stu wrote:Hi ,
I can’t contribute to the question as I am from the U.K. However I do want to just say well done for seeking out the windows of opportunity that are available for you .
Do what you need to do to get to surgery . My mum has had over ten mets removed from her liver and it’s remain clear for over seven years . The right input can make the world of difference .
All the very best ,
Stu
FightCRC wrote:Please do continue to research HAI. From your sig line, it really is something you need to look into. This message board was hugely instrumental in my learning about this procedure. Our local hospital doesn't offer it, and our local oncologist never mentioned it as an option. We had to find out about it on our own. Since the search function here requires multiple search terms, try some combination of "HAI", "Kemeny", "MSK". Also, search for board members "juliej", "mariane". "hiker". You'll find so many other posters here who have been HAI patients.
There is a lot of information on the various Facebook CRC groups, too (there is a Colontown subgroup devoted to HAI).
Closest facility to Chicago to do HAI is, I believe, Cleveland Clinic. Hope you find something that will work for you!
ginabeewell wrote:Dr Regina Stein at Northwestern is the one who mentioned to me about the new pump (when I mentioned it being discontinued). I have chemo tomorrow, I will ask if they administer it there or you would need to go elsewhere like Cleveland Clinic. (They did not mention a pump to me when I went there for my second opinion, not sure why.)
heiders33 wrote:Please post here if you find out who else manages Medtronic pump programs! I’ll try to do some of my own research as well. This will be helpful to me as I think about how long I want to keep and maintain my pump. I am sure that more and more pump programs will be switching to it as it comes online.
NHMike wrote:Mass General Hospital lists the following services including the HAI pump:
- Advanced surgical techniques to resect high risk liver masses, including ex-vivo resections (taking the liver out of the body, removing a mass and putting it back in)
- Minimally invasive operations, including laparoscopic and robotic liver resections
- Hepatic artery infusion pumps for unresectable liver cancers
- High-dose radiation with either protons or photons to downstage liver cancers so patients can undergo an operation
- Microwave or radiofrequency ablation of liver tumors, a minimally invasive procedure that uses heat to destroy cancer cells
- Nannoknife (irreversible electroporation) where an electric current destroys cancer cells
https://www.massgeneral.org/surgicalonc ... px?id=1713
mymom wrote:My mother has the old pump. Yes, msk is now doing Medtronic. I do know that it needs to be serviced more often than what my mom has but it works. It still gets FUDR into the liver.
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Users browsing this forum: No registered users and 272 guests