The Colon Club

Hi all,

DH finished 8th round of Folfox and went for hearing test bc slight loss and ringing in one ear. He also had 9th round delayed by estimated 5 days due to low platelets. MSK takes a conservative approach to the Oxali when these symptoms emerge especially once one is past 8 rounds amd I expect them to either reduce or even drop the Oxali.

My questions are (1) I’ve seen posts on tinnitus/ringing and wondered if any recent posters have had this esp in combo with slight hearing issues (at upper frequencies only) and (2) I’ve seen posts saying 8 rounds of Oxali is the standard of care in Europe and wanted to get pointed in the right direction to those reports.

Thank you!

I can’t help too much but just wanted to let you know I have a slight hearing loss and just thought it was me getting older. I never thought to think it could be from the chemo.

I can’t remember where but I do remember reading reports on different amounts of Folfox. Not sure your stage but my oncologist said that all of the studies were for stages 2 and 3. Since I was stage 4 and younger he was pretty adamant that 12 rounds was the way to go.

Dave

Thanks. Yes I hope they can reduce not cut out but with the tinnitus (ototoxicity is a side effect, though not common) and the low platelets, I don’t know how they will handle it.

This far, he’s had a pretty clear recovery/treatment and I keep remonding myself it’s impossible to get thru this without any bumps along the way. This is a small bump but it’s really shaken me up.

I did six Folfox cycles with no hearing problems. However, a few months after round 6, I developed tinnitus. It's continued over a year now- could be due to listening to music with earbuds for a long time and aging, but I suspect the Oxaliplatin. My oncologist indicates its the chemo.