DH and I decided to take a jaunt to Florida over Halloween week. About half way through, he started feeling badly and very tired. Asked for abdomen drain when we got back and they did 1 lung too. Went in a week later for another lung, wound up with a permanent lung catheter, which was actually pretty easy to drain. Doctors thought they saw a lung infection so there's an extra 3 days in the hospital to attempt to grow stuff but couldn't find anything. Lonsurf schedule really a mess at this point.
He got out of the hospital on 11/13 and never seemed the same. Red spots all over. Slurred speech. They filled him with IV fluid which made his feet swell and crack. He would sleep a lot and was very restless when awake. By Sunday 11/18, things were going downhill fast with the breathing even with the drain and oxygen. I got him comfortable on his roll-away bed and begged hospice to come (they were scheduled to start 11/19) but no luck. Called his sister and uncle. Called on-call oncologist. Neighbor came over and read Bible verses.
My darling DH Jeffrey who was so brave for 2 years at peace 11/19/18 12:25 a.m.
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials