In canada MSK not option

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Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

In canada MSK not option

Postby Trying » Thu Nov 15, 2018 4:01 pm

Hello
I hear so much abpit MSK healing stage 4. Im in canada and all medical payments are covered here. Im in a top cancer center in canada with a head of staff oncologist. Ive just felt a bit down i guess as i cant get to MSK. Any hopeful stage for here not from MSK?
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Detox
Posts: 59
Joined: Fri Apr 28, 2017 5:27 pm

Re: In canada MSK not option

Postby Detox » Thu Nov 15, 2018 7:46 pm

MSK is one of the hospitals that do HAI pump but I believe other hospitals offer the same thing. I'm a stage IV patient but have never used the HAI pump but I know there are other options for treating your liver. Definitely keep pushing for surgery. I have also seen patients here get liver mets treated one at a time to reach NED status. I hope other people who have done this can chime in.

NedPlease
Posts: 547
Joined: Fri Mar 23, 2012 3:56 pm

Re: In canada MSK not option

Postby NedPlease » Thu Nov 15, 2018 7:59 pm

Yes, there’s much hope!

I consulted with Dr Kemeny at MSK but ultimately did not choose HAI pump. Instead, I had surgery at another major cancer center in the US. I felt confident in the doctors I chose and have no regrets. NED since 2011.

Best to you,
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: In canada MSK not option

Postby Trying » Thu Nov 15, 2018 8:16 pm

Thank you so much
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Canada777
Posts: 62
Joined: Mon Mar 28, 2016 6:24 pm

Re: In canada MSK not option

Postby Canada777 » Thu Nov 15, 2018 10:20 pm

If you are in Ontario wanting to be assessed for the HAI pump one of the hospitals in Toronto does them. Sunnybrook I think. I'm sure there must be others across Canada too.
DH dx. Stage 4 Colon cancer with Peri mets Dec '15 @ age 29
12 Rounds FOLFOX & then successful HIPEC in 2016.
Diagnosis changed to appendix cancer.
One small recurrence to pelvis 9 months later.
Resumed chemo and staying stable.

User avatar
mobrouser
Posts: 158
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: In canada MSK not option

Postby mobrouser » Fri Nov 16, 2018 10:44 am

As far as I know Sunnybrook is the only centre in Canada that offers HAI and you have to be a resident of Ontario to enter the trial.

Trying, among others please read the posts from stu about her mom if you need inspiration.

Cheers,
mob
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: In canada MSK not option

Postby Trying » Fri Nov 16, 2018 2:18 pm

Thank you.
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

User avatar
henry123
Posts: 214
Joined: Sun Oct 08, 2017 3:25 am

Re: In canada MSK not option

Postby henry123 » Thu Dec 06, 2018 7:43 pm

Hello,
Does anyone have experience with immunotherapy at Sunnybrook or any other Ontario hospital.
Could you kindly share the same or recommend Dr.
Thanks.
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
4/18 2
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
6/19 .9 CT clear
1/20 NED Opdivo stop

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: In canada MSK not option

Postby Steph20021 » Mon Dec 10, 2018 9:54 pm

henry123 wrote:Hello,
Does anyone have experience with immunotherapy at Sunnybrook or any other Ontario hospital.
Could you kindly share the same or recommend Dr.
Thanks.

I’m in a phase 3 trial at sunnybrook but it’s not an “immunotherapy” trial, its targeted at my mutation. But if you browse the immuno trials for CRC that are open at sunnybrook right now you could get the contact names of which doctors are leading those certain trials. Just a thought.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab


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