9 YEARS AGO

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michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

9 YEARS AGO

Postby michelle c » Wed Dec 05, 2018 9:55 am

I finished my treatment (12 rounds of chemo) nine years ago. I don't post much anymore but I do check in every week or so. I just wanted to share it with others, especially those just starting on this journey.

I was so scared when I was diagnosed. Would I survive this? Would I make five years? My kids were 12 and 9 years old and they are now 21 and 19. I wanted to be there for them, my biggest fear was leaving them.

I would spend ages on Dr Google trying to find out more information and looking for survival statistics. However, I think that it only heightened my anxiety.

This website helped me so much. There was always someone here to offer advice, encouragement, support, answer my questions and just to show understanding. I never felt alone with the wonderful people here and I am so grateful. Unfortunately, we have lost a lot of wonderful people over the years.

Best wishes to you all
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

WarriorSpouse
Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: 9 YEARS AGO

Postby WarriorSpouse » Wed Dec 05, 2018 10:48 am

Well done!
Thank you for sharing your good news with all of us. It is always welcome here.
Live, Laugh and Love Always.
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: 9 YEARS AGO

Postby bitchslapped » Wed Dec 05, 2018 12:56 pm

Congratulations Michelle!
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: 9 YEARS AGO

Postby Punky44 » Wed Dec 05, 2018 1:06 pm

Congratulations!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: 9 YEARS AGO

Postby stu » Wed Dec 05, 2018 2:04 pm

Think we landed here about the same time . Delighted to hear you are still doing so well .
Take care,
Court
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

del
Posts: 119
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: 9 YEARS AGO

Postby del » Thu Dec 06, 2018 7:20 am

Congrats!
Male, 33 @ dx, stage 1 RC (T1N0M0 mod. diff. 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE
2021 - 5 years of clean scopes/scans/bloods

User avatar
DBF
Posts: 328
Joined: Fri Jun 07, 2013 1:44 pm
Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: 9 YEARS AGO

Postby DBF » Thu Dec 06, 2018 7:36 pm

Congratulations! It’s great to see your post. All the best to you.

Donna
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :)
2021: NED :D
2022: NED :)
Mom to 3 boys: 24, 13 & 9

Koreysue
Posts: 258
Joined: Mon Apr 30, 2018 2:36 pm

Re: 9 YEARS AGO

Postby Koreysue » Thu Dec 06, 2018 7:50 pm

Congrats! And thank you so much for this post!
Korey
Dx: 6/2017 stage 3 CC
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan


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