Awaiting Monday

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Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Awaiting Monday

Postby Mohrfamily » Sat Dec 08, 2018 1:39 pm

So DH just had new scans done ::drum roll::

-His spleen was measuring a little large doc said it's common for those on FolFox treatment. Nothing was said about the colon other than his CEA has dropped from above 10,000 at the beginning to 120 presently.
-He has some scarring on his liver due to the amount of shrinkage of the leisons there.
-The radiologist mentioned 3 nodes in his lungs not documented 3 months ago measuring less than .4mm, the oncologist couldn't figure out where/ what they were seeing. She says it's probably nothing it may be tissue sticking together also with the progress seen in the liver anything new spreading but if course keep an eye on it. This troubled DH and can't see anything past it.

DH and I had to Cleveland Clinic Monday to review with a surgeon to determine our next step. DH already gets a break from leucovoran and oxiplatin for 6 months (maybe more dependingfing on if his neuropathy subsides at all in his fingers and toes). The cancer center has put him on hook for everything pending what Cleveland says.

Any and all insight is so greatly appreciated. Even or 4 year old girl was telling daddy to be happy his boo boo was smaller. I can't fathom what he feels but I know he can't dwell on the negative.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI

Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Re: Awaiting Monday

Postby Mohrfamily » Mon Dec 10, 2018 6:28 pm

The surgeon visit wasn't very uplifting.

He had mixed feelings about the scan and evoke he's not 100% inoperable his liver is not ready for surgery and suggested we go back to the colon specialist... Smitha Krishnamruthi. Hoped for better but hope isn't lost.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI


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