New plan for para aortic lymph nodes. No surgery, radiation instead

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CLD
Posts: 204
Joined: Fri Mar 27, 2015 7:16 pm

New plan for para aortic lymph nodes. No surgery, radiation instead

Postby CLD » Fri Oct 19, 2018 8:24 am

I would like to start this post by commenting that I've recently seen many new people posting with lymph node metastasis. I hope that this post helps those people. Yesterday my husband met for the second time with Dr Bartlett at the Hillman Center. We were told that a multidisciplinary team of some of the world's best oncologists met and decided radiation would be the best course of action to treat my husband's para aortic lymph node metastasis. This was decided because there were three lymph nodes along the chain and not just one. They feel that with radiation a larger area could be targeted for treatment, assuming micrometastassis exist in other nodes. He will continue some sort of chemotherapy we are not sure yet what that will be until we meet with our local radiation oncologist later this month. My husband is very happy with this plan because it means he doesn't have to have surgery, but can still expect a positive outcome. The doctors are very excited for my husband and really feel like this will give him at the least another long-term period Of remission. The radiation oncologist mentioned that the type of radiation used would be sbrt therapy. If I have this all straight this is really new territory for colon cancer. He told us that the treatment was developed at UPMC magee-womens hospital for initial use in gynecologic cancers and treating it for colon cancer is new territory. For that reason I will share the doctor's name with you in case anyone is interested in contacting this doctor for this sort of treatment. His name is Dr. Brian Karlovitz and he is in UPMC Shadyside Hospital in Pittsburgh Pennsylvania. Any one who wants to message me with any questions please feel free to.
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes BRAF / KRAS negative
Folfiri and Avastin Aug 2018
CEA:2.9 at recurrence

Punky44
Posts: 81
Joined: Mon Oct 01, 2018 4:29 pm

Re: New plan for para aortic lymph nodes. No surgery, radiation instead

Postby Punky44 » Fri Oct 19, 2018 9:27 am

Thank you for sharing. Praying for an excellent outcome!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
MRI/CT/PET puts staging at T3N2M0
Trying total neoadjuvant therapy—chemo first, then short course radiation, then surgery
11/5/18 started Folfox—1 down, 7 to go!

stu
Posts: 879
Joined: Sat Aug 17, 2013 5:46 pm

Re: New plan for para aortic lymph nodes. No surgery, radiation instead

Postby stu » Fri Oct 19, 2018 11:43 am

All the very best . Hope it works well for him ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Achilles Torn
Posts: 109
Joined: Fri Dec 16, 2016 2:41 pm

Re: New plan for para aortic lymph nodes. No surgery, radiation instead

Postby Achilles Torn » Fri Oct 19, 2018 12:04 pm

Thanks so much for the update and the helpful information. This sounds like it has a good chance to provide long term remission.

It also seems through anecdotes on this board that chemo can wipe or suppress those micro mets if they are present in other nodes.

If you want a great story about radiation and lymph node mets - search for the user “ TYtiff (I think). They don’t post anymore after being clear for 5 years.

Cheers
AT
40 yo Male. BC Canada. Sigmoid Colectomy Dec. 2016
Pathology T3N2bM1 19 of 24 Nodes Positive + tumour deposits
PET scan - Para-Aortic and Iliac Lymph node spread. Stage VI.
Moderately differentiated. MSS. KRAS/BRAF Wild.
Mutations: TP53, ERBB4, MLL3, PDCD1LG2, PRKDC, SMAD3
FOLFOX Commenced Jan 9/2017 - Avastin(Bev) added after round 1.
June 2017 Dose Reduction on Round 11 due to Neuropathy.
Good PET Scan July 2017 - on maintenance 5FU/Bev every 2 weeks until progression.

gringo51
Posts: 4
Joined: Mon Mar 21, 2016 11:09 am

Re: New plan for para aortic lymph nodes. No surgery, radiation instead

Postby gringo51 » Sun Oct 21, 2018 3:41 pm

Thanks for the update. My husband has same nodes and had SBRT as well. Waiting on follow up scan. Best of luck and positive thoughts!
Wife to DH diagnosed June 2015 age 51.
Stage IIIC Rectal Cancer with regional lymph nodes
FOLFOX 6 months
Chemo Radiation Therapy
Complete Response to treatment - Watch and Wait
NED March 2016 - Feb 2018.
PET Scan March 2018 - single 1cm Para aortic lymph node
Xeloda/Avastin- 2 months, Fail.
2nd opinion at MSKCC suggested SBRT
SBRT July 2018
August CT showed original lymph stable with two additional Para aortic lymph nodes 7mm each
CT scheduled for Oct 2018


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