Doing really poorly friends. I have developed lymphedema in legs, it is awful , can hardly walk.
I also have nephrostomies in place since my kidneys got blocked by cancer. I am in an awful state , still at the. Hospital until Friday possibly. I miss my babies , i need to be home.
What's the treatment for lymphedema ? How did you improve? Did it improve?
I keep thinking of the initial diagnosis; why didn't i do folfox afterwards? Docs did not recommend, ok, but what if i had done it, i wouldn't be here with massive cancer in abdomen and lymphedema.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
July 2016- ileo reversal
August 2016- DCIS
Feb 24,2017- prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Mom to 4 & 7 yrs kids (6 mo. & 3.5 yrs at diagnosis in June 2015)