I shaved my legs today. The last time I did it was likely just before my surgery because of course I wanted to look well groomed while having 18" of my guts cut out of me.
As soon as I started chemo my platelets tanked, I had regular nosebleeds, and I was on daily blood thinner shots so a nick while shaving seemed too much to deal with.
And the hair stopped growing anyway. But I noticed some this morning. Not the usual dark stubble, but soft, blonde hairs about 1/2" long.
So I shaved my legs, and that's when I realised that the neuropathy was not just in my feet but also most of the way up my legs to my knees. Some days my legs feel like they weigh 100 lbs each, but if I touch or rub them I can't really tell if they feel different because of the numbness in my fingers being such a strong sensation. Anyway, this morning I couldn't feel the razor against my skin which really surprised me.
My neuropathy went from zero to full blown after I think the 10th infusion. I mentioned it to my doctor, but at that point I was so close to being finished I think I would have fought her if she suggested dropping the oxali. It was already down to 75% because of platelet and neutrophil issues. She didn't, and I carried on as usual. I have difficulty changing earrings so I have left the same pair in for months now. One morning I timed myself and it was over 5 minutes to do up the buttons on my blouse. Fortunately it was quite loose and I was able to pull it over my head to take it off. Now all my blouses are left buttoned so I can pull them over my head rather than struggle. On a positive note I can now do my bra up the normal way behind my back which I couldn't do before.
It's my feet that are the worst though. As a result of the numbness my balance is completely shot, so closing my eyes in the shower is a definite no-no. I feel a bit like the Princess and the Pea. If I step on even the tiniest of stones it feels as if I have stepped on 2" diameter rock. And this is with shoes on and with the numbness. I know someone here recommended that I spend more time barefoot but it is hard to do in our climate. I have to be very aware when driving too, as it is hard to tell where my foot is when moving from gas to brake. Sandals that don't strap around my ankle are a definite hazard when driving. Fortunately my clutch foot seems to be able to plant itself on the pedal without an issue.
It's been 3 months now since my last infusion so my anxiety about permanency is increasing slightly, but as thubler said it is manageable.
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat
) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?