In canada MSK not option

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Trying
Posts: 85
Joined: Sun May 13, 2018 10:11 pm

In canada MSK not option

Postby Trying » Thu Nov 15, 2018 4:01 pm

Hello
I hear so much abpit MSK healing stage 4. Im in canada and all medical payments are covered here. Im in a top cancer center in canada with a head of staff oncologist. Ive just felt a bit down i guess as i cant get to MSK. Any hopeful stage for here not from MSK?
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets April 2018
Folfox as of June 2018

Detox
Posts: 36
Joined: Fri Apr 28, 2017 5:27 pm

Re: In canada MSK not option

Postby Detox » Thu Nov 15, 2018 7:46 pm

MSK is one of the hospitals that do HAI pump but I believe other hospitals offer the same thing. I'm a stage IV patient but have never used the HAI pump but I know there are other options for treating your liver. Definitely keep pushing for surgery. I have also seen patients here get liver mets treated one at a time to reach NED status. I hope other people who have done this can chime in.

NedPlease
Posts: 538
Joined: Fri Mar 23, 2012 3:56 pm

Re: In canada MSK not option

Postby NedPlease » Thu Nov 15, 2018 7:59 pm

Yes, there’s much hope!

I consulted with Dr Kemeny at MSK but ultimately did not choose HAI pump. Instead, I had surgery at another major cancer center in the US. I felt confident in the doctors I chose and have no regrets. NED since 2011.

Best to you,
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
Today- NED

Trying
Posts: 85
Joined: Sun May 13, 2018 10:11 pm

Re: In canada MSK not option

Postby Trying » Thu Nov 15, 2018 8:16 pm

Thank you so much
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets April 2018
Folfox as of June 2018

Canada777
Posts: 59
Joined: Mon Mar 28, 2016 6:24 pm

Re: In canada MSK not option

Postby Canada777 » Thu Nov 15, 2018 10:20 pm

If you are in Ontario wanting to be assessed for the HAI pump one of the hospitals in Toronto does them. Sunnybrook I think. I'm sure there must be others across Canada too.
DH dx. Stage 4 Colon cancer with Peri mets Dec '15 @ age 29
12 Rounds FOLFOX Jan-June 2016
4 month chemo break. Still only Peri mets.
Successful HIPEC Oct. 2016. Diagnosis changed to appendix cancer.
Recurrence to pelvis. FOLFIRI Sept 2017-June 2018.
Radiation 5 days.

User avatar
mobrouser
Posts: 109
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: In canada MSK not option

Postby mobrouser » Fri Nov 16, 2018 10:44 am

As far as I know Sunnybrook is the only centre in Canada that offers HAI and you have to be a resident of Ontario to enter the trial.

Trying, among others please read the posts from stu about her mom if you need inspiration.

Cheers,
mob
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear

Trying
Posts: 85
Joined: Sun May 13, 2018 10:11 pm

Re: In canada MSK not option

Postby Trying » Fri Nov 16, 2018 2:18 pm

Thank you.
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets April 2018
Folfox as of June 2018

henry123
Posts: 146
Joined: Sun Oct 08, 2017 3:25 am

Re: In canada MSK not option

Postby henry123 » Thu Dec 06, 2018 7:43 pm

Hello,
Does anyone have experience with immunotherapy at Sunnybrook or any other Ontario hospital.
Could you kindly share the same or recommend Dr.
Thanks.
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear NED
8/18 1.3
10/18 1.2
Vegan yoga juicing apricot


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