Time from dx to first treatment?

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Punky44
Posts: 453
Joined: Mon Oct 01, 2018 4:29 pm

Time from dx to first treatment?

Postby Punky44 » Tue Oct 23, 2018 3:05 pm

Curious what others’ experiences are, whether it be colon or rectal cancer. How many days until first treatment from the time you were diagnosed? What’s typical?

margiej
Posts: 104
Joined: Sat Apr 14, 2018 8:46 am

Re: Time from dx to first treatment?

Postby margiej » Tue Oct 23, 2018 3:37 pm

I was diagnosed on December 17, 2015, a couple weeks after my colonoscopy. My resection surgery was January 20, 2016 and my chemo started March 4, 2016.
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/2017 and 1/2020
CT 10/3/17 clear
CT 10/17/18 clear
CT 10/17/19 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

Nohogirl
Posts: 116
Joined: Sun Oct 14, 2018 12:15 am

Re: Time from dx to first treatment?

Postby Nohogirl » Tue Oct 23, 2018 4:01 pm

My husband was diagnosed mid April. Started his chemo radiation in on May 20th.

Had his surgery on August 14 and only tomorrow October 24 will start his first chemo(due to the delay by insurance)

Our colorectal oncologist at USC told us that they normally wait 8 weeks from surgery to start the chemo. Longer is not recommended.

Hope this helps.
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
08/19 Pet Scan NED
08/19 Colonoscopy Clear

Chickspeed
Posts: 43
Joined: Sat Jun 17, 2017 5:16 am

Re: Time from dx to first treatment?

Postby Chickspeed » Tue Oct 23, 2018 5:22 pm

81 days from discovery to first treatment
12/15/2016 Mod Diff tumour 5-6 cm 10-12 cm fr AV T3 tumour cea 1.4
12/29/2016 CT no spread ln normal
1/19/2017 MRI confirms mass and shows 3 enlarged LN (suspected to be infection draining)
3/6/2017 25 sessions chemoradiation
6/20/2017 LAR with temp loop ileo
7/10/2017 Path 20mm margins tumour 0.1 CM with microscopic invasion of submucosa
aug-dec 2017 6 rnds xeloda
1/9/2018 CT all clear
1/18/2018 Colonoscopy clear
3/27/2018 ileo reversal
CEA continues to be normal

jep
Posts: 260
Joined: Sun Jun 11, 2017 7:45 pm
Location: New England, USA

Re: Time from dx to first treatment?

Postby jep » Tue Oct 23, 2018 5:39 pm

My husband was diagnosed in May 2017 and started chemo in August 2017 . . . so a little over 3 months . . . he had a very long recovery from surgery
Stage IV CC 5/16/17
Loc: recto-sig
Type: Adenocarcinoma
Size: 7.4 cm
Grade: G3
TNM: T3N2M1
LNs: 8/20
BL CEA: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps
PET 10/17/18: 3 pos LNs
Irino + Vecti (11/18)
CEA: 1.7 (2/19)
Xel + rad (5/19)
Surgery: 8/21/19 (aborted)
P1 Trial 10/19 - 12/19
Bypass 12/6/19
Folfox + vecti 1/2/19 - 4/3/20
Kid Fail 5/1/20
Folfiri + Avastin 5/20 - 6/20
bypass 6/29/20
Stivarga 7/18/20 -
Home 9/10/20

NHMike
Posts: 2506
Joined: Fri Jul 21, 2017 3:43 am

Re: Time from dx to first treatment?

Postby NHMike » Tue Oct 23, 2018 6:12 pm

I went to the ER on June 23, 2017 and received an informal diagnosis but we knew what it was. I started Chemo and Radiation on July 31, 2017 so six weeks from diagnosis to treatment. It took me two weeks to get second opinions and we could have started two weeks earlier without those appointments. I do think that it's better to get started sooner rather than later. The actual pathology came back the week after the ER visit. I was very fortunate that they could do the colonoscopy the same day that I arrived in the ER.

This was for rectal cancer - I think that things can be faster for colon cancer because the treatment order is significantly different.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Rikimaroo
Posts: 324
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Time from dx to first treatment?

Postby Rikimaroo » Tue Oct 23, 2018 6:18 pm

I was diagnosed December 19th 2016, start Chemo/Radiation February 2017. I didn't do surgery which was scheduled for June 2017. When I had recurrence and liver metastasis In october of 2017, i started Folfox December 2017 thru February 2018. Then Surgery April 2018 and chemo again from June 2018 to August 2018. Surgery for Reversal October 2018.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri

del
Posts: 118
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: Time from dx to first treatment?

Postby del » Tue Oct 23, 2018 7:07 pm

Colonoscopy on 26 Feb, diagnosis on 3 Mar and surgery on 23 Mar.
Male, 33 @ dx, stage 1 RC (T1N0M0 mod. diff. 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE
2019-04 - Became a dad :)

Jannine
Posts: 189
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Time from dx to first treatment?

Postby Jannine » Tue Oct 23, 2018 7:34 pm

With my colon cancer, things went very quickly for me. I went into the ER with fever and abdominal pain on my GI Nurse Practitioner's orders; it was the day before I had a second Cat scan scheduled. Got the Cat scan about 12 hours earlier than scheduled in the ER, colonoscopy a couple days after that, surgery to remove 24cm of my colon 2-3 days after that, and they finally sent me home 2 days after surgery. I was in a major cancer center to begin with, so I knew who would be my oncologist by the time I went home. I was on a liquid diet the whole week I was in the hospital and they did consider sending me home at times, but I'm glad they kept me in the hospital to expedite the tests and procedures. I was close to having a blockage and potential perforation, and that's why they wanted to address things ASAP rather than sending me home. I had 1 month to recover from surgery before starting chemo.

I'm pretty sure the recommendation is to begin chemo within 4 weeks of surgery, but when the surgery happens relative to diagnosis can vary. I'm no expert but it sounds like rectal cancer tends to involve treatment before surgery, unlike colon cancer.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

User avatar
mobrouser
Posts: 156
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Time from dx to first treatment?

Postby mobrouser » Tue Oct 23, 2018 8:51 pm

Diagnosis Oct 23 2017 (it's my anniversary today)
Surgery Dec 4 2017
Chemo Jan 16 2018

I was not disappointed or upset with the timing.

8) mob
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Cancerclan
Posts: 6
Joined: Tue Oct 23, 2018 11:21 pm

Re: Time from dx to first treatment?

Postby Cancerclan » Tue Oct 23, 2018 11:29 pm

I was diagnosed in January of 2015, had surgery (colon resection) April 7, 2015 and chemo two weeks later. I had very slow growing low stage colon cancer with two close by lymph nodes involved.

zephyr
Posts: 297
Joined: Thu Aug 18, 2016 7:31 am

Re: Time from dx to first treatment?

Postby zephyr » Wed Oct 24, 2018 1:39 am

DX the first week of June during a routine colonoscopy, surgery the last week of June, and chemo started the first week of August.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 - ? Xeloda/Avastin, SBRT, continue Xeloda/Avastin

Eleda
Posts: 328
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Time from dx to first treatment?

Postby Eleda » Wed Oct 24, 2018 3:11 am

I was DX DEC 4TH
Began chemoraiation JAN 3RD
Surgery may 10th
Chemo Folfox July 10th (6 rounds oxi 8 rounds 5FU)
Due to finish this Friday!!!!!!!!!!
Reversal due in Dec/Jan ( my choice)
Apparently then all done!!!!!!

Pretty much a hear in it
ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

tater
Posts: 128
Joined: Wed Jul 19, 2017 5:53 pm

Re: Time from dx to first treatment?

Postby tater » Wed Oct 24, 2018 7:58 am

My wife had rectal cancer and it took about 8 weeks before they started chemo/radiation.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18
Small Spot on right ureter surgery 10/30/19 adhered to artery
Dec. 2 start 12 rounds FOLFIRI

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: Time from dx to first treatment?

Postby Deb m » Wed Oct 24, 2018 9:27 am

Dx on Janruary30th, surgery on February4th, first chemo on March 3rd.

deb m


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