Sigh! Nervous again

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Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Sigh! Nervous again

Postby Hopegirl » Tue Dec 11, 2018 12:24 am

Getting my 1 year colonoscopy tomorrow. Feeling nervous and scared again, even though I just had CT scan last month.
I wish the scan is enough . The prep for colonoscopy is so gross . So hard to drink that stuff, still gotta drink the 2nd one at 2am. I’m already emptied out . Why must I do the 2nd one . Please guys pray for clean scan again for me . Thank you
Diagnosed 10/11/17 at 46 years old . Now 50,4 kids 29, 25, 15, 13
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
1-14-2020 Cea 0.5 :D
Pray for NED Always

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Sigh! Nervous again

Postby Punky44 » Tue Dec 11, 2018 12:48 am

Praying for a clean scan!

I felt the same thing after the first dose of the prep. I was like hmm I wonder if they would ever know if I didn’t do this second one. (But I did anyway ha!)
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Sigh! Nervous again

Postby DarknessEmbraced » Tue Dec 11, 2018 8:40 am

I hope you get a clear scan and that you get good news from your colonoscopy as well!*hugs* The prep is horrendous! I am usually cleaned out by the second dose but not always as sometimes it can take up to 5 or 6 hours for the the first dose of prep to begin to work for me.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

e_enyedy
Posts: 29
Joined: Sat Nov 25, 2017 5:28 pm

Re: Sigh! Nervous again

Postby e_enyedy » Tue Dec 11, 2018 2:41 pm

Unfortunately (?) we can not escape both: the scope shows the inside of the colon; the scan shows the outside.
all the best

E
77 yrs male (73 at Dx)
2/13 Dx Carcinoma, Sigmoid Colon
3/13 Sigmoid Colon Hemicolectomy,( 12"+)
3/13 Pathology Staging: T1N0M0; no follow-up chemo
5/15 Recurrence: in pre-sacral space -no other mets detected (Instantly became Stage IV)
5/15 Started 8 sessions of Folfox + Avastin
11/15 Finished chemo, PET/CT: NED
11/15 Started Xeloda+ Avastin every 3 weeks. Still Doing it.
Still NED -(Hope treatment keeps working)

Koreysue
Posts: 258
Joined: Mon Apr 30, 2018 2:36 pm

Re: Sigh! Nervous again

Postby Koreysue » Tue Dec 11, 2018 5:07 pm

I hope all went well with your colonoscopy! I know the prep and ANXIETY is terrible.
Korey
Dx: 6/2017 stage 3 CC
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Sigh! Nervous again

Postby teri3 » Tue Dec 11, 2018 9:58 pm

Prayers sent your way
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

User avatar
mobrouser
Posts: 174
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Sigh! Nervous again

Postby mobrouser » Tue Dec 11, 2018 11:22 pm

Hopegirl wrote:Getting my 1 year colonoscopy tomorrow. Feeling nervous and scared again, even though I just had CT scan last month.
I wish the scan is enough . The prep for colonoscopy is so gross . So hard to drink that stuff, still gotta drink the 2nd one at 2am. I’m already emptied out . Why must I do the 2nd one . Please guys pray for clean scan again for me . Thank you


Hopegirl I hope your scan was clear. I just did my first year scope last Friday and was told next one in 3 years. I think that is too long a wait so will be questioning it with my doctor.

I did 3 Dulcolax tablets followed by 1 litre of prep 5 hours later and the 2nd litre of prep 12 hours later. Add to that a nervous gut that was sending everything out inliquid form for the previous day and you would think that everything would be clean in there but there were still little drops of fecal matter to be seen inside. The second dose of prep is important.
I
As I said I hope yours was clear. Let us know, we are thinking about you.

8) mob
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Caat55
Posts: 694
Joined: Sat Dec 23, 2017 6:01 pm

Re: Sigh! Nervous again

Postby Caat55 » Wed Dec 12, 2018 12:18 am

Good luck Hopegirl. I have my one year colonoscopy coming up to, the good news/bad news for me is I still have the bad so no prep to speak of.
Stay strong.
S
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20

Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Re: Sigh! Nervous again

Postby Hopegirl » Wed Dec 12, 2018 1:50 am

Hi everyone, thank you sooooo much for your kind words and especially your prayers. My colonoscopy showed clean scan . I’m feeling so grateful and happy. Praying that it will always be clean scan. Thanks again for your prayers. And I hope and pray for all your scans to be clean also
Diagnosed 10/11/17 at 46 years old . Now 50,4 kids 29, 25, 15, 13
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
1-14-2020 Cea 0.5 :D
Pray for NED Always

Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Re: Sigh! Nervous again

Postby Hopegirl » Wed Dec 12, 2018 2:02 am

mobrouser wrote:
Hopegirl wrote:Getting my 1 year colonoscopy tomorrow. Feeling nervous and scared again, even though I just had CT scan last month.
I wish the scan is enough . The prep for colonoscopy is so gross . So hard to drink that stuff, still gotta drink the 2nd one at 2am. I’m already emptied out . Why must I do the 2nd one . Please guys pray for clean scan again for me . Thank you


Hopegirl I hope your scan was clear. I just did my first year scope last Friday and was told next one in 3 years. I think that is too long a wait so will be questioning it with my doctor.

I did 3 Dulcolax tablets followed by 1 litre of prep 5 hours later and the 2nd litre of prep 12 hours later. Add to that a nervous gut that was sending everything out inliquid form for the previous day and you would think that everything would be clean in there but there were still little drops of fecal matter to be seen inside. The second dose of prep is important.
I
As I said I hope yours was clear. Let us know, we are thinking about you.

8) mob

I was not able to do the 2nd prep. I only drank not even half n stopped. I was so nauseous drinking it. They need to come up with orange flavor or something . I was lucky that I emptied everything out before my procedure . Wow 3 years is a long time. I forgot to ask when will my next one be.
Diagnosed 10/11/17 at 46 years old . Now 50,4 kids 29, 25, 15, 13
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
1-14-2020 Cea 0.5 :D
Pray for NED Always

margiej
Posts: 109
Joined: Sat Apr 14, 2018 8:46 am

Re: Sigh! Nervous again

Postby margiej » Wed Dec 12, 2018 6:43 am

It's already a great feeling when the colonoscopy is over and everything looks good. So happy for you! I was told to come back after three years also. It will be two years for me in the spring...I will ask the doctor then if three years is too long. Although I think it takes a while for tumors to develop. She is always most concerned about metastasis.
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/2017 and 1/2020
CT 10/3/17 clear
CT 10/17/18 clear
CT 10/17/19 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Sigh! Nervous again

Postby Punky44 » Wed Dec 12, 2018 10:41 am

Wonderful news!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Sigh! Nervous again

Postby DarknessEmbraced » Wed Dec 12, 2018 6:30 pm

Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Hopegirl
Posts: 55
Joined: Wed Nov 08, 2017 10:06 am
Location: Modesto ca

Re: Sigh! Nervous again

Postby Hopegirl » Thu Dec 13, 2018 1:09 am

Thanks everyone
Diagnosed 10/11/17 at 46 years old . Now 50,4 kids 29, 25, 15, 13
Colon cancer Stage 3b 5/26 lymph nodes positive
Surgery 10/19/17
Cea 0.6 11/15/17
Finished last Xeloda pills 6 cycles 4-10-2018
Did only 3 infusions of oxilaplatin due to bad neuropathy
5-8-2018 Cat Scan clear
5-8-18 Cea 0.6
5-10-18 Port removed
8-7-2018 Cea 0.7
11-13-2018 Clear Scan
11-13-2018 Cea 1.4
12-11-2018 Clean colonoscopy
3-13-2019 Cea 0.8
7-19-2019 Clean scan
7-19-2019 Cea 0.7
1-14-2020 Cea 0.5 :D
Pray for NED Always


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