Lung nodule question

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dianetavegia
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Lung nodule question

Postby dianetavegia » Fri Oct 19, 2018 10:16 am

I know we're not doctors, but I think many times we have so much experience and have read so much that we know as much as doctors. Here's my question:

I have four lung nodules which were there 10 years ago when I was dx'd with Stage III colon cancer. Three have never changed and are minute.

The fourth has been noted in this order over the years as 4mm x 6mm, 5.1mm x 6.9mm, 7mm, stable since 2009, 5 to 6mm x 4mm and last year the radiologist said MAY have increased to 7mm x 4mm which is confusing because it's been reported that size or larger in previous years. Another doctor was asked to compare the scan from 9/ 2016 and 11/ 2017 and she said 'increased to 7mm x 4mm from prior reading'. From 2012 to 2015 I had PET scans instead of CT scans due to the liver met.

I'm waiting on results from my last scan but these readings are from a total of 10 years this coming January. I'm confused by all the different readings. I've tried to find the reason behind so many different reports/ readings and other than all were done by different radiologist, it makes no sense to me.

One other thing that I've noticed is in prior years the 'voice' during the CT scan would say 'Take a deep breath and hold it now'. Now it just says to breathe in and hold your breath. Guessing it's a newer machine. Also, I can only have w/o contrast for my chest CT due to severe allergy to the contrast.

Thoughts?
Diane
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since dx and 6 1/2 years post liver resection.
NED Oct. 2018

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

Punky44
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Re: Lung nodule question

Postby Punky44 » Fri Oct 19, 2018 1:39 pm

My mom had a CT, MRI, PET and ultrasound on a 2cm mass that they couldn’t identify until today (spoiler alert: it was her ovary.) Anyway, each test reported the size as slightly different, sometimes almost a cm different.
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
MRI/CT/PET puts staging at T3N2M0
Trying total neoadjuvant therapy—chemo first, then short course radiation, then surgery
11/5/18 started Folfox—1 down, 7 to go!

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mobrouser
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Re: Lung nodule question

Postby mobrouser » Fri Oct 19, 2018 10:01 pm

dianetavegia wrote:....One other thing that I've noticed is in prior years the 'voice' during the CT scan would say 'Take a deep breath and hold it now'. Now it just says to breathe in and hold your breath. Guessing it's a newer machine. Also, I can only have w/o contrast for my chest CT due to severe allergy to the contrast.

Thoughts?
Diane

A cost cutting measure? The CT voice actor is being paid by the word? :twisted:

But seriously, as for your nodes I'm only one year into this journey and the one thing that I have learned is to not expect consistency from one test to the next or one doc's opinion to another's or family support from one day to another. Is it possible that the small variations in size could be attributed to slight differences in how you are lying on the scanner bed each time?

Hoping your doc hurries up and ticks that box so that your results are released.
Cheers,
8) mob
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear

Achilles Torn
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Re: Lung nodule question

Postby Achilles Torn » Sat Oct 20, 2018 12:34 am

Sounds stable to me. I’ve sat with a radiologist while he remeasured one of my scans and his measure was 1mm different from the doc who authored the first report. That’s on the same scan so imagine the margin of error between scans.

Congrats on your long term NED !

AT.
40 yo Male. BC Canada. Sigmoid Colectomy Dec. 2016
Pathology T3N2bM1 19 of 24 Nodes Positive + tumour deposits
PET scan - Para-Aortic and Iliac Lymph node spread. Stage VI.
Moderately differentiated. MSS. KRAS/BRAF Wild.
Mutations: TP53, ERBB4, MLL3, PDCD1LG2, PRKDC, SMAD3
FOLFOX Commenced Jan 9/2017 - Avastin(Bev) added after round 1.
June 2017 Dose Reduction on Round 11 due to Neuropathy.
Good PET Scan July 2017 - on maintenance 5FU/Bev every 2 weeks until progression.

Cured
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Location: MO

Re: Lung nodule question

Postby Cured » Sat Oct 20, 2018 1:05 am

Diane, It appears there can be quite a bit of variance on lungs, with the breathing and various scan machines & operators.
My Onc isn't acknowledging a difference if a millimeter or two.

You are correct: the machines and scan technicians vary. I'm sure they cannot get consistent readings.

When I consulted with MSK they said that a CT Scan is more accurate than a Pet scan to measure lung tumors.

May God keep you and heal you.
5-08:Stage 3 Rectal: 6/14 Nodes
Ace Surgeon Removed 90%Rectum & lots of Colon-Full Incision
Ileo Rev'd @6 Mos.
Radiation+5fu Pre-Surgery
FOLFOX 8 Cycles Done 1-09
Clear Scope 8-17; Clear CEA 2-18
Glory to God! Healed by prayers of many: for 10 years
7-18: tumor pressing against brain. Removed.
Metastatic to lung. CEA 6.9 Began Folfiri
CEA dropped to 4.5 after 1 dose of chemo!

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dianetavegia
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Re: Lung nodule question

Postby dianetavegia » Sat Oct 20, 2018 8:06 am

The radiologist measured and then sent my reports to the 'tumor table' and they all said stable since 2009 and made a note that these should all be considered benign for 10 years now!!!

Thanks, y'all! Posting my good news.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since dx and 6 1/2 years post liver resection.
NED Oct. 2018

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2


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