STAGE IV NED 6 1/2 years and 10 years out from dx

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dianetavegia
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STAGE IV NED 6 1/2 years and 10 years out from dx

Postby dianetavegia » Sat Oct 20, 2018 8:24 am

MRI: No evidence for recurrent or metastatic disease. CAT SCAN: Lung nodules are all stable going back many years. No new or enlarging nodules. (He actually says later benign since first scan in Jan. 2009).

I can't begin to tell you how much this specific 'date' means to me! A study done in 2015 cited numbers that says

After 6.48 years, patients alive without tumor recurrence can be considered cured with 99 % certainty.
https://link.springer.com/article/10.1245/s10434-014-4234-0

Solitary Colorectal Liver Metastasis Resection Determines Outcome

Researchers at M.D. Anderson Cancer Center at the University of Texas
prospectively studied patients with a first solitary liver metastasis who
were treated either with hepatic resection or radiofrequency ablation. ....

A present study shows an 80% 3-year survival rate (and a 71% 5-year survival
rate) after HR and well-established data showing 10- and 20-year survivors
after HR of solitary and multiple metastases, even without adjuvant
chemotherapy
This study dispels the thought process that other methods, such as radiation, are as curative as hepatic resection.

Warning: Christian remark so if this offends you, stop reading at this line.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I have to Praise the LORD for my healing and am so thankful for every day He has seen fit to give me. May I honor Him by using this time to help others who are dealing with cancer by bringing them hope.


“This is the confidence we have in approaching God: that if we ask anything according to His will, He hears us. And if we know that He hears us – whatever we ask – we know that we have what we asked of Him.” 1 John 5:14-15

James 5:14-16 “Is any one of you sick? He should call the elders of the church to pray over him and anoint him with oil in the name of the Lord. And the prayer offered in faith will make the sick person well; the Lord will raise him up. If he has sinned, he will be forgiven. Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective.”

Diane
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since dx and 6 1/2 years post liver resection.
NED Oct. 2018

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

Punky44
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Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby Punky44 » Sat Oct 20, 2018 8:47 am

So awesome!! Congratulations and praise to God!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
MRI/CT/PET puts staging at T3N2M0
Trying total neoadjuvant therapy—chemo first, then short course radiation, then surgery
11/5/18 started Folfox—1 down, 7 to go!

Detox
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Joined: Fri Apr 28, 2017 5:27 pm

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby Detox » Sat Oct 20, 2018 11:24 am

Awesome! Great news and great info also.

Nohogirl
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Joined: Sun Oct 14, 2018 12:15 am

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby Nohogirl » Sat Oct 20, 2018 12:02 pm

Oh my God. That's awesome. Congratulations!!
04/18 DH 49 diag.stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm including entire rectum out
Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
Regression Grade 3
10/29 Started Folfox

Spazzyjanet
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Joined: Mon Oct 01, 2018 3:28 pm
Facebook Username: Heather Stoker

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby Spazzyjanet » Sun Oct 21, 2018 6:27 pm

Congratulations!
40 yr old, 3 kids. Dx 9/2018, Stage IV
KRAS G12V (resistant to Cetuximab)
CEA levels normal at diagnosis
4.2 cm Tumor, PT3, PN2B
11 of 18 with adenocarcinoma
+ removal of one cancerous node in Peritoneum.
9/2018, Colon resection and Ostomy-- Margins Negative
10/2018, PET shows 6 liver mets
10/2108, begin FOLFOX (Oxi+5 FU)
11/2018, MRI updates potential liver metastasis to 11 mets, both lobes.

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cecioboe
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Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby cecioboe » Sun Oct 21, 2018 9:12 pm

Thanks be to God! Thrilled for you!
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
10/22/12 - 10/3/18 NED
De-ported 6/24/16

mymom
Posts: 1257
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby mymom » Mon Oct 29, 2018 10:05 pm

So happy for you
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16 NED

stu
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Joined: Sat Aug 17, 2013 5:46 pm

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby stu » Tue Oct 30, 2018 4:00 am

Yippee . Lots to inspire .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

teacher2017
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Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby teacher2017 » Thu Nov 08, 2018 6:08 am

Thank you for this! All of it! I just had a liver resection in a met which was written up to be two small ones (looked like a dumbbell). I really hope those stats are correct and this Is oliometastatic disease.

Congrats! And enjoy life!
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8/17-4/18
CEA level- 1.4 11/8/17
Colonoscopy- 5/30/18 - CLEAR!
Cea level- 1.8 6/1/18
Cea level- 2.1. 8/4/18
Sh$t has hit the fan- 8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection- 9/12/18

Spazzyjanet
Posts: 47
Joined: Mon Oct 01, 2018 3:28 pm
Facebook Username: Heather Stoker

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby Spazzyjanet » Thu Nov 08, 2018 12:31 pm

Wow. Your post gives me a lot to think about. If those numbers are true, then the stats for liver resection are higher/ more positive than the stats for those with an HAI pump.

So here's a question. Yesterday a surgeon told me that a partial resection and HAI pump would put my 5-year survival rate back up to 50 percent. However, when I asked about my chances for "cure" and getting to retirement she said that my chances for surviving long term were "very small."

The math doesn't seem to add up. I need realistic expectations. Are my chances of say, still being alive in 15 years really "very small (10 percent or less)?
40 yr old, 3 kids. Dx 9/2018, Stage IV
KRAS G12V (resistant to Cetuximab)
CEA levels normal at diagnosis
4.2 cm Tumor, PT3, PN2B
11 of 18 with adenocarcinoma
+ removal of one cancerous node in Peritoneum.
9/2018, Colon resection and Ostomy-- Margins Negative
10/2018, PET shows 6 liver mets
10/2108, begin FOLFOX (Oxi+5 FU)
11/2018, MRI updates potential liver metastasis to 11 mets, both lobes.

FightCRC
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Joined: Fri May 25, 2018 10:39 pm

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby FightCRC » Thu Nov 08, 2018 1:54 pm

I think perhaps you misunderstand the role of an HAI pump. The pump is implanted with either a. the goal of shrinking the mets so that the liver becomes resectable or b. as adjuvant therapy post-resection to prevent recurrence.

In both cases, the idea is to clear the liver of mets. I can only imagine your surgeon is suggesting the pump, so that your liver eventually becomes resectable.

All treatment options being presented to you are aggressive and proactive. All you (and they) can deal with right now is what's in front of you. No one knows what the picture will look like in 5 years, so try not to think too much about that. Just get through this current treatment first. You're lucky in that your doctors are not simply prescribing chemo by itself; they're fighting to give you a chance. Best of luck with your treatment!

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Phuong
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Facebook Username: Phuong Ly Gallagher

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby Phuong » Thu Nov 08, 2018 5:42 pm

That's tremendous Diane! Congratulations!!!!!
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

Spazzyjanet
Posts: 47
Joined: Mon Oct 01, 2018 3:28 pm
Facebook Username: Heather Stoker

Re: STAGE IV NED 6 1/2 years and 10 years out from dx

Postby Spazzyjanet » Thu Nov 08, 2018 6:44 pm

You are not the first person to tell me that I am thinking too far into the future. I wish that it were so easy for me to do that. As long as someone can help me feel that a decision I make now won't mean that I am limiting my options for the future I will try very hard to learn how to do that.
40 yr old, 3 kids. Dx 9/2018, Stage IV
KRAS G12V (resistant to Cetuximab)
CEA levels normal at diagnosis
4.2 cm Tumor, PT3, PN2B
11 of 18 with adenocarcinoma
+ removal of one cancerous node in Peritoneum.
9/2018, Colon resection and Ostomy-- Margins Negative
10/2018, PET shows 6 liver mets
10/2108, begin FOLFOX (Oxi+5 FU)
11/2018, MRI updates potential liver metastasis to 11 mets, both lobes.


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