Rock_Robster wrote:I got second opinions from Dana-Farber and another smaller centre, and have one underway with MSKCC for my peace of mind. All generally aligned so far, but of course it’s early days.
Hi Rock Lobster, sorry to hear about your recent bad luck. Hope the DVT is not too painful and heals up quickly. I'm in Australia too and just curious how you got second opinions from Dana-Farber and MSKCC? Did you fly to the US or are you doing this remotely somehow? And I'm assuming it would not be covered by Medicare/insurance so you are paying for this out of pocket?
Hi Del, both MSKCC and Dana-Farber do Remote Second Opinions which you can start via their website. No doubt this isn’t the same as being seen in person but it did help my peace of mind without yet having to travel to the US. Of the two, I found the MSKCC opinion to be a bit more helpful, faster turnaround, and also a bit cheaper.
As far as I’m aware Medicare doesn’t cover it; for insurance however probably best to check with the insurer directly - mine did but it was an international fund so may not be the norm. Good luck and let me know if I can be of any help with this.
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed liver spot
08-11/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 5
12/19 - Planned liver resection #2 & (01/20) stoma reversal