Heartbroken

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Kelism
Posts: 8
Joined: Thu Oct 25, 2018 1:23 am

Heartbroken

Postby Kelism » Tue Dec 11, 2018 3:54 pm

I haven’t made many posts here but I have gained so much info from reading everyone else’s posts.
My mum peacefully passed away on December 7 at 3:38am. I sat holding her hand while she passed. I had been sleeping over at the hospital for the 5 days before as we had noticed her steady decline. I am so greatful for our amazing nurses keeping her very comfortable.
Hard to imagine we had been out and about on road trips and enjoying amazing food less than 2 months ago. She finished her treatment on October 30.
I look on the bright side that she’s once again with my dad. She had been heartbroken since he passed from kidney cancer 18 years ago.
Caregiver for Mum (67)
07/17- ER CT finds bowel obstruction, ER sigmoid colostomy.
8&10/17 negative scope 01/18 - NegativeCT
03/18 - Ask for reversal. 05/18 - CT shows shadow
06/18 - MRI finds large invasive recto sigmoid tumor
09/18 - Start Xeloda/25 rad treatment, 2 blood trans. PET scan
10/18 -PET: Large invasive tumor,14 mm liver met,lymph nodes,uterus & intestinal Invasion,blocked Ureters and swollen kidneys.Finished chemorad October 30,2018
Became my guardian angel December 7,2018

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Heartbroken

Postby mpbser » Tue Dec 11, 2018 4:35 pm

So sorry to hear about your loss. I am really awful at giving condolences, but my heart goes out to you.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

hiker
Posts: 139
Joined: Thu Aug 09, 2018 10:15 am

Re: Heartbroken

Postby hiker » Tue Dec 11, 2018 4:38 pm

Hey Kelism,

Sounds like your mom passed peacefully. You're a good daughter to be there with her till the end.

God bless.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-12/18
Clear of cancer since surgery

Punky44
Posts: 440
Joined: Mon Oct 01, 2018 4:29 pm

Re: Heartbroken

Postby Punky44 » Tue Dec 11, 2018 5:34 pm

I am so sorry.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3
Latest update: 6/20–Clear CT, normal CEA

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

dliu
Posts: 66
Joined: Sun Jun 03, 2018 7:16 am

Re: Heartbroken

Postby dliu » Tue Dec 11, 2018 6:05 pm

My heart goes out to you. You were wonderful, standing by her side through all this.
Caring for my mum, 65
Sigmoid resection, multiple liver mets
09/05/2018 Dx Stage IV, 6/11 LN - KRAS G12V
28/05/2018 First round of FOLFOX + Avastin

CEA down from 6000+ (05/2018) to 843 (08/2018) to 377 (11/2018)
9/10 rounds with Oxaliplatin
8/10 rounds with Bevacizumab

melissadc76
Posts: 12
Joined: Tue Dec 04, 2018 5:03 pm
Facebook Username: melissa.syria

Re: Heartbroken

Postby melissadc76 » Tue Dec 11, 2018 6:31 pm

Oh, my heart sunk when I read this.

Your mother's story is similar to my husband, only we are just beginning.

Sometimes, I have so much hope, today I just feel like crying.

My heart hurts for you, she wasn't very old. Cancer isn't fair.

<3
Melissa
Caregiver to my DH (48 yo)
5 kids (2 mine 21 & 16, 2 ours 11 & 10, 1 adopting 2)
Dx Sigmoid Adenocarcinoma 10/25/2018
No staging yet, told "Inoperable" and "about the size of an orange"
Emerg Colostomy bowel block 10/25/2018
New colostomy surgery 11/5/2018 (new placement of original botched placement?)
CT scans of lungs and liver look "clear"
Huntsman Cancer Institute surgery consult
Tx Plan: Neoadj Chemo FOLFOX 1/10/2019-?
CEA 1.9 (I guess it's not a marker for him).

Kbelo
Posts: 20
Joined: Tue Aug 07, 2018 8:19 am

Re: Heartbroken

Postby Kbelo » Tue Dec 11, 2018 7:21 pm

So sorry for your loss. You're in my thoughts tonight
Stage 3B CC - diagnosed at 40
Bowel resection May 2018
28 nodes removed 1 with cancer traces
FOLFIRINOX started July 2018 for 6 months, finished Jan 2019.
1/19 - CT Scan shows NED
2/19 - CT Scan shows NED
5/19 - CT Scan shows NED
8/19 - CT scan + MRI show NED

margiej
Posts: 96
Joined: Sat Apr 14, 2018 8:46 am

Re: Heartbroken

Postby margiej » Tue Dec 11, 2018 8:52 pm

So sorry to hear you have lost your dear mother. You were a wonderful help to her.
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/2017 and 1/2020
CT 10/3/17 clear
CT 10/17/18 clear
CT 10/17/19 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

jens22
Posts: 1011
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Heartbroken

Postby jens22 » Tue Dec 11, 2018 11:42 pm

MOm's hold us tight in their arms. You were blessed to hold her as she passed. Prayers for you and your family.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 7 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 54 Mom of 3 boys.

Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Re: Heartbroken

Postby Trying » Wed Dec 12, 2018 12:16 am

You are in my thoughts
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Re: Heartbroken

Postby Trying » Wed Dec 12, 2018 12:17 am

You are in my thoughts
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

User avatar
Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Heartbroken

Postby Maggie Nell » Wed Dec 12, 2018 1:50 am

May a thousand memories keep you warm, and then
a thousand more.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Heartbroken

Postby LPL » Thu Dec 13, 2018 8:43 pm

I am so sorry for your loss.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets


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