feb 20, 2019 12:44 pm

Thanks and hope your Mom's scans come back clean. I am just waiting for my scans in March. Trying to stay positive. I hope it's nothing, but if something benign, or inflammation. Either way I just have to keep on trucking, I was hoping to be done with all of this, but only time will tell. Thanks for checking in on me. :)
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

stu
Posts: 1033
Joined: Sat Aug 17, 2013 5:46 pm

Re: CEA Levels

Postby stu » Wed Feb 20, 2019 2:32 pm

Hi .
Glad to hear you are doing well .

Starting to think my mum’s tumour markers are raised due to a thrombosis they discovered at the last scan . I will need to speak to her oncologist and get a bit more input. The location can cause a bit of ischemia and abdominal issues with documented rises in CEA . Wonder if this is why they are scanning to see if it’s occluded further. Not sure .But I shall keep you informed .

One way or another we shall get there .

All the very best . Scan is early March. Takes about two months to get the results .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Rikimaroo
Posts: 174
Joined: Tue Dec 20, 2016 8:48 pm

Re: CEA Levels

Postby Rikimaroo » Wed Feb 20, 2019 3:34 pm

My Scans are March 6th MRI and 8th Pet Scan. I usually get the result same day if everything is clear, the oncologist releases it to mychart and I can read it. I am hoping its just inflammation from my ileo reversal, but I see others have had reversal without elevated CEA. It's very stressful.

I always remember when I didn't do the surgery back in June of 2017 for the rectal cancer when I was stage 3. I keep thinking I gave myself a death sentence, and I let my family know (parents) because there not a big believer in Doctors, as they think there thieves, so frustrating. I get upset when they try to give me advice, drink LOTS of water, it flushes your system, drink soursop leaves tea, blah blah blah blah.....I know they mean well and just trying to cope with there son, possibly not being around down the road, or going through all of this.

I will keep on trucking, but I hate that I made a bad decision with my young family. I am so disappointed in myself.
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

MCK
Posts: 7
Joined: Thu Dec 27, 2018 9:17 am

Re: CEA Levels

Postby MCK » Thu Feb 21, 2019 8:07 am

Rikimaroo

Give yourself a break. Frankly your decision not to have surgery at that time is consistent with treatment for stage three; typically a resection is only ordered for one or two. You may very well have ended up exactly where you are today even without your family's unusual medical advice. Keep your head up, you are doing great!
51yo mom of 4
DX 11-30-18
18mm poorly differentiated adenocarcinoma
Pelvic MRI 12-5-18 NED outside colon
12/18 lower anterior resection
12/24 pathology: 0/6 lymph nodes
Margins clear
T1N0M0G3
2/11/19 Abdominal CT: sub-cm liver lesion
Waiting on MRI

stu
Posts: 1033
Joined: Sat Aug 17, 2013 5:46 pm

Re: CEA Levels

Postby stu » Fri Feb 22, 2019 6:07 pm

Hi ,
You are going to find a way through this . You made decisions at the time with the information available. Your parents love you but sometimes the best thing we can do as parents is to know when to say nothing . They also are doing their best from their understanding or frame of reference .

Right now nothing is showing , even if it does your oncologist is going to be all over it .

Keep on trucking for a very ,very long time ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

stu
Posts: 1033
Joined: Sat Aug 17, 2013 5:46 pm

Re: CEA Levels

Postby stu » Mon Mar 04, 2019 5:07 am

All the very best with your scans this week . Mum is up today . We will not hear for a very long time .
Hope it’s goid news all the way for you ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Rikimaroo
Posts: 174
Joined: Tue Dec 20, 2016 8:48 pm

Re: CEA Levels

Postby Rikimaroo » Mon Mar 04, 2019 12:22 pm

Thanks Stu. I will let you guys know. Very nervous of course. Thanks for checking in on me :)
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

User avatar
mobrouser
Posts: 129
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: CEA Levels

Postby mobrouser » Mon Mar 04, 2019 12:36 pm

stu,
Two months wait for results is torture. You and Mum are to be congratulated for you stoicism in dealing with this regularly.
My tests and bloodwork are scheduled for next Monday, I will get the results 8 days later. That's long enough.

Cheers, and good results to Mum and Rikimaroo!
8) mob
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Rikimaroo
Posts: 174
Joined: Tue Dec 20, 2016 8:48 pm

Re: CEA Levels

Postby Rikimaroo » Mon Mar 04, 2019 7:31 pm

Yes, sorry Stu, that is incredibly long. Mobrouser, why so long? I usually get results same day if I do in the morning and the oncologist releases to me if he sees no issues. Usually though if there is an issue he might not send to me. Either way I am not 100% sure if that is there reasoning behind it, so this time if I don't see it I might have anxiety. I need CBD oil LOL...
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

Eleda
Posts: 245
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: CEA Levels

Postby Eleda » Tue Mar 05, 2019 7:37 pm

Good luck today Ricky X
Hope all goes well :)

ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

stu
Posts: 1033
Joined: Sat Aug 17, 2013 5:46 pm

Re: CEA Levels

Postby stu » Wed Mar 06, 2019 2:26 am

Hi Mo ,

So good to hear from you . How are you ?

It never used to be so long . We have developed a recruitment problem with radiologists and some scans are now going abroad to be interpreted. The oncologist was left with appointments to give back scan results and they were not through in time . Now she gets the results then makes and appointment. The up side is she is brilliant.

It does mean much longer stretches of your life is dominated by it . Yuck .

Hope life is treating you well . Miss your contributions.

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

NHMike
Posts: 1907
Joined: Fri Jul 21, 2017 3:43 am

Re: CEA Levels

Postby NHMike » Wed Mar 06, 2019 11:42 am

Rikimaroo wrote:Just got CEA results and it came back at 11.4 and of course I am stressed. I really hate this, gives me so much anxiety.

Scans were already prescheded for March 6 and 8 pet and mri. Waiting for a call from oncologist see if he wants to move them up. It could be a false positive but I don’t know.


The stress is completely understandable. My oncologist said that he would get concerned at about 20 - I was "concerned" when it went above normal. I guess we need people that have had it at 11 to know whether it's likely something or nothing.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Rikimaroo
Posts: 174
Joined: Tue Dec 20, 2016 8:48 pm

Re: CEA Levels

Postby Rikimaroo » Wed Mar 06, 2019 12:45 pm

Just had MRI done at 10am EST and the doctor sent me the results at 12:43 PM EST...WOW...Everything Clear with MRI Pelvic region. I am still nervous for Pet Scan which will be done Friday, but I pray this is a good indicator. I am very happy with this news, but you know I can't just be perfectly happy because I know the liver is the next thing to look at and the PetScan is what does that. I Did the CEA today, results are usually in 2 days, so will know by Friday. If that starts going down then thats a very good sign.

Keep you guys posted and thanks for all the comments. Thanks NHMike, that makes me feel a whole lot better.
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

stu
Posts: 1033
Joined: Sat Aug 17, 2013 5:46 pm

Re: CEA Levels

Postby stu » Wed Mar 06, 2019 1:49 pm

Fantastic news . Great big step in the right direction .

You can relax a bit now ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
LPL
Posts: 561
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: CEA Levels

Postby LPL » Wed Mar 06, 2019 1:58 pm

stu wrote:Hi Mo ,

So good to hear from you . How are you ?

It never used to be so long . We have developed a recruitment problem with radiologists and some scans are now going abroad to be interpreted. The oncologist was left with appointments to give back scan results and they were not through in time . Now she gets the results then makes and appointment. The up side is she is brilliant.

It does mean much longer stretches of your life is dominated by it . Yuck .

Hope life is treating you well . Miss your contributions.

Stu

Stu, your in UK right? I highlighted a sentence above.
This sound really bad :( I hope it is temporary. Extra waiting is not something ’we’ like!
Best wishes for a good result.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets


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