Good news friends

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Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Good news friends

Postby Trying » Tue Oct 16, 2018 10:45 pm

My dr. Just called and advised my cea level is in the 100s and started at 985 in july. He said keep doing what your doing as numbers are continuing to drop Not sure these levels msr same here in canada. And my main tumor shrunk by 60% i really needed to hear it today.
By the way...anyone know of interaction with frankinsense ans folfox. Heard its goid for cancer.
Wishing you all strength and courage
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Good news friends

Postby stu » Wed Oct 17, 2018 3:35 am

So happy for you . It’s not just good need it’s great news .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

WarriorSpouse
Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: Good news friends

Postby WarriorSpouse » Wed Oct 17, 2018 7:59 am

Well Done...Congrats on your progress!
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Good news friends

Postby Punky44 » Wed Oct 17, 2018 11:09 am

So happy for you!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Nohogirl
Posts: 116
Joined: Sun Oct 14, 2018 12:15 am

Re: Good news friends

Postby Nohogirl » Wed Oct 17, 2018 11:26 am

Congrats Trying. Was it the chemo that shrunk the tumor
Or you were doing something else.
04/18 DH 49 Stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm, including entire rectum out
Path -Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
10/18-02/19 8 cycles of Folfox
02/19 Pet Scan. NED
08/19 Pet Scan NED
08/19 Colonoscopy Clear

Detox
Posts: 61
Joined: Fri Apr 28, 2017 5:27 pm

Re: Good news friends

Postby Detox » Wed Oct 17, 2018 12:24 pm

Awesome news! Hopefully the tumors will be small enough to where you can become a surgical candidate. As you said, even if there are tumors in areas where resection is risky, they should be able to use other methods. Definitely look into this if you can.

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: Good news friends

Postby Trying » Wed Oct 17, 2018 3:16 pm

I think it was a combo 9f chemo plus other things. I switched to a 90% whole food diet. I take cbd oil and thc. I do green juices and alot of viaualization ro my cancer cells being destroyed. Hope the good results keep up
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Ksiemonsma
Posts: 13
Joined: Sun Aug 27, 2017 11:16 pm

Re: Good news friends

Postby Ksiemonsma » Wed Oct 17, 2018 7:39 pm

Great news
Colon cancer 7/17 age 49
Colectomy 8/17
Stage 3C T4B N2B MO
16/27 lymph nodes
First round of FOLFOX on 9/13/17
3/7/18. 12th round and hopefully last of FOLFOX (9 with oxi)
Clear scans 6/7/18
Clear scans 10/3/18


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