Sleeping with: bag, heart monitor and pump accached

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Sherrill
Posts: 1
Joined: Tue Oct 23, 2018 4:12 pm
Facebook Username: Sherrill Williams

Sleeping with: bag, heart monitor and pump accached

Postby Sherrill » Fri Nov 16, 2018 6:01 pm

I have an ostomy bag on my left. I also have a 30 day heart monitor, connected to my chest, that has over two weeks to go. My port was put in last Monday. With all this baggage already attached should I wait to start my chemo? Also how do I sleep after I start chemo with the pump on my right and the bag on the left. I can not sleep on my back and turn from side to side through the night.

hiker
Posts: 139
Joined: Thu Aug 09, 2018 10:15 am

Re: Sleeping with: bag, heart monitor and pump accached

Postby hiker » Fri Nov 16, 2018 6:48 pm

Do you have a recliner? That's where I get the best sleep.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-12/18
Clear of cancer since surgery

Dionca
Posts: 45
Joined: Sat Dec 02, 2017 2:04 am

Re: Sleeping with: bag, heart monitor and pump accached

Postby Dionca » Fri Nov 16, 2018 7:55 pm

The chemo pump is attached via a tube, which is fairly long, so you have flexibility as to where it lies at night. It doesn't have to be on the same side as the port.
stage 3b T3 N1b MX 2/27 nodes (surgery 4/2015)
moderately differentiated
PNI - positive
LVI - positive
Folfox 12 sessions (w/out oxi for 11 & 12)
Neulasta with 3-12 due to low WBC count
CEA at diagnosis 8.6
CEA after surgery 1.2
CEA during chemo 4.6 / 3.3 / 2.3
CEA after chemo 1.5 / 1.2 / 1.2 /1.2 /1.2 / 1.4 / 1.1 / 1.2 / 1.9 / 1.3 / 1.6 /1.4 /1.5
neuropathy
recurrence in left lung (surgery May 2020)

RulaLenska
Posts: 24
Joined: Fri May 04, 2018 8:13 pm

Re: Sleeping with: bag, heart monitor and pump accached

Postby RulaLenska » Fri Nov 16, 2018 8:31 pm

I feel for you. I’m a stomach sleeper usually but never in the last two years. A good mattress is the place to start unless you have a recliner. As needed I’ve used pillows for bracing and pressure relief. I’ve adjusted to this but I long for the day when I can spread out on my stomach.
Good luck finding your sweet spot for rest.
Cyn
Dx 8/16 IV stage with mets to lungs liver adrenals
KRAS wt MSS CEA over 400
2 x folfori caused refractory diarrhea but dropped CEA to 200
Switched to folfox stopped after 10 due to neuropathy
Avastin leucorvorin 5fu dropped after 11 due to hfs
Chemo break to travel.
Nov. 2017 emergency sleeve colectomy of primary tumor.
Vectibix irinotecan
PET scan shows no lung or adrenal tumors
5/2 Portal Vein Embolisation in preparation for liver resection.
6/12 extended right resection removing 60%.

martd
Posts: 127
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: Sleeping with: bag, heart monitor and pump accached

Postby martd » Fri Nov 16, 2018 10:14 pm

I was able to sleep on my right side and stomach with the port accessed. At first I wouldn't even try it, but after a few treatments I did, wasn't a problem at all no pain or discomfort . But I did use a very small throw pillow right beside the needle so there wasn't direct pressure.
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT Tp53 LOF
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9
04/19 clear scan CEA .9
07/19 clear scan CEA 1.0

Utwo
Posts: 270
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Sleeping with: bag, heart monitor and pump accached

Postby Utwo » Sat Nov 17, 2018 10:08 am

Sherrill wrote:I can not sleep on my back and turn from side to side through the night.
Never underestimate yourself.
For my whole life I believed that I was a side sleeper.
However when I was neither able to sleep on my right side nor on my left side after a couple of sleepless nights I have learned how to sleep on my back.
Eventually I was able to sleep on my right side and lost this new skill.

Do not worry. You can do it.
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder, lymph node, pancreas

teri3
Posts: 405
Joined: Fri Jan 09, 2015 11:03 am

Re: Sleeping with: bag, heart monitor and pump accached

Postby teri3 » Sun Nov 18, 2018 10:11 pm

I'm a stomach sleeper and I still manage to sleep on my stomach dispite the port and tubing. Sometimes I have to use some extra pillow padding but i make it work.
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

Wonderfullymade
Posts: 140
Joined: Tue Jan 12, 2016 4:33 pm

Re: Sleeping with: bag, heart monitor and pump accached

Postby Wonderfullymade » Tue Nov 20, 2018 1:28 pm

Utwo wrote:
Sherrill wrote:I can not sleep on my back and turn from side to side through the night.
Never underestimate yourself.
For my whole life I believed that I was a side sleeper.
However when I was neither able to sleep on my right side nor on my left side after a couple of sleepless nights I have learned how to sleep on my back.
Eventually I was able to sleep on my right side and lost this new skill.

Do not worry. You can do it.


I agree! I also purchased a stoma guard, and then use the pillow I was given after surgery so I dont press on my port.You will acclimate.
Wonderfully made
DX 3/2015 53
Stage IVa CC w/liver met
BRAF/KRAS wild type MSI-High (MLH1, PMS2) not Lynch
Folfox 3 cycles
5/2015 ER for subtotal colectomomy due to perforated colon, ovary removed
Folfuri/Pantiumumab 5 cycles
8/2015 liver resection, gallbladder removed and new LN
10/2015 CT scan new nodes
10/2015 Pembro started CEA 2.2
5/2017 stable lung things, coltis, lymph nodes stable cea 1/2017 1.1
9/2017 NED CEA 1.1 ( stopped Pembro)
2/2019 ER for DVT/ PE
2/2019 clean CT (NED) CEA 1.1

NHMike
Posts: 2506
Joined: Fri Jul 21, 2017 3:43 am

Re: Sleeping with: bag, heart monitor and pump accached

Postby NHMike » Tue Nov 20, 2018 2:14 pm

Is XELOX an option?
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Jannine
Posts: 189
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Sleeping with: bag, heart monitor and pump accached

Postby Jannine » Thu Nov 22, 2018 9:30 am

I'm able to sleep on either side while I have the pump attached to my port, with no discomfort. It was a little weird at first, when the port was new, but it doesn't seem at all weird once the port settles in.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear


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