fdcfromkcmo wrote: . . . Depending on what happens with my biopsy, I'd like to talk to my doctor about immunotherapy but don't know what genetic testing revealed & if I'm eligible.
fdcfromkcmo wrote:Thanks for the input. How does getting a second opinion at a major cancer center work when you are out of network? I'm willing to travel; I've paid for all my treatment myself and my family's offered to help with money. Really, I'm not so upset... I'm not in pain. Mostly just kinda sick to death of doctors, insurance, waiting for someone to call....
I have a pretty rigorous supplement regimen! Don't know if it's helped but started on aloe arborescens at the recommendation of a friend, so who knows? Maybe I'll get lucky
fdcfromkcmo wrote:Thanks again... no one's given me anything to look forward to so nice to hear some success stories here
I am in KCMO, unfortunately KU Med and Shawnee Mission Hospital (part of MD Anderson) are out of Network, partially because of the MO/KS thing...!
fdcfromkcmo wrote:Has anyone else experienced FOLFOX as a failed frontline treatment & can share stories of successful second line treatments?
fdcfromkcmo wrote:So my doctors are deciding the best course of action while they restage my cancer. They think its stage IV: a PET scan showed activity in my lungs & in my NECK... this Wednesday I have a neck biopsy... two words every 33 yo wants to hear weeks before Christmas.
They're advocating for radiosurgery on the lungs & we'll see what the neck biopsy yields. But because I finished treatment in May of this year, it all points to FOLFOX having failed because mopup chemo failed to eliminate any remaining cancer cells (my previous PET and CT scans showed no activity besides the main tumor.)
Has anyone else experienced FOLFOX as a failed frontline treatment & can share stories of successful second line treatments? Depending on what happens with my biopsy, I'd like to talk to my doctor about immunotherapy but don't know what genetic testing revealed & if I'm eligible.
rockhound wrote:fdcfromkcmo wrote:Thanks again... no one's given me anything to look forward to so nice to hear some success stories here
I am in KCMO, unfortunately KU Med and Shawnee Mission Hospital (part of MD Anderson) are out of Network, partially because of the MO/KS thing...!
Crap, that stinks about KU Med.. I would be trying there over KU Med, mostly cause the NCI designation.. I'm in Manhattan, KS but have had surgeries over there and all my follow-ups are with them. Good experiences overall so far.
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