Hospitals that install HAI pump?

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ginabeewell
Posts: 119
Joined: Wed Oct 24, 2018 10:30 am

Re: Hospitals that install HAI pump?

Postby ginabeewell » Mon Nov 05, 2018 8:58 am

From a ColonTown thread, institutions referenced that install the pump:

MSK
NIH
Froedert in Milwaukee
OSU in Columbus
WVU Cancer Institute
Cleveland Clinic
Grand Rapids, MI (doesn't say which institution)

The thread - written by a doctor - referenced 14 places in the US but did not list them all, so I'm just piecing a list together from the comments.

From Googling, it looks like U of Wisconsin used to do the Codman pump, but not sure they do the new Medtronic pump.
45 year old mom of twins (7) and lucky stepmom of 13 and 15 year olds
9/11/18 colonoscopy
9/17/18 DX stage 4 CRC with inoperable liver metastasis (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan picked up typhlitis - hospital stay for 7 days - but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6!
1/14/18 Resume chemo (round #6), FOLFOX hold the Vectibix (for 1 round)
3/27/19 Surgery: HAI pump placement / colon resection; liver resection to follow

mariane
Posts: 649
Joined: Sun Sep 13, 2015 6:16 pm

Re: Hospitals that install HAI pump?

Postby mariane » Mon Nov 05, 2018 12:07 pm

A surgeon, who is implanting HAI pump is answering the question a about the pump on Colontown - facebook based group. First hand info available from him
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

User avatar
ginabeewell
Posts: 119
Joined: Wed Oct 24, 2018 10:30 am

Re: Hospitals that install HAI pump?

Postby ginabeewell » Mon Nov 05, 2018 5:54 pm

Here's a funny resource!

http://dev.haipump.com/haipumpfinder/

Not sure how up to date it is...?
45 year old mom of twins (7) and lucky stepmom of 13 and 15 year olds
9/11/18 colonoscopy
9/17/18 DX stage 4 CRC with inoperable liver metastasis (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan picked up typhlitis - hospital stay for 7 days - but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6!
1/14/18 Resume chemo (round #6), FOLFOX hold the Vectibix (for 1 round)
3/27/19 Surgery: HAI pump placement / colon resection; liver resection to follow

heiders33
Posts: 336
Joined: Sat Nov 04, 2017 11:08 am

Re: Hospitals that install HAI pump?

Postby heiders33 » Mon Nov 05, 2018 5:59 pm

Wow that’s incredible. I wonder how many of them are adopting and servicing the Medtronic pumps.

I deactivated Facebook several years ago but I might have to rejoin just for this group. I wonder if there’s a way I can filter everything else out....
36 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU

Rock_Robster
Posts: 47
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Hospitals that install HAI pump?

Postby Rock_Robster » Mon Nov 05, 2018 6:06 pm

This is a really helpful thread - thanks to all that have contributed! Does anyone know of any hospitals outside of the US that are skilled in installing or maintaining the HAI pump? I have international insurance but the logistics of travelling to the US for long-term treatment like HAI are not straightforward (as opposed to for, say, a one-off surgery). Thanks
Male 36 years; Melbourne, Australia
10/2018 Dx: 3.5 cm rectal adenocarcinoma, 10 cm from verge. Well/mod diff (G1-2), T3bN1bM1a.
3 enlarged local lymph nodes and 4 liver lesions.
Mutation in NRAS (G13R; exon 2, codon 13). MSS; MMR proficient.
11/18 - 6 rounds neoadjuvant FOLFOX
12/18 - DVT, started clexane
3/19 - Liver resection, clear margins

cartech78
Posts: 54
Joined: Thu Oct 25, 2018 6:22 pm

Re: Hospitals that install HAI pump?

Postby cartech78 » Mon Nov 05, 2018 11:08 pm

I’ve been lurking around on Colon town for a week or so. Lots of good info over there. Also another great Facebook group is Liver mets from CRC. Lots of people with the pump on those groups. You get to see that this pump has helped a lot of people but it has also hurt some people as well. A couple of women on some of those groups went into liver failure and need/needed liver trans plants. It puts a great perspective on this treatment. I personally still am in favor of it for myself. Another common issue i have seen regaurding this pump is the mounting of it. Quite a few people had to have it reattached due to installation issues. As far as more Hospitals doing it? NIH is doing a trial, west virgina is starting their pump program, Cleavland Clinic appears to be using them as well as NorthWestern. People have mentioned a hispital in Michigan doing them as well. Im flying to NewYork tomorrow morning to meet with Dr. Kemeny on Wednesday. I will update here when I know more.
40 Y/o male
Dx 10/5/18 stage lV CRC
Sg colon T3N1bM1a
Histologic grade-G2
7 inoperable liver mets largest 4.5 cm
Colon resection 10/6/18 clean margins
Starting FolFox on 11/12/18 3rnds
Report back to MSK on 12/18/18 for further instructions.

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cptmac
Posts: 1178
Joined: Mon Nov 19, 2007 3:15 pm
Facebook Username: Dorothy McGrath

Re: Hospitals that install HAI pump?

Postby cptmac » Wed Nov 07, 2018 10:26 pm

FWIW, I had my Medtronic Pump implanted at the University of Minnesota in 2004. I didn't have any issues with it. I drove 16 hours roundtrip for the treatment that would save my life over 14 years ago.

I don't know if the U of MN still implants the pump.
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

cartech78
Posts: 54
Joined: Thu Oct 25, 2018 6:22 pm

Re: Hospitals that install HAI pump?

Postby cartech78 » Thu Nov 08, 2018 12:16 am

I had my appointment today at MSK, was told by Dr.Kemeny to go back home and start Folfox by next week. She wants be back on 12/18 for scans and a likely surgery. She wants to see if I can get to a partial resection after 3 rounds of FolFox. And then get the pump. If I cant im guessing im just gonna get the pump. She gave me a great deal of hope today as my ONC at home would not give me any. I truly admire that woman. She is in her 70s and probably very wealthy but doesn’t retire because you can see it’s important for her to help people survive. I believe traveling from Chicago to NewYork once a month or even every 2 weeks will be tough but at the end of the day surviving or even possibly getting a shot at a cure is priceless. Today marks 1 month that I found out I had stage 4 CRC. This disease has taught me some great lessons. The most important one being there are some truly great, caring, and remarkable people in this world. I still can’t believe how many people reached out to offer help in any way they could from a ride to work if I was to sick to donating me airline miles or even offering to rake my leaves. My faith in humanity has been completely restored and I have been truly humbled.
40 Y/o male
Dx 10/5/18 stage lV CRC
Sg colon T3N1bM1a
Histologic grade-G2
7 inoperable liver mets largest 4.5 cm
Colon resection 10/6/18 clean margins
Starting FolFox on 11/12/18 3rnds
Report back to MSK on 12/18/18 for further instructions.

User avatar
ginabeewell
Posts: 119
Joined: Wed Oct 24, 2018 10:30 am

Re: Hospitals that install HAI pump?

Postby ginabeewell » Thu Nov 08, 2018 12:28 am

Thanks for the update. Sounds promising!

Did you talk at all about the pump getting filled at NW to cut back on all the travel required? Asking selfishly as it would be tough for me to manage that much travel...
45 year old mom of twins (7) and lucky stepmom of 13 and 15 year olds
9/11/18 colonoscopy
9/17/18 DX stage 4 CRC with inoperable liver metastasis (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan picked up typhlitis - hospital stay for 7 days - but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6!
1/14/18 Resume chemo (round #6), FOLFOX hold the Vectibix (for 1 round)
3/27/19 Surgery: HAI pump placement / colon resection; liver resection to follow

cartech78
Posts: 54
Joined: Thu Oct 25, 2018 6:22 pm

Re: Hospitals that install HAI pump?

Postby cartech78 » Thu Nov 08, 2018 9:57 am

ginabeewell wrote:Thanks for the update. Sounds promising!

Did you talk at all about the pump getting filled at NW to cut back on all the travel required? Asking selfishly as it would be tough for me to manage that much travel...

Yes I did ask, and its not selfish at all Gina. So they said they have done it with numerous patients and they are going to see if they can work it out with NorthWestern. So I didn’t get a firm yes or No but likely a yes. I think if you are interested in getting a second opinion from them you would have an even better chance as you already are being treated at Northwestern. You still would have to travel to NewYork pretty frequently tho. Just not every two weeks.
40 Y/o male
Dx 10/5/18 stage lV CRC
Sg colon T3N1bM1a
Histologic grade-G2
7 inoperable liver mets largest 4.5 cm
Colon resection 10/6/18 clean margins
Starting FolFox on 11/12/18 3rnds
Report back to MSK on 12/18/18 for further instructions.

mpbser
Posts: 746
Joined: Wed Apr 19, 2017 11:52 am

Re: Hospitals that install HAI pump?

Postby mpbser » Sun Dec 30, 2018 12:49 pm

There are many threads here that address the HAI pump. I am posting on here because it's a relatively recent thread.

Many of you already know that the Codman pump, the only pump that had been used for many years for CC-liver, was discontinued this past spring. https://www.nytimes.com/2018/04/25/heal ... evice.html Another company, Medtronic, makes a similar pump, but it is approved for use in the spine, not the liver.

One obstacle is that the Codman pump requires a catheter that the Medtronic pump lacks.

My husband and I went to MSK the other day and met with Dr. Kemeny. We were given literature about the trial my husband would be put in, if he was to decide to go the HAI pump route. The trial question: Is the combination of the Medtronic pump and the Codman catheter device a safe alternative to the C3000 Codman pump for delivering chemotherapy directly into the liver of patients with metastatic colorectal cancer or cholangiocarcinoma?

https://clinicaltrials.gov/ct2/show/NCT ... eny&rank=1

So, given the device situation, I think MSK is the only place currently implanting pumps. I do not know of any other trial like this.

Sigh. Since this trial has only been going on for a couple of months, I am now a bit uneasy about this route. Anyone here part of the trial????? How's it going?????
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0, 2.9, 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows met
Resection & HAI Mar 7

cartech78
Posts: 54
Joined: Thu Oct 25, 2018 6:22 pm

Re: Hospitals that install HAI pump?

Postby cartech78 » Sun Dec 30, 2018 1:42 pm

mpbser wrote:There are many threads here that address the HAI pump. I am posting on here because it's a relatively recent thread.

Many of you already know that the Codman pump, the only pump that had been used for many years for CC-liver, was discontinued this past spring. https://www.nytimes.com/2018/04/25/heal ... evice.html Another company, Medtronic, makes a similar pump, but it is approved for use in the spine, not the liver.

One obstacle is that the Codman pump requires a catheter that the Medtronic pump lacks.

My husband and I went to MSK the other day and met with Dr. Kemeny. We were given literature about the trial my husband would be put in, if he was to decide to go the HAI pump route. The trial question: Is the combination of the Medtronic pump and the Codman catheter device a safe alternative to the C3000 Codman pump for delivering chemotherapy directly into the liver of patients with metastatic colorectal cancer or cholangiocarcinoma?

https://clinicaltrials.gov/ct2/show/NCT ... eny&rank=1

So, given the device situation, I think MSK is the only place currently implanting pumps. I do not know of any other trial like this.

Sigh. Since this trial has only been going on for a couple of months, I am now a bit uneasy about this route. Anyone here part of the trial????? How's it going?????

So im getting the pump installed in about a month at MSK with Kemeny/Kingham. There are a few other hospitals doing the new pump. Spectrum health in Grand Rapids Michiagan is one of them. I believe NIH is doing a trial on them niw and Duke is also starting a pump program. Northwestern is also planning on starting a pump program.
40 Y/o male
Dx 10/5/18 stage lV CRC
Sg colon T3N1bM1a
Histologic grade-G2
7 inoperable liver mets largest 4.5 cm
Colon resection 10/6/18 clean margins
Starting FolFox on 11/12/18 3rnds
Report back to MSK on 12/18/18 for further instructions.

mpbser
Posts: 746
Joined: Wed Apr 19, 2017 11:52 am

Re: Hospitals that install HAI pump?

Postby mpbser » Sun Dec 30, 2018 1:45 pm

haha! I just PMed you cartech and you answered my question! We did not make a decision yet for a number of reasons including the fact that Dr. Kemeny has us coming down this week for a PET scan to confirm that my husband has mets. Upon review of his MRI the other day, they were not so sure!
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0, 2.9, 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows met
Resection & HAI Mar 7

mpbser
Posts: 746
Joined: Wed Apr 19, 2017 11:52 am

Re: Hospitals that install HAI pump?

Postby mpbser » Sun Dec 30, 2018 1:46 pm

P.S. It's good to know how far out these procedures are being booked there. We are expected to meet with Dr. Kingham before making the decision. I'm surprised at how quickly you got yours scheduled.
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0, 2.9, 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows met
Resection & HAI Mar 7

heiders33
Posts: 336
Joined: Sat Nov 04, 2017 11:08 am

Re: Hospitals that install HAI pump?

Postby heiders33 » Sun Dec 30, 2018 1:56 pm

They are doing that trial because Medtronic wants it, but Kemeny seemed to write it off as a bureaucratic thing when I asked her about it. I wouldn’t worry about it.
36 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU


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