HOPE officially three years clean

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mymom
Posts: 1283
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

HOPE officially three years clean

Postby mymom » Mon Oct 29, 2018 9:50 pm

My mom was diagnosed at Stage 4 with a liver met in May 2011. After a liver resection and chemo she was NED for almost a year. It returned. Another liver resection and more chemo. Several more bouts of NED and it returning to the liver, more chemo, an ablation in October 2015. Guess what? Today she had another clean scan. She has been NED for three years. October 21 was exactly three years NED because her ablation was October 21 2015. My mom at 72 has more energy than me some days. We owe a lot to MSK and Dr Kemeny. We never thought when we heard those words we would be here but we are. Thinking of you all.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

Punky44
Posts: 446
Joined: Mon Oct 01, 2018 4:29 pm

Re: HOPE officially three years clean

Postby Punky44 » Mon Oct 29, 2018 10:39 pm

That’s awesome! Congratulations!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Nohogirl
Posts: 116
Joined: Sun Oct 14, 2018 12:15 am

Re: HOPE officially three years clean

Postby Nohogirl » Tue Oct 30, 2018 12:50 am

Congratulations!
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
08/19 Pet Scan NED
08/19 Colonoscopy Clear

stu
Posts: 1383
Joined: Sat Aug 17, 2013 5:46 pm

Re: HOPE officially three years clean

Postby stu » Tue Oct 30, 2018 3:57 am

Fantastic news . Long may it continue .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: HOPE officially three years clean

Postby Deb m » Tue Oct 30, 2018 9:19 am

That's great news! It gives a lot of people great hope.

deb

Spazzyjanet
Posts: 54
Joined: Mon Oct 01, 2018 3:28 pm
Facebook Username: Heather Stoker

Re: HOPE officially three years clean

Postby Spazzyjanet » Tue Oct 30, 2018 11:18 am

Thank you for sharing. What is the typical scanning and monitoring schedule after reaching NED? I read that most CRC recurrences are in the second year after diagnosis, so logic would follow that scanning should be pretty frequent up until the 2-year mark at least, correct?
40 yr old, 3 kids. Dx 9/2018, Stage IV
KRAS G12V (resistant to Cetuximab)
CEA levels normal at diagnosis
4.2 cm Tumor, PT3, PN2B
11 of 18 with adenocarcinoma
+ removal of one cancerous node in Peritoneum.
9/2018, Colon resection and Ostomy-- Margins Negative
10/2018, PET shows 6 liver mets
10/2108, begin FOLFOX (Oxi+5 FU)
11/2018, MRI updates potential liver metastasis to 11 mets, both lobes.

mymom
Posts: 1283
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: HOPE officially three years clean

Postby mymom » Tue Oct 30, 2018 1:10 pm

My mom still scans every 3 months.
For some reason I am not able to inbox you. I don't check this site often so if you want to email me- feel free
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

SGNYC
Posts: 35
Joined: Mon Sep 03, 2018 9:20 pm

Re: HOPE officially three years clean

Postby SGNYC » Tue Oct 30, 2018 2:02 pm

Thank you for sharing this and best to you and your mom. MSK is amazing!
Wife to DH, 44
DX July 18 - RC at Rectosigmoid
Adenocarcinoma, Mod diff
T3N1M1
Stage IV (but MSK said not a true Stage IV at Dx)
Pos nodes: 1/18
1 Liver Met and 1 Lung Met - liver Met dead tissue at surgery, hence MSK M1 status
Baseline CEA value of 25, now 3.4
LAR (Robotic)/Liver resect(dead tissue), VATS lung - clear margins
Temp Ileo- Reversal Feb 19
Folfox - 5 Rounds Neoadj, 3 rounds Adj, then discontinued Oxali and 4 rounds just 5FU
NED and Reversal Feb 2019 - clear contrast CT, clear contrast MRI

User avatar
Phuong
Posts: 1496
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: HOPE officially three years clean

Postby Phuong » Thu Nov 01, 2018 1:01 pm

We love good news! Congratulations to you and your mom!!!
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: HOPE officially three years clean

Postby juliej » Thu Nov 01, 2018 7:54 pm

Yes! NED for three years is a BIG milestone!!! :D :D :D

Congratulations to your mom! You're a wonderful daughter and support to her!

xo,
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

mariane
Posts: 680
Joined: Sun Sep 13, 2015 6:16 pm

Re: HOPE officially three years clean

Postby mariane » Thu Nov 01, 2018 11:04 pm

Congratulations!!! Fantastic news ! Thank you so much for letting us know. Many more happy, healthy years!
mom of now 11 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

crikklekay
Posts: 102
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: HOPE officially three years clean

Postby crikklekay » Fri Nov 02, 2018 11:38 am

That's wonderful! May she be NED for many years to come!
Caring for DH John
Colon Cancer, Sigmoid colon
Adenocarcinoma
G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD
06/19 Colonoscopy Clear
08/19 CT Scan Clear
08/20 CT Scan Clear


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