Almost 6 years

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Almost 6 years

Postby kiwiinoz » Tue Nov 06, 2018 6:16 pm

Hi All
6 years ago I purchased a new house. As part of that purchase my wife insisted I get the persistent bleeding that the doctors kept telling me was due to a myriad of reasons that had me doing tests for 6 months. I was able to get a colonoscopy, woke up to find out I had cancer, did a ct scan, found out it was stage IV, and then cancelled the purchase of that house.
A few months ago it came onto the market again, so more than 5 years after diagnosis my wife and I purchased it, and are moving in tomorrow.
I was certainly not thinking about moving for a long time as my mind was on beating the 2 year prognosis I was given, but as time has moved on, I find myself almost forgetting I was a cancer patient and resuming a normal life.
Thankful to currently be in this position.
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

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Re: Almost 6 years

Postby Nohogirl » Tue Nov 06, 2018 6:30 pm

Wow. That's really good. Congratulations on your NED and your new house!

"What's meant to be will always find a way"
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
08/19 Pet Scan NED
08/19 Colonoscopy Clear

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Location: Colorado

Re: Almost 6 years

Postby mandosquiddy » Tue Nov 06, 2018 6:49 pm

That is very inspiring. Congratulations and thanks for sharing!
4/2017 DX: sigmoid colon cancer
stage II with one positive margin
5/2017 - 11/17 12 rounds of FOLFOX
11/17 - 12/17 Increase in back pain and testicular pain.
CEA increased, CT scan indicated mass on rectal portion of colon
1/18 - 2/18 25 rounds of radiation treatment
5/18 surgery, interoperative radiation, bladder/ureter modification
7/18 normal blood work and CT scan
9/18 increased CEA, mass on small intestine
10/18 Debulking surgery/illeostomy
1/19 Ostomy reversal
12/19 CEA 1.3!!!!

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Re: Almost 6 years

Postby ginabeewell » Tue Nov 06, 2018 7:22 pm

Wow, that's amazing. Hope you love the new house!
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

Fluff Bottom
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Re: Almost 6 years

Postby Fluff Bottom » Tue Nov 06, 2018 9:38 pm

Wonderful!! Congratulations on your new home!
10/26/15-Colonoscopy-Mass in Sigmoid
adenocarcinoma mucinous type components.
Lynch Neg
Stage IIIb-T3N1c, 3/13 nodes, High Grade-Poorly Diff to Undiff
12/16/15-Port, FOLFOX
12 rounds FOLFOX 5/22/16
5/22/18-Clear CT
9/6/18-CT for possible hernia=mets
9/18/18 PET mets to lungs, liver, peri
10/23/18-rapid growth of mets
Back on FOLFOX=reaction
FOLFIRI until it failed
Tafinlar/Mekinist=Kidney Failure
Mets to uterus, adrenal gland
Low dose Stivarga/Opdivo. Possible liver toxicity.

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Re: Almost 6 years

Postby Punky44 » Tue Nov 06, 2018 11:37 pm

This is an awesome story—thank you for sharing!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

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Re: Almost 6 years

Postby stu » Wed Nov 07, 2018 3:03 am

That story is incredible in so many ways . I can’t believe five years later it has become available. I wish you and your wife much happiness and lots of fun in your new home .
Thank you are ever for brightening my day .
Take special care,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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Location: MO

Re: Almost 6 years

Postby Cured » Wed Nov 07, 2018 4:38 am

Kiwi, What excellent news
I hope you enjoy your life everyday
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgn Remvd 90%Rectm,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
Radiatn+5fu Pre-Surgery
FOLFOX 8 CyclDone 1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 yrs
7-18: tumor pressing against brain Removed
Metastatic to lung. CEA 6.9
CEA to 4.5 after 1 chemo
After 8rds CEA 3
CEA 1.8, 2.3,1.7,2.2,5.7,5.3,2.3
12 rds Folfiri
Avastin evy 2 wks
Seizure Anti-seiz meds work-no driving for 6 mo
4-20PET: Lung spots=Chemo

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Re: Almost 6 years

Postby dliu » Wed Nov 07, 2018 8:06 am

Good luck on the move and hope life in the new house is as wonderful as this happy coincidence - you certainly deserve it!
Caring for my mum, 65
Sigmoid resection, multiple liver mets
09/05/2018 Dx Stage IV, 6/11 LN - KRAS G12V
28/05/2018 First round of FOLFOX + Avastin

CEA down from 6000+ (05/2018) to 843 (08/2018) to 377 (11/2018)
9/10 rounds with Oxaliplatin
8/10 rounds with Bevacizumab

Deb m
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Re: Almost 6 years

Postby Deb m » Wed Nov 07, 2018 8:48 am

That is such great news. It's like a totally new start at life!

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Location: SE Michigan USA

Re: Almost 6 years

Postby GrouseMan » Wed Nov 07, 2018 9:41 am

Congratulations on the anniversary and the house! I will be closing on the sale of the House my wife and I built to retire to on Friday. She worked hard to pay it off so we would own it free and clear before we retired. Its a much nicer house than the one I live in now, but upon her diagnosis we seldom got away and went there and after she passed away it was difficult for me to do so. Taxes, insurance, utilities on it have made it an expensive luxury since I can not yet retire. I also couldn't move there because it was too isolated (no phone or cell signals, no HS internet which I need for work and a long drive to an airport if I have to travel for business). Its all bittersweet as our 36th anniversary would have been Monday the 5th. So enjoy the move and new home - hopefully it won't be a stressful move. Hire someone to do it for you to take some of the stress away.

Good luck
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

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Re: Almost 6 years

Postby muskokamike » Wed Nov 07, 2018 10:04 am

Hey Kiwi

Back in March 2014 I made my first post and you were the third reply with encouraging words. Congrats on your house and your 6 years NED. I am positive that many will gravitate to your post for encouragement and hope like we both did in the early days.

53M Dx rc10/31/13
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR/pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 clear CT scan
Sep/19 clear CT scan DISCHARGED!
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal

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Re: Almost 6 years

Postby CRguy » Wed Nov 07, 2018 11:09 am

Well done Kiwi
keep kickin' BUTT and taking names

Enjoy LIFE !!

Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Re: Almost 6 years

Postby Phuong » Wed Nov 07, 2018 11:24 am

Congratulations Kiwi! It was meant to be.
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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Location: Richmond, VA

Re: Almost 6 years

Postby crikklekay » Wed Nov 07, 2018 1:56 pm

That is so amazing, I'm so happy for you!!
Caring for DH John
Colon Cancer, Sigmoid colon
G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD
06/19 Colonoscopy Clear
08/19 CT Scan Clear
08/20 CT Scan Clear

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