Postby mariane » Wed Dec 12, 2018 5:28 pm
Hi!
I am an older Dr. Kemeny's patient and I live in Atlanta, GA. When I did chemo, I used to alternate. I had systemic chemo infusion and FUDR chemo (HAIP) in NY. 3 days later disconnecting and check up in Atlanta. 2 weeks from chemo in NY I got systemic chemo in Atlanta. This system worked very well for me. It still does. I have been off chemo for over 2 years, NED for 3.5 years. I have controls in Atlanta (labs and HAI pump flush), and in NY (scans, labs, another pump flush). NY every 4 months, Atlanta every 4.
I feel very well, my labs all came back to normal. Everything looks good at this moment. Back to my normal self minus fear...
They have currently 5 patients in Atlanta as far as I know. Most of them NEDers, off chemo.
Dr. Kemeny herself introduced me to Dr. Ballard from Piedmont Cancer Center in Atlanta and facilitated all the process for me. She called Dr. Ballard several times to check on me and insisted on no chemo delays to get the best response to chemo possible. It turned out well. I am very grateful to Dr. Kemeny and Dr. Ballard. Dr. Kemeny herself encouraged me to alternate chemo.
Good luck!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016
I praise God for every day with my family!