susie0915 wrote:My surgeon basically said all I needed was benefiber and Imodium. . .
My Onc told me to use that too. At that time, neither one of us knew actually why I was having so much problems (2/3 rectal muscles gone or dying). My only solution was not to eat anything until I was home for the day. Many days that was not until 3 or 4 in afternoon. I had to empty my bowels before I could leave the house in the morning. Many days I did not make it to the toilet in time. Yet taking Imodium just drrraaaggged the poop process out. In the morning I could be finished in about 30 mins sometimes less. Imodium dragged the process out to an hour or more.
My worst day, got out of bed rushing to toilet, did not make it. On the floor just before bathroom (that was not uncommon). Sat on toilet for 20 mins. Thought I was clean. Took a shower, felt that rumble, seconds later, pooped in shower. Tried to rinse off as best I could and get to other toilet. Again pooped inside toilet stall, but not in toilet. Spend another 20 min on that toilet. Decided then and there, Imodium was not the solution. Took another shower and then cleaned up all my messes.
Most days, when I finally did eat, I had one hour then sit on toilets for hours or be next to it. When ever I got a grumbling noise, if DH and I were out having an adult dinner, drop every thing and head home. Never left the home without adult diapers on. Kept protective cover for the bed, was willing to throw away pj and sheets.
When I finally saw the surgeon after radiation and she comment on those destroyed muscles, I'm thinking, no wonder, I had the same rectal control of a bird.