New here from Philippines

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kaloy85
Posts: 2
Joined: Sun Nov 04, 2018 8:41 pm
Facebook Username: carlo angelo pagulayan

New here from Philippines

Postby kaloy85 » Sun Nov 04, 2018 8:58 pm

Hi all,
I am from the Philippines and i am learning a lot about this disease just reading from different topics. I was diagnosed with stage 3 colon cancer (T2N1; 2/12 pos lymph nodes) (32y.o.) last April2018. had a successful colon resection with negative margins. completed 6 cycle xelox treatment (4x with oxy, 2 with xeloda only). had a clear post chemo CT scan last october. Its been a month now post chemo, but its still hard to let go fear and anxiety of the cancer coming back. Do i have a good prognosis based on my pathology? can anyone suggest on how to deal with mild neuropathy on hands and feet? though its not limiting my daily activities, it is still bothersome though.Thank you all for the inputs!

Lee
Posts: 5722
Joined: Sun Apr 16, 2006 4:09 pm

Re: New here from Philippines

Postby Lee » Mon Nov 05, 2018 1:32 am

kaloy85 wrote:Hi all,
. . . Its been a month now post chemo, but its still hard to let go fear and anxiety of the cancer coming back. Do i have a good prognosis based on my pathology? can anyone suggest on how to deal with mild neuropathy on hands and feet? though its not limiting my daily activities . . . !


One day at a time. I'm coming up on a 15 yr stage IIIC rectal cancer diagnoses. Somethings you adjust to, other go away. Me I have nerve damage in my ears thanks to FOLFOX, In time, you learn to live with your new normal. Again one day at a time. . . .

You will soon learn, we have other people from the Philippines.

All the best,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Eleda
Posts: 182
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: New here from Philippines

Postby Eleda » Mon Nov 05, 2018 7:00 am

I'm due reversal after X mas and still have anxiety about reacurance,,
Don't think it will ever go away
When do u celebrate???
A friend says 'celebrate untill further notice" lol
Easier said than done
I think u just learn to manage Ur anxiety,, because I think it will never go away!!!!!!!!
So Ur not alone and other people usually don't understand........
They think u should be happy after a clean scan,,,
but in the beginning I think we then just begin to worry about the next scan ( no chemo ) panic!!!!!!!
Then the second one is more important,,
Maybe the third, fourth,, it's always there,
I know for me it's early stages and eventually maybe like Lee,,, we will calm done and worry less
Sorry I'm probably not much help but only to know Ur not alone in theees feelings!!!!!!!!!!

Adele X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Deb m
Posts: 441
Joined: Tue Jan 14, 2014 10:08 am

Re: New here from Philippines

Postby Deb m » Mon Nov 05, 2018 11:08 am

The fear you have of a re- occurrence happening is normal. My husband is 8 years out and I still freak out every time he gets a weird stomach ache, diarrhea or anything at all. My sister is over 25 years out from being a lymphoma survivor and she too still has anxiety at times. I don't think it ever really goes away, but it does get better as time goes on. Han
in there!

Deb m

zephyr
Posts: 136
Joined: Thu Aug 18, 2016 7:31 am

Re: New here from Philippines

Postby zephyr » Mon Nov 05, 2018 1:55 pm

Several years ago, I went though hypnosis for a medical reason. Before the session, I had a get-to-know you talk with the psychologist. It turned out that she did volunteer work with HIV patients, helping them with anxiety and pain control. One thing she mentioned that I never forgot: she reminded them how lucky they were to have the time to say goodbye. Unlike say someone who dies suddenly of a heart attack or in a car accident, these patients had TIME.

You’re Stage III, I’m Stage IV — we both still have time to make the best of whatever time we have left, to say our goodbyes, the give forgiveness to ourselves and others, to give love, to leave no affections unspoken, to leave our mark. Maybe weeks, maybe months, maybe years ... but we have the time to make it happen. As much as I want to go back to the time before DX, I recognize this period as a gift.

Sorry to get all sappy on you. Hope this helps. As others have said, the fear of recurrence is normal and understandable. So turn it around by making today count - that’s my strategy (it works better some days than others).
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed

kaloy85
Posts: 2
Joined: Sun Nov 04, 2018 8:41 pm
Facebook Username: carlo angelo pagulayan

Re: New here from Philippines

Postby kaloy85 » Mon Nov 05, 2018 6:02 pm

Thanks for all the reply! i guess its time for me to learn to live within the moment, not to dwell on the past and to not think too much of the future. Though its hard, but again, one day at a time as you all mentioned! is T2/N1 a good prognosis in terms of recurrence free? cause i got different views from different studies.


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