Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

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NedPlease
Posts: 550
Joined: Fri Mar 23, 2012 3:56 pm

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

Postby NedPlease » Sun Feb 17, 2019 4:13 am

I’ve been NED since 11/11 and I received surgery (liver transplant surgeon) at UVA following a consult with Dr. Kemeny at Sloan.

Best to you,
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

Mattie
Posts: 76
Joined: Fri Mar 07, 2014 1:06 am

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

Postby Mattie » Mon Feb 18, 2019 6:55 pm

Hi,

I'm starting my 10th year. I'm NED at the present time and doing Avastin only. It seems to be controlling it. My last recurrence was in March 2016. My oldest was 10 and my twins were 7 when I was Dx. It can happen. I still work and live a pretty "normal" life. I've always been pretty agressive in my treatments.
4/10 debulk surgery, DX stage IVb, 49yo
5/10-11/11 Folfox, then Xeloda/Avastin
4/13 Resect liver met + pelvic node, 20+ Rad treatments
7/14 SBRT 15 mm Liver & node
12/14 SBRT 8 mm Liver met
3/16 4-5 pelvic nodes, Xeloda/Avastin again
12/16 NED, maintaining Xeloda/Avastin
8/17 NED Dropping Xeloda. Avastin only.
3/21 NED Avastin only
10/21 Pausing Avastin Proteinuria/BP complications
12/21 Resect 4.4 x 3.6 cm lower abdominal met


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