Hi all, I have a quick question about my early FOLFOX experiences. I had my first Oxaliplatin dose on Monday then a 48-hour 5FU infusion. I received steroids on the Monday and then Maxolon to take home for the nausea. I was ok on the Monday/Tuesday (mainly due to the steroids, I think), then by Wednesday I was really unwell all the time - nauseous, *extremely* fatigued, anxious, hot/cold sweats/shakes, etc. I only vomited once (then got IV zofran) but was absolutely useless the rest of the time. I feel so soft when I hear about people who went to work on this stuff!!
It’s Friday now and I’m beginning to feel more human - I can eat small meals, go for walks, mostly awake all day, etc. But wow that was a rough couple of days.
Anyway the nurse has doubled my Maxolon and also gave me zofran to take home for the nausea. They’ve also given me Ativan for the anxiety, and my onc has added Emend before the chemo next time. He said he could also look at giving me some extra days of steroids to help, or cutting my chemo dose if need be (I really don’t want to do that!).
I’m hoping this gets better, but from what I hear the effects are cumulative and tend to worsen? Any experiences or suggestions for my situation are greatly appreciated! Thank you