For those previously advised no surgery.....

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Trying
Posts: 63
Joined: Sun May 13, 2018 10:11 pm

For those previously advised no surgery.....

Postby Trying » Tue Nov 06, 2018 3:38 pm

Hello all,
Those of you who were advised that your liver mets were not an option for surgery, how long on chemo before you were able to have surgery. Im sure it varies widely but just curious. Surgery hope is what im hanging onto .....

Trying
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets April 2018
Folfox as of June 2018

hiker
Posts: 73
Joined: Thu Aug 09, 2018 10:15 am

Re: For those previously advised no surgery.....

Postby hiker » Tue Nov 06, 2018 4:06 pm

If you are only doing systemic chemo, it may never get you to operable. I don't know where you're being treated or even what chemo you are on, but I was told by 4 oncologists that surgery was not an option for me. That was until I visited MSK in NYC. Not only did they remove all the cancer in my liver, but they implanted an HAI pump to hopefully prevent a recurrence - no guarantee, but I'll take any advantage I can get.

Are you being treated at a major cancer center? Have you obtained second, third or even fourth opinions? If not, I urge you to contact a facility that specializes only in cancer care.

hiker
Colonoscopy 2/17, 5cm tumor descending
Diagnosed stage iv, liver mets 3/17
Colon resection 3/17
Told surgery not an option, get my affairs in order
Meet w/MSK team 5/01/17
Folfox(3rds) 5/17-6/17
Liver resection/implant HAI pump 7/17
HAI pump chemo(5rds) 8/17-2/18
Folfiri+Vectibix(11rds) 8/17-2/18
Spot on chest CT 10/17
Lung biopsy (that was fun) 11/17
Nocardia bacterial infection w/spread to brain (this is serious) 11/17
IV antibiotics 12/17-2/18
Oral antibiotics 3/18-present
Clear of cancer since surgery

User avatar
LeonW
Posts: 348
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: For those previously advised no surgery.....

Postby LeonW » Tue Nov 06, 2018 4:29 pm

Hi Trying,

I was in your shoes 6 yrs ago when docs decided it was best to attack the colon first, as liver mets were too big for surgery. Chemo started some 6 weeks after the colon job. Mets shrunk from cycle three. All in all the liver resection was almost 9 months after the colon job: first 6 weeks recovery from colon surgery, then 8 cycles of chemo and then another 6 weeks waiting time to get rid of chemo remnants. Have been cancer free for 5 yrs now and life is back to almost normal. Even forgot to celebrate the 5 yr anniversary two weeks ago :shock:

Best wishes - Leon
Dec 2012 CC (7 cm mass), 2 unresect liver mets, CEA 41.8 (MM @65yrs)
Jan 2013 colectomy @ spleen, 2/26 nodes IVa T3N1bM1a MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed PV embolization
Oct 2013 - R liver resect 28 hosp days (delirium, liver failure, emboli, encephalopathy) pCR - no cancer cells
2014/15 - recovery; scopy finds polyp
2016 - new town, new life
June 2018 - 5 yr mark, 2 polyps
clean CTs and (1.3-1.4) CEAs: 4x2014, 6x2015-17, 1x2018; next June 2019

stu
Posts: 875
Joined: Sat Aug 17, 2013 5:46 pm

Re: For those previously advised no surgery.....

Postby stu » Tue Nov 06, 2018 4:34 pm

6 cycles for my mum .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Trying
Posts: 63
Joined: Sun May 13, 2018 10:11 pm

Re: For those previously advised no surgery.....

Postby Trying » Tue Nov 06, 2018 6:40 pm

Im at a major cancer center in Canada BC. Already on my second oncologist as he had morw info than the first one. He is talking about pissible surgery in future but not yet. Thats why i thought i would ask you all.
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets April 2018
Folfox as of June 2018

Trying
Posts: 63
Joined: Sun May 13, 2018 10:11 pm

Re: For those previously advised no surgery.....

Postby Trying » Tue Nov 06, 2018 6:41 pm

Im at a major cancer center in Canada BC. Already on my second oncologist as he had morw info than the first one. He is talking about pissible surgery in future but not yet. Thats why i thought i would ask you all.
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets April 2018
Folfox as of June 2018

martd
Posts: 53
Joined: Tue Nov 21, 2017 3:48 pm

Re: For those previously advised no surgery.....

Postby martd » Tue Nov 06, 2018 9:25 pm

I did 10 rounds before first lever surgery then 2 more before the second. At my first scan my oncologist told me I wouldn't have surgery, he talked about maintenance chemo. The scan showed about 40% shrinkage. My surgeon told me in the beginning there was potential for surgery with a good response form chemo. Then the second scan showed another 30% shrinkage. Surgery was successful with clear margins. So don't give up, talk with the surgeon if the oncologist is saying no. After round 8 I did two more rounds without avastin.
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT
12 rounds folfox , avastin / oxi
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7

Trying
Posts: 63
Joined: Sun May 13, 2018 10:11 pm

Re: For those previously advised no surgery.....

Postby Trying » Tue Nov 06, 2018 10:11 pm

Thank you so much for all your replies.
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets April 2018
Folfox as of June 2018

Detox
Posts: 31
Joined: Fri Apr 28, 2017 5:27 pm

Re: For those previously advised no surgery.....

Postby Detox » Wed Nov 07, 2018 2:00 pm

Also, I have read about other members on here who have treated liver lesions one at a time using ablation, cryo, etc. I've never done it myself but I think doctors can get rid of difficult tumors using different techniques. So once you have maybe some tumors that are not currently operable, maybe they can just get rid of those, and then get to surgery later.


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