lindzwolo wrote:Hi all,
I am new to the forum. I was diagnosed with stage III colon cancer in January 2017 at 37 years old. I had emergency surgery, 6 months of chemo and am NED. I have have on and off slight pains where my original pain started about 6 months after surgery, had ct all was well, pains started again in 6 more months, ct bloodwork all good again. Most recently pains started back (they are like a cramp-not horrible not there all the time, but there). I went to onc this Monday. He says scar tissue likely to blame, but this time I fell sick to my stomach, bloating, belching...bowels range from normal to water, dependent on the day. The onc said I should see a GI specialist which I see today and I have another CT tomorrow. Anyone have stomach aches that come and go? Is it my nerves? Is it because I have half my colon gone? I am so tired of worrying and I wonder the toll it takes on my life. I take meds to help with anxiety, been to therapy. I have tried to advocate for myself because I was so misguided before my diagnosis. Is all of this normal?
Welcome to life after colon surgery, my friend. Totally hear you on this. I deal with random stomach aches and bloating. Not a daily thing for me. But, for example, this past Tuesday was miserable. It felt like i had a stomach bug. You can't help thinking it's something worse. For me, the aches are very familiar to the pain that made me see my doctor in the first place when they discovered the colon tumor.
Scar tissues and adhesions are common though. I have a very hard lumpy mass right next to my incision line at the top of my abdomen. It sometimes feels like it's pushing on something. Onc told me it's definitely scar tissue. This is part of the new normal we have to learn to live with, I guess. I'd definitely consult a GI specialist though if it gets really bad. They say sometimes these things can resolve themselves. Otherwise, you'd have to weigh out the pros/cons of surgery, if it's indeed scar tissue/adhesion related. Surgery can resolve the discomfort but you also risk new adhesions.