Sad news

Please feel free to read, share your thoughts, your stories and connect with others!
mhf1986
Posts: 158
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Sad news

Postby mhf1986 » Mon Nov 19, 2018 6:55 pm

DH and I decided to take a jaunt to Florida over Halloween week. About half way through, he started feeling badly and very tired. Asked for abdomen drain when we got back and they did 1 lung too. Went in a week later for another lung, wound up with a permanent lung catheter, which was actually pretty easy to drain. Doctors thought they saw a lung infection so there's an extra 3 days in the hospital to attempt to grow stuff but couldn't find anything. Lonsurf schedule really a mess at this point.

He got out of the hospital on 11/13 and never seemed the same. Red spots all over. Slurred speech. They filled him with IV fluid which made his feet swell and crack. He would sleep a lot and was very restless when awake. By Sunday 11/18, things were going downhill fast with the breathing even with the drain and oxygen. I got him comfortable on his roll-away bed and begged hospice to come (they were scheduled to start 11/19) but no luck. Called his sister and uncle. Called on-call oncologist. Neighbor came over and read Bible verses.

My darling DH Jeffrey who was so brave for 2 years at peace 11/19/18 12:25 a.m.

Missy
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials
11/19/18 Peace

Nohogirl
Posts: 114
Joined: Sun Oct 14, 2018 12:15 am

Re: Sad news

Postby Nohogirl » Mon Nov 19, 2018 7:04 pm

I am so sorry for your loss :(
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
07/18 Pet Scan NED

Punky44
Posts: 331
Joined: Mon Oct 01, 2018 4:29 pm

Re: Sad news

Postby Punky44 » Mon Nov 19, 2018 7:06 pm

I am so sorry.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Lee
Posts: 5939
Joined: Sun Apr 16, 2006 4:09 pm

Re: Sad news

Postby Lee » Mon Nov 19, 2018 7:07 pm

(((Missy)))

Please accept my sympathy on the passing of your dear husband. It sounds like it was quick, sometimes that can be a blessing. A good friend lost her FIL a few weeks back. Cancer, they told him, he had about a year to live with chemo, he died less than 2 weeks later. A lot of what you described.

You and your family will be in my thoughts and prayers.

Again I am so sorry for your loss,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

margiej
Posts: 85
Joined: Sat Apr 14, 2018 8:46 am

Re: Sad news

Postby margiej » Mon Nov 19, 2018 10:21 pm

Dear Missy - so sorry for your lost.
❤️ Margie
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/17
CT 10/3/17 clear
CT 10/17/18 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

User avatar
mobrouser
Posts: 145
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Sad news

Postby mobrouser » Mon Nov 19, 2018 10:22 pm

Missy I am so sorry.
I hope you will be able to treasure this last jaunt that you and Jeffrey shared.
Hugs to you and family.

mob
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Sad news

Postby teri3 » Tue Nov 20, 2018 8:33 am

So sorry for your. I hope the memories you shared help comfort you.
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

Cmac1275
Posts: 54
Joined: Mon Aug 06, 2018 4:21 pm

Re: Sad news

Postby Cmac1275 » Tue Nov 20, 2018 9:15 am

Very sorry for your loss.
42 yr, male, husband and father of 3
DX Stage IV Colon Cancer Jan 2018
Multiple liver mets
KRAS G13D / MSS

Jan 2018 Partial colon resection
Mar 2018 FOLFOX + Avastin | CEA 60.1
July 2018 Partial liver resection | CEA 4.7
Sep 2018 Recurrence in liver | CEA 2.9
Oct 2018 FOLFOX + Avastin
Nov 2018 Stopping FOLFOX. New mets | CEA 4.3
Dec 2018 Beginning AbbVie ABT-165 Trial

dliu
Posts: 66
Joined: Sun Jun 03, 2018 7:16 am

Re: Sad news

Postby dliu » Tue Nov 20, 2018 11:59 am

I am very sorry for your loss, Missy. I am sorry for what you both had to go through, but you both went through it like real troopers.
Caring for my mum, 65
Sigmoid resection, multiple liver mets
09/05/2018 Dx Stage IV, 6/11 LN - KRAS G12V
28/05/2018 First round of FOLFOX + Avastin

CEA down from 6000+ (05/2018) to 843 (08/2018) to 377 (11/2018)
9/10 rounds with Oxaliplatin
8/10 rounds with Bevacizumab

Wonderfullymade
Posts: 140
Joined: Tue Jan 12, 2016 4:33 pm

Re: Sad news

Postby Wonderfullymade » Tue Nov 20, 2018 1:30 pm

I am sorry to hear of your loss also...will keep you in my thoughts
Wonderfully made
DX 3/2015 53
Stage IVa CC w/liver met
BRAF/KRAS wild type MSI-High (MLH1, PMS2) not Lynch
Folfox 3 cycles
5/2015 ER for subtotal colectomomy due to perforated colon, ovary removed
Folfuri/Pantiumumab 5 cycles
8/2015 liver resection, gallbladder removed and new LN
10/2015 CT scan new nodes
10/2015 Pembro started CEA 2.2
5/2017 stable lung things, coltis, lymph nodes stable cea 1/2017 1.1
9/2017 NED CEA 1.1 ( stopped Pembro)
2/2019 ER for DVT/ PE
2/2019 clean CT (NED) CEA 1.1

WarriorSpouse
Posts: 194
Joined: Tue Aug 16, 2016 9:02 pm

Re: Sad news

Postby WarriorSpouse » Tue Nov 20, 2018 11:05 pm

Goodness Missy. I am so sorry to read your post. You have been so helpful with so many here by posting and sharing. With deepest sympathy from all here. We learn so much from each other in both good times and in bad. Thank you for sharing your experiences and thoughts. You are in our prayers. WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Sad news

Postby DarknessEmbraced » Wed Nov 21, 2018 4:45 pm

I'm so very sorry for the loss of your husband!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

hawkowl
Posts: 121
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: Sad news

Postby hawkowl » Thu Nov 22, 2018 11:51 am

I’m so very sorry for your loss
Dx 12/2014 T3N2MX (iliac nodes) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7
10/2017 CEA remains in normal range (1.4), scans stable.
6/2018 CEA still normal.
Now dealing with pyoderma gangrenosum.
Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

boxhill
Posts: 297
Joined: Fri Apr 06, 2018 11:40 am

Re: Sad news

Postby boxhill » Mon Nov 26, 2018 10:30 am

I'm so sorry for your loss. I hope that the fact that you were able to be with him and care for him helps bring you peace.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED, 2mm indeterminate lung nodule
11/20/18 CT NED, Lung nodule calcified granuloma. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda

peanut_8
Posts: 2325
Joined: Sun May 25, 2014 1:31 pm

Re: Sad news

Postby peanut_8 » Mon Nov 26, 2018 1:44 pm

Missy, so sorry to hear of the passing of your dear Jeffrey.

Sincerest condolences.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 31 guests