hiker wrote:Hey Melissa,
It's normal to lose weight and generally look bad when going through cancer and its treatment. I was 5'9", 205lbs. and built like a tank before all this started. After my liver resection, I was 145lbs. - and yes, I looked bad, very bad. But now I'm back to almost 180lbs. and feeling great. That's after 2 major surgeries, 1 minor surgery, 14 rounds of systemic chemo and 5 rounds of HAI pump chemo. Your husband can get back to his old self once all this is over.
My recommendation to you is to get him to a major cancer center as soon as you can - there is no time to waste. I started out locally and was told after my colon resection surgery by 4 oncologists/surgeons that nothing other than chemo could be done for the liver mets and I would have at most 2 years with chemo. At my first meeting with the oncologist and surgeon at MSK I was informed they would be working together towards curing me. Here I am, almost at the 2 year mark and doing great. I have my scans every 3 months and they can't find any cancer in me.
There is hope, but you have to get to a facility with the experience to help.
Now that the initial diagnosis has sunk in a bit...
Now that we have consulted, gotten scans, gathered opinions, etc.
I feel like we have a grasp on the big picture of what my husband is facing.
His tumor was staged 3C. It is large, stuck to his pelvis, perhaps affecting his bladder, and not easily operable at this point.
The good news: no known liver/lung involvement.
The doctors recommended neoadjudivant chemo to try and shrink the tumor enough to operate.
He gets a port placed 1/9/2018, starts chemo bright and early the next day. Also scheduled: a scope to explore his bladder. Needless to say, hubby is not excited about having a scope placed up his penis.
Is there anyone who has gone through similar things? Like had an inoperable tumor, then successfully reduced it with chemo, then operated? I need some hope, some good news, some path forward.
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