Good news

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margiej
Posts: 104
Joined: Sat Apr 14, 2018 8:46 am

Good news

Postby margiej » Mon Oct 22, 2018 7:53 pm

I had a CT scan of pelvis, abdomen, and chest last Wednesday.
I was particularly worried since I hadn't had a chest scan since before I started chemo. The radiologist faxed the report to the wrong number at the clinic, so after a long weekend, finally got the results this morning and all clear.. No sign of cancer. So very thankful. I am almost three years out from the routine colonoscopy that found my cancer....I hope to keep the NED streak going for many, many years to come.

Something my doctor mentioned at my visit last week... That there is a growing consensus for fewer scans .. that the radiation and contrast isn't good for the patient and that frequent scans don't increase life span. Has anyone else heard that? I am only scanned once a year as it is. I don't know how I feel about being scanned less. I do hate the scans... My stress was pretty significant. Hemp gummies got me through. :)
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/2017 and 1/2020
CT 10/3/17 clear
CT 10/17/18 clear
CT 10/17/19 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: Good news

Postby Trying » Mon Oct 22, 2018 8:15 pm

Happy for your Ned status!
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Punky44
Posts: 453
Joined: Mon Oct 01, 2018 4:29 pm

Re: Good news

Postby Punky44 » Mon Oct 22, 2018 9:28 pm

Congratulations!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: Good news

Postby Lee » Mon Oct 22, 2018 9:58 pm

Congratulations on being in NEDville. Yes getting scans has been an issues. Me personally, I wanted them. Chemo has taken a toll on my body, "that" more than likely the scans will catch up with me first. I've heard more than once, I want to be around in 15 to 20 years and "experience" the results of all those scans have done to my body.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
mobrouser
Posts: 156
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Good news

Postby mobrouser » Mon Oct 22, 2018 10:10 pm

Congratulations on your second year of NED!!!

I finished chemo and had CT scan in August and had PET scan in September. I was then given my 5 year plan based on a new protocol that was just being implemented.

Blood tests with CEA, plus ultrasound and x-ray at 6 months, 18 months, and so on. Blood tests with CEA, plus CT scan at 12 months, 24 months, and so on. Colonoscopy every 12 months on anniversary of surgery. I was told this was the new protocol and that after 36 months NED it my be reviewed. The reason I was given was as you said, risks outweighed the benefits of more frequent scans. I am in Ontario, Canada if that makes a difference?

I would be interested to hear others opinons on the benefits of more frequent scans.

8) mob
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Nohogirl
Posts: 116
Joined: Sun Oct 14, 2018 12:15 am

Re: Good news

Postby Nohogirl » Tue Oct 23, 2018 12:01 am

That's awesome! Wishing you many many more nice and clean CTs and MRIs :)
I get so excited everytime I see a new post titled GOOD NEWS.

These good news add more and more hope in the hearts of those who just landed in the world of cancer.
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
08/19 Pet Scan NED
08/19 Colonoscopy Clear

NHMike
Posts: 2506
Joined: Fri Jul 21, 2017 3:43 am

Re: Good news

Postby NHMike » Tue Oct 23, 2018 7:37 am

There was an article in the WSJ about the chemicals used in contrast and fewer may be better but peace of mind is worth something too.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

DarknessEmbraced
Posts: 3524
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Good news

Postby DarknessEmbraced » Tue Oct 23, 2018 11:37 am

Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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