We were diagnosed at approximately the same time. I remember your story from back then. If I could recommend you something, it would be genetic profiling of the tumor. Sometimes cancer mutates quickly. More mutations could mean more susceptible to chemotherapy meds. I am sure, you have great oncologists on board. I only would like to remind Cynthia's story. Cynthia , who has ongoing success with Keytruda. I would send tumor samples for new genetic tests to Foundation One. I sent my own tumor to Caris back in 2015. I wish you best of luck! I will remember you in my prayers.
Last edited by mariane
on Wed Dec 05, 2018 8:38 am, edited 1 time in total.
mom of now 10 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016
I praise God for every day with my family!