5 years from dx today

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muskokamike
Posts: 209
Joined: Tue Feb 25, 2014 4:38 pm

5 years from dx today

Postby muskokamike » Wed Oct 31, 2018 12:43 pm

It was five years ago today when today seemed a lifetime away.

For those new to the journey, take a deep breath, listen to your doctors, ask questions and never hesitate to get a second opinion.

Butt!!

Most importantly stay away from Dr. Google, I had myself dead and buried at least five times.

Still great to wake up on this side of the grass !!!

Mike
53M Dx rc10/31/13
and a huge WTF?....then
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR - pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 clear CT scan
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5
2.6 Sept 18
0-4 normal

Nohogirl
Posts: 69
Joined: Sun Oct 14, 2018 12:15 am

Re: 5 years from dx today

Postby Nohogirl » Wed Oct 31, 2018 2:57 pm

Congratulations!. A nice anniversary to celebrate
04/18 DH 49 diag.stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm including entire rectum out
Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
Regression Grade 3
10/29 Started Folfox

Koreysue
Posts: 24
Joined: Mon Apr 30, 2018 2:36 pm

Re: 5 years from dx today

Postby Koreysue » Wed Oct 31, 2018 4:00 pm

Great news! Love to hear this :D
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)

Ron50
Posts: 667
Joined: Fri Feb 10, 2006 7:04 pm

Re: 5 years from dx today

Postby Ron50 » Wed Oct 31, 2018 4:11 pm

Congratulations mike , wishing you continued good health and a cancer free future. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

mandosquiddy
Posts: 15
Joined: Sat Oct 06, 2018 11:45 am
Location: Colorado
Contact:

Re: 5 years from dx today

Postby mandosquiddy » Wed Oct 31, 2018 5:10 pm

Congrats. I can't wait to be in your position. I can relate to having myself dead and buried multiple times. Sometimes I feel like a cat with nine lives.
4/2017 DX: sigmoid colon cancer
colon resection with colostomy
stage II with one positive margin
5/2017 - 11/17 12 rounds of FOLFOX
11/17 - 12/17 Increase in back pain and testicular pain.
CEA increased, CT scan indicated mass on rectal portion of colon
1/18 - 2/18 25 rounds of radiation treatment
5/18 surgery, interoperative radiation, bladder/ureter modification
7/18 normal blood work and CT scan
9/18 increased CEA, mass on outside of small intestine
10/18 Debulking surgery HIPEC skipped bc complications

User avatar
CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: 5 years from dx today

Postby CRguy » Wed Oct 31, 2018 5:22 pm

muskokamike wrote:Still great to wake up on this side of the grass !!!

WORD !

Cheers and Harmony bro'
here's to MANY more mornings on this side

CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Basil
Posts: 251
Joined: Thu Mar 16, 2017 12:33 pm

Re: 5 years from dx today

Postby Basil » Fri Nov 02, 2018 10:07 pm

Love to hear it! I’m in the sweet spot for recurrence and just starting to mosey up to looking at that five year goal. Looking forward to making the same post in 3.5 years (fingers crossed).
40 y/o male, kids 6&9
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear

michelle c
Posts: 1864
Joined: Wed Dec 02, 2009 3:58 am

Re: 5 years from dx today

Postby michelle c » Mon Nov 05, 2018 7:04 am

Congratulations Mike! That's great! Wishing you well always.

I am 9 and a half years since dx. I know what you mean about Dr Google...it only heightened my anxiety but early on it was hard to stay away from it. Was so glad to find this site, it helped me so much. I was paralysed with fear initially and for a long time, but it did gradually get better and it did stop consuming my every thought.

Best wishes to all.
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

DarknessEmbraced
Posts: 3155
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 5 years from dx today

Postby DarknessEmbraced » Mon Nov 05, 2018 10:50 am

Congratulations! October 28th was 4 years since diagnosis since for me!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Cmac1275
Posts: 36
Joined: Mon Aug 06, 2018 4:21 pm

Re: 5 years from dx today

Postby Cmac1275 » Mon Nov 05, 2018 9:21 pm

muskokamike wrote:It was five years ago today when today seemed a lifetime away.

For those new to the journey, take a deep breath, listen to your doctors, ask questions and never hesitate to get a second opinion.

Butt!!

Most importantly stay away from Dr. Google, I had myself dead and buried at least five times.

Still great to wake up on this side of the grass !!!

Mike


This made my day. Or what’s left of it.
42 yr, male, husband and father of 3
01/24/2018 — Dx with Stage IV Colon Cancer and liver mets
01/26/2018 — Partial colectomy. Two thirds colon removed
02/21/2018 — CEA @ 60
03/21/2018 — Began 6 rounds of FOLFOX / Avastin
06/21/2018 — CEA @ 4.7
07/02/2018 — Right hepatic lobectomy
08/28/2018 — MRI shows new spots on remaining ("old") liver)
09/04/2018 — PET scan shows new spots on both lobes
09/05/2018 — CEA @ 2.7


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