Extra stoma supplies

Please feel free to read, share your thoughts, your stories and connect with others!
rtcasper
Posts: 41
Joined: Sat Aug 04, 2018 12:12 pm
Location: Ohio

Extra stoma supplies

Postby rtcasper » Sun Nov 04, 2018 8:47 pm

Hi everyone, I've got a few extra stoma supplies that I'm not going to use and was wondering if anybody here might need them or have any ideas on what I should do with them?

Some barrier rings, flat coloplast 1 piece pouches (4), belts and mefix self adhesive fabric-all unopened. If you need anything let me know and it's yours,or thoughts on what to do with them. Seems a waste to discard.

Thanks
By the glory, by the grace, by the strength of God, I will be made whole.

43-M
Aug 3, 18-colonoscopy, 5cm mass 12cm from AV rectal cancer
Aug 16-MRI
Aug 17-CT,chest and pelvis
CEA-.99-likely not a good marker
Clinical DX-T2/T3n1 -3cm mass, 13.5 from AV-might be colon? - let surgeon make determination
5 days radiation, surgery 2 weeks later, followed by chemo
Sept 10-14 radiation
Sept 25-CR lap surgery, temp loop ileostomy
Oct 2-stage T1N0M0

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: Extra stoma supplies

Postby Caat55 » Sun Nov 04, 2018 11:59 pm

Check in your area for a Colostomy/Ileo Support Group. I am sure there are folks there who would be happy for the gift.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

Lee
Posts: 5722
Joined: Sun Apr 16, 2006 4:09 pm

Re: Extra stoma supplies

Postby Lee » Mon Nov 05, 2018 1:12 am

Yes check your nearest cancer survivor network organization. Me the wafer and bags I've being using for the past 12+ years is being discontinues, really :shock: !!!!

I've contacted Hollister, butt also decided seeing an Ostomy nurse may be my best path. What is new out there, etc as far as wafer and bags, etc. If it works, why try and fix it. At this point, I have no choice.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
Phuong
Posts: 1451
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: Extra stoma supplies

Postby Phuong » Wed Nov 07, 2018 3:16 am

I like to donate to Ostomy 2-1-1. It's a nonprofit run by Deb Fox. Donations can be mailed to her at the address below. She can provide you a receipt for your tax deductible donation (I think it's $50/pound).
Ostomy 2-1-1
c/o Olivet Baptist Church
1201 NW 10th St
Oklahoma City, OK 73106
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

rtcasper
Posts: 41
Joined: Sat Aug 04, 2018 12:12 pm
Location: Ohio

Re: Extra stoma supplies

Postby rtcasper » Wed Nov 07, 2018 4:56 pm

Thanks for the replies,and thank you Phuong, I'll ship them out ASAP
By the glory, by the grace, by the strength of God, I will be made whole.

43-M
Aug 3, 18-colonoscopy, 5cm mass 12cm from AV rectal cancer
Aug 16-MRI
Aug 17-CT,chest and pelvis
CEA-.99-likely not a good marker
Clinical DX-T2/T3n1 -3cm mass, 13.5 from AV-might be colon? - let surgeon make determination
5 days radiation, surgery 2 weeks later, followed by chemo
Sept 10-14 radiation
Sept 25-CR lap surgery, temp loop ileostomy
Oct 2-stage T1N0M0


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Detox, Majestic-12 [Bot] and 51 guests