I wanted to see if anybody is the same boat as me. I was diagnosed with stage 4 in March of this year. Pet/CT on 3/12 showed one liver met 2 cm in size. MRI a week later showed two more liver mets both are little bigger than 1 cm. Also some enlarged perirectal lymph nodes. Started the neo adjuvent chemo on 3/26 folfox/ avastin. Avastin was stopped after 4 cycles to prepare for surgery. After 6 cycles did an MRI on 6/12. MRI showed that the liver mets disappeared. Also did a chest CT which was also clear. Pelvis MRI showed the tumor has shrunk and the lymph nodes are back to normal size.
My colon resection and liver resection was scheduled on 7/23 at the same day. I signed the consent for both and went into the OR only to wake up after 12 hours to realize that the liver surgeon decided not to do the liver resection. He couldn't see any mets and he didn't want to resect a perfectly healthy liver. I had some complications from the surgery such as an abscess and probable fistula. So they installed a drain to treat the abscess. This delayed the adjuvent chemo by a month. So my oncologist decided to another scan on 9/13 which showed no evidence of disease in my liver.
Started my adjuvent chemo last month. My oncologist kept on insisting on doing a liver resection. He likes to be aggressive in his treatment. So I met with another liver surgeon and two other oncologists including Dr Saltz with MSK, for a second opinion. They all recommended not doing the liver resection. So I conveyed that to my oncologist and he is on board. But now he is recommending going on maintenance treatment after the adjuvent chemo. He is recommending pills every three weeks for the next five years. I don't know if it's going to be an overkill. But I would like to trust my oncologist as he is the first one to assure me it was a curable disease even though mine was stage 4. His logic is that there may be microscopic cancer left in the liver since we didn't do a resection. I am hoping I can get some advice from people who had a similar experience as me; disappearing liver mets.
Last edited by Rgp
on Fri Nov 16, 2018 8:04 am, edited 1 time in total.
40 yr old male
3/6/18 colonoscopy - stage 4 rectal cancer, 3 liver Mets, perirectal lymph nodes
3/28/18 6 chemo-folfox and avastin
6/12/18 MRI showed liver mets disappeared
7/12/18 5 days radiation
7/23/18 rectal resection with clear margins. Liver resection was scheduled, but in the OR, the surgeon decided not to do it as he couldn't see any mets
7/31/18 diagnosed with PE
8/2/18 abscess, drain install
9/13/18 MRI/CT clear. No sign of liver mets
10/5/18 6 adjuvent chemo, folfox
10/26/18 drain removed