Surgeon Recs for colovesical fistula with radiated tissue

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TechieTechie
Posts: 1
Joined: Mon Nov 05, 2018 8:30 am

Surgeon Recs for colovesical fistula with radiated tissue

Postby TechieTechie » Mon Nov 05, 2018 8:50 am

Hi all,

My dad is a 19 year prostate cancer survivor, but he has recently discovered he has a colovesical fistula (likely involving his sigmoid colon). After a week of fighting a blood infection (ecoli) and inflammatory arthritis, he is recovering and getting closer to having surgery. The surgery will be challenging, as he had 47 doses of old school beam radiation for his prostate cancer (which, from our research, can make the colon tissue very friable) and he has continually had fecal incontinence (particularly in the AM) since his radiation treatments.

I have been reading up on this forum (thank you, thank you, thank you) for all the great tips. We are at a major academic medical center, with several ASCRS surgeons on staff. However, we have received a backdoor recommendation from another doctor to NOT have the surgery here, as the residents run the service (not such a good idea for such a complex case). My dad is a very active dude, works on his boat 6+ hours a day. Would he accept a colostomy bag, yes, but we would love to resolve the fistula, and maybe even the fecal incontinence issue, with this surgery.

Ideally, we'd love to find a highly recommended FL surgeon with plenty of experience in tough cases like this, as FL will provide the best insurance coverage..but I am willing to fight his insurance to have him seen by either Ronald Bleday at the Brigham or Liliana Bordeianou at MGH (where I live) if need be.

Any recommendations, either in this thread or via PM, would be greatly appreciated.

Thanks,

Techie

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Surgeon Recs for colovesical fistula with radiated tissue

Postby Badass » Tue Dec 01, 2020 8:00 pm

Hi There,
I may have a colovesical fistula and wondered where your father ended up having surgery. I hope he is doing well and had a successful surgery.

Thank you
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Surgeon Recs for colovesical fistula with radiated tissue

Postby Lee » Tue Dec 01, 2020 8:27 pm

Badass,

I would recommend PM him personally. After 2 yrs, this person is not on this forum anymore. If you PM this person, he should get some type of personal message in his email to check this forum for a message.

Good luck.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Surgeon Recs for colovesical fistula with radiated tissue

Postby Badass » Tue Dec 01, 2020 9:01 pm

OK, thanks
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Surgeon Recs for colovesical fistula with radiated tissue

Postby CRguy » Wed Dec 02, 2020 1:04 am

OR email directly via clicking on the "contact" icon under the member name info in the upper right of the post
it should give you a PM and email option.

Cheers Badass
and ... I replied into your other topic !!!
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Surgeon Recs for colovesical fistula with radiated tissue

Postby Badass » Wed Dec 02, 2020 8:16 pm

Thank you!
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)


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