Almost 6 years

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Location: Ohio

Re: Almost 6 years

Postby rtcasper » Wed Nov 07, 2018 4:54 pm

Awesome Kiwi, best of future luck to you as well!
By the glory, by the grace, by the strength of God, I will be made whole.

Aug 3, 18-colonoscopy, 5cm mass 12cm from AV rectal cancer
Aug 16-MRI
Aug 17-CT,chest and pelvis
CEA-.99-likely not a good marker
Clinical DX-T2/T3n1 -3cm mass, 13.5 from AV-might be colon? - let surgeon make determination
5 days radiation, surgery 2 weeks later, followed by chemo
Sept 10-14 radiation
Sept 25-CR lap surgery, temp loop ileostomy
Oct 2-stage T1N0M0

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Posts: 2866
Joined: Thu Aug 05, 2010 12:59 pm

Re: Almost 6 years

Postby juliej » Wed Nov 07, 2018 6:47 pm

Talk about coming full circle, Kiwi! That is an amazing way to claim back your BC (before cancer) life! :D

A new home is a place for memories to be made and dreams to come true, and your biggest dream has already come true! Wishing you all the very best and a long and healthy life!

Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 7/13/2018, CEA<1

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Joined: Tue Apr 12, 2011 10:10 pm

Re: Almost 6 years

Postby horizon » Wed Nov 07, 2018 9:39 pm

I love it. Congrats buddy!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 7 years NED). Is this real life?

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Joined: Thu Jan 03, 2013 11:44 pm

Re: Almost 6 years

Postby kiwiinoz » Wed Nov 07, 2018 11:09 pm

Hi All
The last 6 years have been hard, I have made a lot of friends on the board, and I have seen a lot of them pass when, for some unknown reason, I am now thriving.
Mentally, I found it hard to let go of the fact I was a "cancer patient" and have only this year started to embrace a new way of looking at things to accept that I'll never be the same but Steve Austin (6 million dollar man if anyone is of that vintage) I have started to consider I am a new, "improved" version of myself.
I run my own business with my wife, and as bosses, we have a wide range of employees who have their own wide range of issues. Having cancer has made me a more accepting, understanding and accommodating person which I consider a great thing.
The move went well, although we are in the middle of our busy season at work so I only finished packing at 4:00AM and got up again at 6:00AM and am now at work cleaning up a few issues.
The place is a mess, but just as Juliej said, the new place is a new start to making new memories.
Unfortunately I have just remembered I have left our cat locked up in the toilet at the old place so I'll need to go back and let him out :D
Thanks to you all for sharing this with me. I appreciate all of your comments.
I'd happily post some photos, but the place is a mess.
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 Feb 2018
Port Out 26 March 2015

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Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Almost 6 years

Postby benben » Thu Nov 08, 2018 6:31 pm

kiwiinoz wrote:Hi All
6 years ago I purchased a new house. As part of that purchase my wife insisted I get the persistent bleeding that the doctors kept telling me was due to a myriad of reasons that had me doing tests for 6 months. I was able to get a colonoscopy, woke up to find out I had cancer, did a ct scan, found out it was stage IV, and then cancelled the purchase of that house.
A few months ago it came onto the market again, so more than 5 years after diagnosis my wife and I purchased it, and are moving in tomorrow.
I was certainly not thinking about moving for a long time as my mind was on beating the 2 year prognosis I was given, but as time has moved on, I find myself almost forgetting I was a cancer patient and resuming a normal life.
Thankful to currently be in this position.

Awesome Story! Makes that house really feel like home I bet!
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
7/18 CT-Scan - Clear, CEA 4.6 :(
8/30 CEA 2.6
10/5 CEA 1.5
11/8 PORT OUT!

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Joined: Tue Sep 27, 2016 9:22 am

Re: Almost 6 years

Postby thubler » Thu Nov 08, 2018 7:15 pm

Wow! Congrats this is awesome news, very inspiring! Enjoy your new home! God works in mysterious ways sometimes.....take care.
III b CC @ 35 yoa.
two primary tumors on ascending/transverse stage 1 and stage 3.
Lynch Positive
Resection 05/16
2/41 nodes +
FOLFOX 6/16-11/20/16
Clear Endoscopy and Colonoscopy 12/6/16, 02/13/18
CT 02/07/17 enlarged mesenteric node.
Clear PET 02/15/17
Stable CT 06/05/17,10/16/17,04/02/18
Deported 11/03/17

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Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Almost 6 years

Postby DarknessEmbraced » Sun Nov 11, 2018 11:01 am

Congratulations on being NED and on your new home! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Posts: 401
Joined: Sat Feb 09, 2013 12:26 am

Re: Almost 6 years

Postby stevieb » Sun Nov 11, 2018 12:20 pm

It will be six years for me in December. I am on my way to MDA today for scans to see if I am still NED! Congrats to you!!!!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

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Joined: Mon Oct 01, 2018 3:28 pm
Facebook Username: Heather Stoker

Re: Almost 6 years

Postby Spazzyjanet » Mon Nov 12, 2018 6:13 am

40 yr old, 3 kids. Dx 9/2018, Stage IV
KRAS G12V (resistant to Cetuximab)
CEA levels normal at diagnosis
4.2 cm Tumor, PT3, PN2B
11 of 18 with adenocarcinoma
+ removal of one cancerous node in Peritoneum.
9/2018, Colon resection and Ostomy-- Margins Negative
10/2018, PET shows 6 liver mets
10/2108, begin FOLFOX (Oxi+5 FU)
11/2018, MRI updates potential liver metastasis to 11 mets, both lobes.

Posts: 50
Joined: Sat Apr 14, 2018 8:46 am

Re: Almost 6 years

Postby margiej » Mon Nov 12, 2018 7:43 am

Congrats on your new home, continued health and this next chapter! It's all good!
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
CT 10/3/17 clear
CT 10/17/18 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

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Joined: Mon Nov 12, 2018 3:39 pm

Re: Almost 6 years

Postby JNN » Mon Nov 12, 2018 3:44 pm

I needed to hear this. I am just months out from being declared cancer-free, but I’m still scared every single day. Congrats, and thank you for sharing.

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